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All Outputs (461)

Meaningful patient and public engagement in dissemination—embedding co-production in dementia research (2024)
Journal Article
de Wolf-Linder, S., Kramer, I., Hersperger, M., Schubert, M., Bachi, S., Stolz, M., Wolverson, E., & Ramsenthaler, C. (2024). Meaningful patient and public engagement in dissemination—embedding co-production in dementia research. Frontiers in Dementia, 3, Article 1426019. https://doi.org/10.3389/frdem.2024.1426019

Background: Patient and Public Involvement and Engagement (PPIE) is still underutilised in both dementia research and corresponding dissemination activities.

Aim: To describe the methods, format, and lessons learned in co-creating and co-producing... Read More about Meaningful patient and public engagement in dissemination—embedding co-production in dementia research.

Factors Influencing the Implementation of Digital Advance Care Planning: Qualitative Interview Study (2024)
Journal Article
Bradshaw, A., Birtwistle, J., Evans, C. J., Sleeman, K. E., Richards, S., Foy, R., Martin, P. M., Carder, P., Allsop, M. J., & Twiddy, M. (2024). Factors Influencing the Implementation of Digital Advance Care Planning: Qualitative Interview Study. Journal of medical Internet research, 26, Article e50217. https://doi.org/10.2196/50217

BACKGROUND: Palliative care aims to improve the quality of life for people with life-limiting illnesses. Advance care planning conversations that establish a patient's wishes and preferences for care are part of a person-centered approach. Internatio... Read More about Factors Influencing the Implementation of Digital Advance Care Planning: Qualitative Interview Study.

How can interventions more directly address drivers of unprofessional behaviour between healthcare staff? (2024)
Journal Article
Aunger, J. A., Abrams, R., Mannion, R., Westbrook, J. I., Jones, A., Wright, J. M., Pearson, M., & Maben, J. (2024). How can interventions more directly address drivers of unprofessional behaviour between healthcare staff?. BMJ Open Quality, 13(3), Article e002830. https://doi.org/10.1136/bmjoq-2024-002830

Unprofessional behaviours (UBs) between healthcare staff are widespread and have negative impacts on patient safety, staff well-being and organisational efficiency. However, knowledge of how to address UBs is lacking. Our recent realist review analys... Read More about How can interventions more directly address drivers of unprofessional behaviour between healthcare staff?.

The cost of providing care by family and friends (informal care) in the last year of life: A population observational study (2024)
Journal Article
Johnson, M. J., Currow, D. C., Chynoweth, J., Weatherly, H., Keser, G., Hutchinson, A., …Allgar, V. (2024). The cost of providing care by family and friends (informal care) in the last year of life: A population observational study. Palliative medicine, https://doi.org/10.1177/02692163241259649

Introduction: Little is known about replacement costs of care provided by informal carers during the last year of life for people dying of cancer and non-cancer diseases. Aim: To estimate informal caregiving costs and explore the relationship with ca... Read More about The cost of providing care by family and friends (informal care) in the last year of life: A population observational study.

Parenteral nutrition and venting gastrostomy in the management of malignant bowel obstruction (2024)
Thesis
Patterson, M. J. Parenteral nutrition and venting gastrostomy in the management of malignant bowel obstruction. (Thesis). Hull York Medical School. https://hull-repository.worktribe.com/output/4711450

Background: Malignant bowel obstruction (MBO) is a distressing complication of gastrointestinal, gynaecological and other cancers causing severe pain, intractable nausea and vomiting, anorexia, and death. There are no agreed best approaches for sympt... Read More about Parenteral nutrition and venting gastrostomy in the management of malignant bowel obstruction.

Developing a typology of interventions to support doctors’ mental health and wellbeing (2024)
Journal Article
Pearson, A., Carrieri, D., Melvin, A., Bramwell, C., Scott, J., Hancock, J., Papoutsi, C., Pearson, M., Wong, G., & Mattick, K. (2024). Developing a typology of interventions to support doctors’ mental health and wellbeing. BMC health services research, 24(1), Article 573. https://doi.org/10.1186/s12913-024-10884-6

Background: The problem of mental ill-health in doctors is complex, accentuated by the COVID-19 pandemic, and impacts on healthcare provision and broader organisational performance. There are many interventions to address the problem but currently no... Read More about Developing a typology of interventions to support doctors’ mental health and wellbeing.

Kinship Health Relationships: Reconfiguring the ‘good death’ in mixed species families. (2024)
Journal Article
Ashall, V., Hamilton, L., Johnson, M., & Latimer, J. (2024). Kinship Health Relationships: Reconfiguring the ‘good death’ in mixed species families. Symbolic Interaction, https://doi.org/10.1002/symb.689

Through an innovative interspecies analysis, this article explores narratives surrounding the medical treatment of humans and pet animals at the end of life among UK veterinary surgeons, medical practitioners and members of the public. Contrasting th... Read More about Kinship Health Relationships: Reconfiguring the ‘good death’ in mixed species families..

