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All Outputs (20)

Adaptation and multicentre validation of a patient-centred outcome scale for people severely ill with COVID (IPOS-COV) (2023)
Journal Article
Hocaoglu, M. B., Murtagh, F. E., Walshe, C., Chambers, R. L., Maddocks, M., Sleeman, K. E., …Higginson, I. J. (2023). Adaptation and multicentre validation of a patient-centred outcome scale for people severely ill with COVID (IPOS-COV). Health and quality of life outcomes, 21(1), Article 29. https://doi.org/10.1186/s12955-023-02102-4

Background: Patient-centred measures to capture symptoms and concerns have rarely been reported in severe COVID. We adapted and tested the measurement properties of the proxy version of the Integrated Palliative care Outcome Scale–IPOS-COV for severe... Read More about Adaptation and multicentre validation of a patient-centred outcome scale for people severely ill with COVID (IPOS-COV).

Adaptation and multicentre validation of a patient-centred outcome scale for people severely ill with COVID (IPOS-COV) (2023)
Journal Article
Hocaoglu, M. B., Murtagh, F. E., Walshe, C., Chambers, R. L., Maddocks, M., Sleeman, K. E., …the CovPall study team. (2023). Adaptation and multicentre validation of a patient-centred outcome scale for people severely ill with COVID (IPOS-COV). Health and quality of life outcomes, 21(1), Article 29. https://doi.org/10.1186/s12955-023-02102-4

Background: Patient-centred measures to capture symptoms and concerns have rarely been reported in severe COVID. We adapted and tested the measurement properties of the proxy version of the Integrated Palliative care Outcome Scale–IPOS-COV for severe... Read More about Adaptation and multicentre validation of a patient-centred outcome scale for people severely ill with COVID (IPOS-COV).

Charitably funded hospices and the challenges associated with the COVID-19 pandemic: a mixed-methods study (CovPall) (2022)
Journal Article
Garner, I. W., Walshe, C., Dunleavey, L., Bradshaw, A., Preston, N., Fraser, L. K., …Higginson, I. J. (2022). Charitably funded hospices and the challenges associated with the COVID-19 pandemic: a mixed-methods study (CovPall). BMC Palliative Care, 21(1), Article 176. https://doi.org/10.1186/s12904-022-01070-8

BACKGROUND: Independent charitably funded hospices have been an important element of the UK healthcare response to the COVID-19 pandemic. Hospices usually have different funding streams, procurement processes, and governance arrangements compared to... Read More about Charitably funded hospices and the challenges associated with the COVID-19 pandemic: a mixed-methods study (CovPall).

Symptom management in people dying with COVID-19: multinational observational study (2022)
Journal Article
Oluyase, A. O., Bajwah, S., Sleeman, K. E., Walshe, C., Preston, N., Hocaoglu, M., …Higginson, I. J. (2022). Symptom management in people dying with COVID-19: multinational observational study. BMJ Supportive & Palliative Care, 12(4), 439-447. https://doi.org/10.1136/spcare-2022-003799

OBJECTIVES: To describe multinational prescribing practices by palliative care services for symptom management in patients dying with COVID-19 and the perceived effectiveness of medicines. METHODS: We surveyed specialist palliative care services, con... Read More about Symptom management in people dying with COVID-19: multinational observational study.

Symptom Control and Survival for People Severely ill With COVID: A Multicentre Cohort Study (CovPall-Symptom) (2022)
Journal Article
Higginson, I. J., Hocaoglu, M., Fraser, L. K., Maddocks, M., Sleeman, K. E., Oluyase, A. O., …On behalf of theCovPall study team. (2022). Symptom Control and Survival for People Severely ill With COVID: A Multicentre Cohort Study (CovPall-Symptom). Journal of pain and symptom management, 64(4), 377-390. https://doi.org/10.1016/j.jpainsymman.2022.06.009

Context: Evidence of symptom control outcomes in severe COVID is scant. Objectives: To determine changes in symptoms among people severely ill or dying with COVID supported by palliative care, and associations with treatments and survival. Methods: M... Read More about Symptom Control and Survival for People Severely ill With COVID: A Multicentre Cohort Study (CovPall-Symptom).

