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Professor Fliss Murtagh's Outputs (155)

Palliative care for children and young people with stage 5 chronic kidney disease (2021)
Journal Article
Craig, F., Henderson, E. M., Patel, B., Murtagh, F. E., & Bluebond-Langner, M. (2021). Palliative care for children and young people with stage 5 chronic kidney disease. Pediatric Nephrology, https://doi.org/10.1007/s00467-021-05056-1

Death from stage 5 chronic kidney disease (CKD 5) in childhood or adolescence is rare, but something that all paediatric renal physicians and most paediatricians will encounter. In this paper, we present the literature on three key areas of palliativ... Read More about Palliative care for children and young people with stage 5 chronic kidney disease.

Implantable cardioverter defibrillator devices: when, how and who should discuss deactivation with patients: a systematic literature review (2021)
Journal Article
Freemantle, M., & Murtagh, F. (in press). Implantable cardioverter defibrillator devices: when, how and who should discuss deactivation with patients: a systematic literature review. BMJ supportive & palliative care, Article 2021-002894. https://doi.org/10.1136/bmjspcare-2021-002894

Background: Implantable cardioverter defibrillators (ICDs) are used to treat life-threatening cardiac arrhythmias and prevent sudden cardiac arrest. As recipients age they may develop greater risk of dying as a result of progressive multimorbidity ra... Read More about Implantable cardioverter defibrillator devices: when, how and who should discuss deactivation with patients: a systematic literature review.

‘Necessity is the mother of invention’: Specialist palliative care service innovation and practice change in response to COVID-19. Results from a multinational survey (CovPall) (2021)
Journal Article
Dunleavy, L., Preston, N., Bajwah, S., Bradshaw, A., Cripps, R., Fraser, L. K., Maddocks, M., Hocaoglu, M., Murtagh, F. E., Oluyase, A. O., Sleeman, K. E., Higginson, I. J., & Walshe, C. (2021). ‘Necessity is the mother of invention’: Specialist palliative care service innovation and practice change in response to COVID-19. Results from a multinational survey (CovPall). Palliative medicine, 35(5), 814-829. https://doi.org/10.1177/02692163211000660

Background: Specialist palliative care services have a key role in a whole system response to COVID-19, a disease caused by the SARS-CoV-2 virus. There is a need to understand service response to share good practice and prepare for future care. Aim:... Read More about ‘Necessity is the mother of invention’: Specialist palliative care service innovation and practice change in response to COVID-19. Results from a multinational survey (CovPall).

Enhancing validity, reliability and participation in self-reported health outcome measurement for children and young people: a systematic review of recall period, response scale format, and administration modality (2021)
Journal Article
Harding, R., Bristowe, K., Coombes, L., Murtagh, F. E., Chambers, L., Bluebond-Langner, M., Downing, J., Fraser, L. K., Aworinde, J., & Ellis-Smith, C. (in press). Enhancing validity, reliability and participation in self-reported health outcome measurement for children and young people: a systematic review of recall period, response scale format, and administration modality. Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation, https://doi.org/10.1007/s11136-021-02814-4

Introduction: Self-report is the gold standard for measuring children’s health-related outcomes. Design of such measures is complex and challenging. This review aims to systematically appraise the evidence on recall period, response scale format, mod... Read More about Enhancing validity, reliability and participation in self-reported health outcome measurement for children and young people: a systematic review of recall period, response scale format, and administration modality.

Outcomes and care priorities for older people living with frailty and advanced chronic kidney disease: A multiprofessional scoping review protocol (2021)
Journal Article
Hurst, H., Jones, E., Ormandy, P., Brettle, A., Nixon, A. C., Young, H., Mooney, A., Winterbottom, A., Bekker, H., Brown, E., Murtagh, F. E., Da Silva-Gane, M., Coyle, D., & Finnigan, R. (2021). Outcomes and care priorities for older people living with frailty and advanced chronic kidney disease: A multiprofessional scoping review protocol. BMJ open, 11(3), Article e040715. https://doi.org/10.1136/bmjopen-2020-040715

Introduction Reported outcomes for older people with advanced chronic kidney disease (CKD) often focus on survival and mortality and little attention is paid to symptom burden and health-related quality of life. Recognising frailty and providing inte... Read More about Outcomes and care priorities for older people living with frailty and advanced chronic kidney disease: A multiprofessional scoping review protocol.

The health of mothers of children with a life-limiting condition; a comparative cohort study (2021)
Journal Article
Fraser, L. K., Murtagh, F. E., Aldridge, J., Sheldon, T., Gilbody, S., & Hewitt, C. (2021). The health of mothers of children with a life-limiting condition; a comparative cohort study. Archives of Disease in Childhood, 106(10), 987-993. https://doi.org/10.1136/archdischild-2020-320655

Objective This study aimed to quantify the incidence rates of common mental and physical health conditions in mothers of children with a life-limiting condition. Methods Comparative national longitudinal cohort study using linked primary and secondar... Read More about The health of mothers of children with a life-limiting condition; a comparative cohort study.

Palliative medicine in the intensive care unit: needs, delivery, quality (2021)
Journal Article
Hill, S., Dawood, A., Boland, E., Leahy, H. E., & Murtagh, F. (in press). Palliative medicine in the intensive care unit: needs, delivery, quality. BMJ supportive & palliative care, Article 2795. https://doi.org/10.1136/bmjspcare-2020-002795

Background: 15%-20% of critical care patients die during their hospital admission. This service evaluation assesses quality of palliative care in intensive care units (ICUs) compared with national standards. Methods: Retrospective review of records f... Read More about Palliative medicine in the intensive care unit: needs, delivery, quality.