Homecare workers needs and experiences in end of life care: rapid review (2024)
Journal Article
Forward, C., Bayley, Z., Walker, L., Krygier, J., White, C., Mwaba, K., Elliott-Button, H., Taylor, P., & Johnson, M. J. (in press). Homecare workers needs and experiences in end of life care: rapid review. BMJ Supportive & Palliative Care, https://doi.org/10.1136/spcare-2023-004737

Background Social homecare workers provide essential care to those living at home at the end of life. In the context of a service experiencing difficulties in attracting and retaining staff, we have limited knowledge about the training, support needs... Read More about Homecare workers needs and experiences in end of life care: rapid review.

What are the anticipated benefits, risks, barriers and facilitators to implementing person-centred outcome measures into routine care for children and young people with life-limiting and life-threatening conditions? A qualitative interview study with key stakeholders (2024)
Journal Article
May Scott, H. M., Coombes, L., Braybrook, D., Harðardóttir, D., Roach, A., Bristowe, K., …On Behalf Of C-POS. (2024). What are the anticipated benefits, risks, barriers and facilitators to implementing person-centred outcome measures into routine care for children and young people with life-limiting and life-threatening conditions? A qualitative interview study with key stakeholders. Palliative medicine, 38(4), 471-484. https://doi.org/10.1177/02692163241234797

Background: There is a growing evidence-base underpinning implementation of person-centred outcome measures into adult palliative care. However evidence on how best to achieve this with children facing life-threatening and life-limiting conditions is... Read More about What are the anticipated benefits, risks, barriers and facilitators to implementing person-centred outcome measures into routine care for children and young people with life-limiting and life-threatening conditions? A qualitative interview study with key stakeholders.

Creating more comparable cohorts in observational palliative care studies: A proposed framework to improve applicability and replicability of research (2024)
Journal Article
Kochovska, S., Murtagh, F. E., Agar, M., Phillips, J. L., Dudgeon, D., Lujic, S., Johnson, M., & Currow, D. C. (2024). Creating more comparable cohorts in observational palliative care studies: A proposed framework to improve applicability and replicability of research. Palliative medicine, https://doi.org/10.1177/02692163241234227

Background: Palliative care is characterised by heterogeneous patient and caregiver populations who are provided care in different health systems and a research base including a large proportion of observational, mostly retrospective studies. The inh... Read More about Creating more comparable cohorts in observational palliative care studies: A proposed framework to improve applicability and replicability of research.

Hospital admissions in the last year of life of patients with heart failure (2024)
Journal Article
AI Abel, A., Samuel, N. A., Cuthbert, J. J., Brown, O. I., Pellicori, P., Kazmi, S., GF Cleland, J., Johnson, M., & Clark, A. L. (2024). Hospital admissions in the last year of life of patients with heart failure. European Heart Journal - Quality of Care and Clinical Outcomes, 10(2), 168-175. https://doi.org/10.1093/ehjqcco/qcad047

Aim To explore the frequency, causes, and pattern of hospitalisation for patients with chronic heart failure (HF) in the 12 months preceding death. We also investigated cause of death. Methods Patients referred to a secondary care HF clinic were rout... Read More about Hospital admissions in the last year of life of patients with heart failure.

Erratum: Correction: Supported: Supporting, enabling, and sustaining homecare workers to deliver end-of-life care: A qualitative study protocol (PloS one (2023) 18 12 (e0291525)) (2024)
Journal Article
Bayley, Z., Bothma, J., Bravington, A., Forward, C., Hussain, J., Manthorpe, J., Pearson, M., Roberts, H., Taylor, P., Walker, L., White, C., Wray, J., & Johnson, M. J. (2024). Erratum: Correction: Supported: Supporting, enabling, and sustaining homecare workers to deliver end-of-life care: A qualitative study protocol (PloS one (2023) 18 12 (e0291525)). PLoS ONE, 19(2), Article e0298925. https://doi.org/10.1371/journal.pone.0298925

[This corrects the article DOI: 10.1371/journal.pone.0291525.].

Views of patients with progressive illness and carers about the role of digital advance care planning systems to record and share information: a qualitative study (2024)
Journal Article
Birtwistle, J., Allsop, M. J., Bradshaw, A., Millares Martin, P., Sleeman, K. E., Twiddy, M., & Evans, C. J. (2024). Views of patients with progressive illness and carers about the role of digital advance care planning systems to record and share information: a qualitative study. Palliative medicine, 38(7), 711-724. https://doi.org/10.1177/02692163241255511

Background: Digital approaches are being explored internationally to support the elicitation, documentation and sharing of advance care planning information. However, the views and experiences of patients and carers are little understood, impeding th... Read More about Views of patients with progressive illness and carers about the role of digital advance care planning systems to record and share information: a qualitative study.