Experiences of staff providing specialist palliative care during COVID-19: a multiple qualitative case study (2022)
Journal Article
Bradshaw, A., Dunleavy, L., Garner, I., Preston, N., Bajwah, S., Cripps, R., …CovPall study team. (in press). Experiences of staff providing specialist palliative care during COVID-19: a multiple qualitative case study. Journal of the Royal Society of Medicine, https://doi.org/10.1177/01410768221077366

Objective: To explore the experiences of, and impact on, staff working in palliative care during the COVID-19 pandemic. Design: Qualitative multiple case study using semi-structured interviews between November 2020 and April 2021 as part of the CovPa... Read More about Experiences of staff providing specialist palliative care during COVID-19: a multiple qualitative case study.

Understanding the impact of the Covid-19 pandemic on delivery of rehabilitation in specialist palliative care services: An analysis of the CovPall-Rehab survey data (2021)
Journal Article
Bayly, J., Bradshaw, A., Fettes, L., Omarjee, M., Talbot-Rice, H., Walshe, C., …Maddocks, M. (in press). Understanding the impact of the Covid-19 pandemic on delivery of rehabilitation in specialist palliative care services: An analysis of the CovPall-Rehab survey data. Palliative medicine, https://doi.org/10.1177/02692163211063397

Background: Palliative rehabilitation involves multi-professional processes and interventions aimed at optimising patients’ symptom self-management, independence and social participation throughout advanced illness. Rehabilitation services were highl... Read More about Understanding the impact of the Covid-19 pandemic on delivery of rehabilitation in specialist palliative care services: An analysis of the CovPall-Rehab survey data.

Change in Activity of Palliative Care Services during the Covid-19 Pandemic: A Multinational Survey (CovPall) (2021)
Journal Article
Sleeman, K. E., Cripps, R. L., Murtagh, F. E., Oluyase, A. O., Hocaoglu, M. B., Maddocks, M., …on behalf of the CovPall Study Team. (2022). Change in Activity of Palliative Care Services during the Covid-19 Pandemic: A Multinational Survey (CovPall). Journal of palliative medicine, 25(3), 465-471. https://doi.org/10.1089/jpm.2021.0315

Objectives: To identify factors associated with palliative care services being busier during Covid-19. Methods: Cross-sectional online survey of UK palliative care services (April to July 2020) (CovPall). Ethical approval was received from King's Col... Read More about Change in Activity of Palliative Care Services during the Covid-19 Pandemic: A Multinational Survey (CovPall).

Using and implementing individual-level outcome measures in palliative care settings: a reflective commentary (2021)
Journal Article
Bradshaw, A., Pearson, M., & Murtagh, F. (2021). Using and implementing individual-level outcome measures in palliative care settings: a reflective commentary. Rivista italiana di cure palliative, 23(4), 197-204. https://doi.org/10.1726/3702.36924

Individual-level outcome measures are an important aspect of palliative care. They are tools that can drive high-quality, person-centred care through providing healthcare professionals and services with valuable information about the patients we see... Read More about Using and implementing individual-level outcome measures in palliative care settings: a reflective commentary.

Specialist palliative care services response to ethnic minority groups with COVID-19: equal but inequitable—an observational study (2021)
Journal Article
Bajwah, S., Koffman, J., Hussain, J., Bradshaw, A., Hocaoglu, M. B., Fraser, L. K., …Murtagh, F. E. M. (2021). Specialist palliative care services response to ethnic minority groups with COVID-19: equal but inequitable—an observational study. BMJ Supportive & Palliative Care, bmjspcare-2021-003083. https://doi.org/10.1136/bmjspcare-2021-003083

Objectives: To develop insights into response of palliative care services caring for people from ethnic minority groups during COVID-19. Methods: Cross-sectional online survey of UK palliative care services response to COVID-19. Quantitative data w... Read More about Specialist palliative care services response to ethnic minority groups with COVID-19: equal but inequitable—an observational study.

Prohibit, Protect, or Adapt? The Changing Role of Volunteers in Palliative and Hospice Care Services During the COVID-19 Pandemic. A Multinational Survey (Covpall) (2021)
Journal Article
Walshe, C., Garner, I., Dunleavy, L., Preston, N., Bradshaw, A., Cripps, R. L., …Higginson, I. J. (2022). Prohibit, Protect, or Adapt? The Changing Role of Volunteers in Palliative and Hospice Care Services During the COVID-19 Pandemic. A Multinational Survey (Covpall). International Journal of Health Policy and Management, 11(10), 2146-2154. https://doi.org/10.34172/ijhpm.2021.128

Background: Volunteers are common within palliative care services, and provide support that enhances care quality. The support they provided, and any role changes, during the coronavirus disease 2019 (COVID-19) pandemic are unknown. The aim of this s... Read More about Prohibit, Protect, or Adapt? The Changing Role of Volunteers in Palliative and Hospice Care Services During the COVID-19 Pandemic. A Multinational Survey (Covpall).

Implementing person-centred outcome measures (PCOMs) into routine palliative care: A protocol for a mixed-methods process evaluation of the RESOLVE PCOM Implementation Strategy (2021)
Journal Article
Bradshaw, A., Santarelli, M., Khamis, A. M., Sartain, K., Johnson, M., Boland, J., …Murtagh, F. E. (2021). Implementing person-centred outcome measures (PCOMs) into routine palliative care: A protocol for a mixed-methods process evaluation of the RESOLVE PCOM Implementation Strategy. BMJ open, 11(9), Article e051904. https://doi.org/10.1136/bmjopen-2021-051904

Introduction Person-centred outcome measures improve quality of care and patient outcomes but are used inconsistently in palliative care practice. To address this implementation gap, we developed the 'RESOLVE Implementation Strategy'. This protocol d... Read More about Implementing person-centred outcome measures (PCOMs) into routine palliative care: A protocol for a mixed-methods process evaluation of the RESOLVE PCOM Implementation Strategy.

Understanding and addressing challenges for advance care planning in the COVID-19 pandemic: An analysis of the UK CovPall survey data from specialist palliative care services (2021)
Journal Article
Bradshaw, A., Dunleavy, L., Walshe, C., Preston, N., Cripps, R. L., Hocaoglu, M., …Murtagh, F. (2021). Understanding and addressing challenges for advance care planning in the COVID-19 pandemic: An analysis of the UK CovPall survey data from specialist palliative care services. Palliative medicine, 35(7), 1225-1237. https://doi.org/10.1177/02692163211017387

Background: Specialist palliative care services play an important role in conducting advance care planning during COVID-19. Little is known about the challenges to advance care planning in this context, or the changes services made to adapt. Aim: Des... Read More about Understanding and addressing challenges for advance care planning in the COVID-19 pandemic: An analysis of the UK CovPall survey data from specialist palliative care services.

‘Necessity is the mother of invention’: Specialist palliative care service innovation and practice change in response to COVID-19. Results from a multinational survey (CovPall) (2021)
Journal Article
Dunleavy, L., Preston, N., Bajwah, S., Bradshaw, A., Cripps, R., Fraser, L. K., …Walshe, C. (2021). ‘Necessity is the mother of invention’: Specialist palliative care service innovation and practice change in response to COVID-19. Results from a multinational survey (CovPall). Palliative medicine, 35(5), 814-829. https://doi.org/10.1186/ISRCTN16561225

Background: Specialist palliative care services have a key role in a whole system response to COVID-19, a disease caused by the SARS-CoV-2 virus. There is a need to understand service response to share good practice and prepare for future care. A... Read More about ‘Necessity is the mother of invention’: Specialist palliative care service innovation and practice change in response to COVID-19. Results from a multinational survey (CovPall).