Views and experiences of opioid access amongst palliative care providers and public representatives in a low-resource setting: A qualitative interview study (2023)
Journal Article
Clark, J., Salins, N., Daniel, S., Currow, D. C., Jones, L., Pearson, M., …Johnson, M. J. (2023). Views and experiences of opioid access amongst palliative care providers and public representatives in a low-resource setting: A qualitative interview study. PLOS Global Public Health, 3(9), Article e0002401. https://doi.org/10.1371/journal.pgph.0002401

Opioids (e.g. morphine) are affordable, effective interventions for cancer-related pain. However, equity of access to this key medication remains a global challenge, particularly in low- and middle-income countries. We aimed to explore views of palli... Read More about Views and experiences of opioid access amongst palliative care providers and public representatives in a low-resource setting: A qualitative interview study.

Airflow rates and breathlessness recovery from submaximal exercise in healthy adults: prospective, randomised, cross-over study (2023)
Journal Article
Brew, A., O'Beirne, S., Johnson, M. J., Ramsenthaler, C., Watson, P., Rubini, P. A., Fagan, M. J., Swan, F., & Simpson, A. (online). Airflow rates and breathlessness recovery from submaximal exercise in healthy adults: prospective, randomised, cross-over study. BMJ supportive & palliative care, https://doi.org/10.1136/spcare-2023-004309

Objectives: Facial airflow from a hand-held fan may reduce breathlessness severity and hasten postexertion recovery. Data from randomised controlled trials are limited and the optimal airflow speed remains unknown. We aimed to determine the effect of... Read More about Airflow rates and breathlessness recovery from submaximal exercise in healthy adults: prospective, randomised, cross-over study.

The Feasibility and Acceptability of ExerciseGuide UK: A Web-Based Platform for Personalised Physical Activity Programmes and Educational Resources for Individuals Living with and Beyond Lung Cancer: A Mixed Methods Thesis (2023)
Thesis
Curry, J. The Feasibility and Acceptability of ExerciseGuide UK: A Web-Based Platform for Personalised Physical Activity Programmes and Educational Resources for Individuals Living with and Beyond Lung Cancer: A Mixed Methods Thesis. (Thesis). Hull York Medical School. https://hull-repository.worktribe.com/output/4790527

Background: Lung cancer has a high incidence and mortality rate, particularly in older adults (65y+). Physical activity can improve the physical and psychological health of these patients. A virtual exercise and education programme could address barr... Read More about The Feasibility and Acceptability of ExerciseGuide UK: A Web-Based Platform for Personalised Physical Activity Programmes and Educational Resources for Individuals Living with and Beyond Lung Cancer: A Mixed Methods Thesis.

Breathlessness limiting exertion in very old adults: findings from the Newcastle 85+ study (2023)
Journal Article
Johnson, M. J., Pitel, L., Currow, D. C., Forbes, C., Soyiri, I., & Robinson, L. (2023). Breathlessness limiting exertion in very old adults: findings from the Newcastle 85+ study. Age and ageing, 52(9), Article afad155. https://doi.org/10.1093/ageing/afad155

INTRODUCTION: Long-term breathlessness is more common with age. However, in the oldest old (>85years), little is known about the prevalence, or impact of breathlessness. We estimated breathlessness limiting exertion prevalence and explored (i) associ... Read More about Breathlessness limiting exertion in very old adults: findings from the Newcastle 85+ study.

Development of a Core Outcome Set for the research and assessment of malignant bowel obstruction (2023)
Journal Article
Bravington, A., Obita, G., Baddeley, E., Johnson, M., Murtagh, F., Currow, D., …Boland, J. (2023). Development of a Core Outcome Set for the research and assessment of malignant bowel obstruction. PLoS ONE, 18(8), Article e0289501. https://doi.org/10.1371/journal.pone.0289501

Background: Malignant bowel obstruction is experienced by 15% of people with advanced cancer, preventing them from eating and drinking and causing pain, nausea and vomiting. Surgery is not always appropriate. Management options include tube or stent... Read More about Development of a Core Outcome Set for the research and assessment of malignant bowel obstruction.

Connecting the science and practice of implementation – applying the lens of context to inform study design in implementation research (2023)
Journal Article
Harvey, G., Rycroft-Malone, J., Seers, K., Wilson, P., Cassidy, C., Embrett, M., …Graham, I. D. (2023). Connecting the science and practice of implementation – applying the lens of context to inform study design in implementation research. Frontiers in Health Services, 3, Article 1162762. https://doi.org/10.3389/frhs.2023.1162762

The saying “horses for courses” refers to the idea that different people and things possess different skills or qualities that are appropriate in different situations. In this paper, we apply the analogy of “horses for courses” to stimulate a debate... Read More about Connecting the science and practice of implementation – applying the lens of context to inform study design in implementation research.