The challenges of caring for people dying from COVID-19: a multinational, observational study (CovPall) (2021)
Journal Article
Oluyase, A. O., Hocaoglu, M., Cripps, R. L., Maddocks, M., Walshe, C., Fraser, L. K., …Higginson, I. J. (in press). The challenges of caring for people dying from COVID-19: a multinational, observational study (CovPall). Journal of pain and symptom management, https://doi.org/10.1016/j.jpainsymman.2021.01.138

Context: Systematic data on the care of people dying with COVID-19 are scarce. Objectives: To understand the response of and challenges faced by palliative care services during the COVID-19 pandemic, and identify associated factors. Methods: We surve... Read More about The challenges of caring for people dying from COVID-19: a multinational, observational study (CovPall).

Group-based Tai Chi as therapy for alleviating experiences of social death in people with advanced, incurable disease: an ethnographic study (2021)
Journal Article
Bradshaw, A., Walker, L., Borgstrom, E., & Burke, S. M. (2022). Group-based Tai Chi as therapy for alleviating experiences of social death in people with advanced, incurable disease: an ethnographic study. Qualitative research in sport, exercise and health, 14(1), 84-100. https://doi.org/10.1080/2159676X.2021.1879918

Advanced, incurable disease is a highly stressful and traumatic life event that can lead to losses of social identity, social connectedness, and losses associated with bodily disintegration. The combination of these losses makes it difficult to remai... Read More about Group-based Tai Chi as therapy for alleviating experiences of social death in people with advanced, incurable disease: an ethnographic study.

Implementing person-centred outcome measures in palliative care: An exploratory qualitative study using Normalisation Process Theory to understand processes and context (2020)
Journal Article
Bradshaw, A., Santarelli, M., Mulderrig, M., Khamis, A., Sartain, K., Boland, J. W., …Murtagh, F. E. (in press). Implementing person-centred outcome measures in palliative care: An exploratory qualitative study using Normalisation Process Theory to understand processes and context. Palliative medicine, https://doi.org/10.1177/0269216320972049

© The Author(s) 2020. Background: Despite evidence demonstrating the utility of using Person-Centred Outcome Measures within palliative care settings, implementing them into routine practice is challenging. Most research has described barriers to, wi... Read More about Implementing person-centred outcome measures in palliative care: An exploratory qualitative study using Normalisation Process Theory to understand processes and context.

A systematic review and critical interpretive synthesis of public perceptions of palliative care (2020)
Thesis
Gill, A. J. (2020). A systematic review and critical interpretive synthesis of public perceptions of palliative care. (Thesis). Hull York Medical School, the University of Hull and the University of York. Retrieved from https://hull-repository.worktribe.com/output/4223148

Introduction Professional and public misperceptions about palliative care are common and may contribute to poor palliative care access in different settings globally. In this thesis, I aimed to better understand these public perceptions and the infl... Read More about A systematic review and critical interpretive synthesis of public perceptions of palliative care.

Living in the mo(ve)ment: An ethnographic exploration of hospice patients’ experiences of participating in Tai Chi (2020)
Journal Article
Burke, S. M., Bradshaw, A., Phoenix, C., & Shaunna, B. (2020). Living in the mo(ve)ment: An ethnographic exploration of hospice patients’ experiences of participating in Tai Chi. Psychology of sport and exercise, 49, Article 101687. https://doi.org/10.1016/j.psychsport.2020.101687

Purpose: Tai Chi is increasingly being used as a complimentary therapy in hospice care to help patients self-manage multiple and complex health needs. However, currently there is limited understanding of Tai Chi from patients’ perspective, including... Read More about Living in the mo(ve)ment: An ethnographic exploration of hospice patients’ experiences of participating in Tai Chi.