Socioeconomic position and use of hospital-based care towards the end of life: a mediation analysis using the English Longitudinal Study of Ageing (2021)
Journal Article
Davies, J. M., Maddocks, M., Chua, K. C., Demakakos, P., Sleeman, K. E., & Murtagh, F. E. (2021). Socioeconomic position and use of hospital-based care towards the end of life: a mediation analysis using the English Longitudinal Study of Ageing. The Lancet. Public Health, 6(3), e155-e163. https://doi.org/10.1016/S2468-2667%2820%2930292-9

© 2021 The Author(s). Published by Elsevier Ltd. This is an Open Access article under the CC BY 4.0 license Background: Many patients prefer to avoid hospital-based care towards the end of life, yet hospitalisation is common and more likely for peopl... Read More about Socioeconomic position and use of hospital-based care towards the end of life: a mediation analysis using the English Longitudinal Study of Ageing.

The challenges of caring for people dying from COVID-19: a multinational, observational study (CovPall) (2021)
Journal Article
Oluyase, A. O., Hocaoglu, M., Cripps, R. L., Maddocks, M., Walshe, C., Fraser, L. K., Preston, N., Dunleavy, L., Bradshaw, A., Murtagh, F. E., Bajwah, S., Sleeman, K. E., & Higginson, I. J. (in press). The challenges of caring for people dying from COVID-19: a multinational, observational study (CovPall). Journal of pain and symptom management, https://doi.org/10.1016/j.jpainsymman.2021.01.138

Context: Systematic data on the care of people dying with COVID-19 are scarce. Objectives: To understand the response of and challenges faced by palliative care services during the COVID-19 pandemic, and identify associated factors. Methods: We surve... Read More about The challenges of caring for people dying from COVID-19: a multinational, observational study (CovPall).

Implementing person-centred outcome measures in palliative care: An exploratory qualitative study using Normalisation Process Theory to understand processes and context (2020)
Journal Article
Bradshaw, A., Santarelli, M., Mulderrig, M., Khamis, A., Sartain, K., Boland, J. W., Bennett, M. I., Johnson, M., Pearson, M., & Murtagh, F. E. (in press). Implementing person-centred outcome measures in palliative care: An exploratory qualitative study using Normalisation Process Theory to understand processes and context. Palliative medicine, https://doi.org/10.1177/0269216320972049

© The Author(s) 2020. Background: Despite evidence demonstrating the utility of using Person-Centred Outcome Measures within palliative care settings, implementing them into routine practice is challenging. Most research has described barriers to, wi... Read More about Implementing person-centred outcome measures in palliative care: An exploratory qualitative study using Normalisation Process Theory to understand processes and context.

Nurse-led advance care planning with older people who have end-stage kidney disease: feasibility of a deferred entry randomised controlled trial incorporating an economic evaluation and mixed methods process evaluation (ACReDiT) (2020)
Journal Article
O’Halloran, P., Noble, H., Norwood, K., Maxwell, P., Murtagh, F., Shields, J., Mullan, R., Matthews, M., Cardwell, C., Clarke, M., Morton, R., Shah, K., Forbes, T., & Brazil, K. (2020). Nurse-led advance care planning with older people who have end-stage kidney disease: feasibility of a deferred entry randomised controlled trial incorporating an economic evaluation and mixed methods process evaluation (ACReDiT). BMC Nephrology, 21, Article 478. https://doi.org/10.1186/s12882-020-02129-5

© 2020, The Author(s).
Background: Advance Care Planning is recommended for people with end-stage kidney disease but evidence is limited. Robust clinical trials are needed to investigate the impact of advance care planning in this population. There... Read More about Nurse-led advance care planning with older people who have end-stage kidney disease: feasibility of a deferred entry randomised controlled trial incorporating an economic evaluation and mixed methods process evaluation (ACReDiT).

The effectiveness and cost-effectiveness of hospital-based specialist palliative care for adults with advanced illness and their caregivers (2020)
Journal Article
Bajwah, S., Oluyase, A. O., Yi, D., Gao, W., Evans, C. J., Grande, G., Todd, C., Costantini, M., Murtagh, F. E., & Higginson, I. J. (2020). The effectiveness and cost-effectiveness of hospital-based specialist palliative care for adults with advanced illness and their caregivers. The Cochrane database of systematic reviews, 2020(9), Article CD012780. https://doi.org/10.1002/14651858.CD012780.pub2

Background
Serious illness is often characterised by physical/psychological problems, family support needs, and high healthcare resource use. Hospital‐based specialist palliative care (HSPC) has developed to assist in better meeting the needs of pat... Read More about The effectiveness and cost-effectiveness of hospital-based specialist palliative care for adults with advanced illness and their caregivers.

The stability of care preferences following acute illness: a mixed methods prospective cohort study of frail older people (2020)
Journal Article
Etkind, S., Lovell, N., Bone, A., Guo, P., Nicholson, C., Murtagh, F. E., & Higginson, I. J. (2020). The stability of care preferences following acute illness: a mixed methods prospective cohort study of frail older people. BMC Geriatrics, 20(1), Article 370. https://doi.org/10.1186/s12877-020-01725-2

Background: Patient preferences are integral to person-centred care, but preference stability is poorly understood in older people, who may experience fluctuant illness trajectories with episodes of acute illness. We aimed to describe, and explore in... Read More about The stability of care preferences following acute illness: a mixed methods prospective cohort study of frail older people.

The Prepare for Kidney Care Study: prepare for renal dialysis versus responsive management in advanced chronic kidney disease (2020)
Journal Article
Murphy, E., Burns, A., Murtagh, F. E., Rooshenas, L., & Caskey, F. J. (2021). The Prepare for Kidney Care Study: prepare for renal dialysis versus responsive management in advanced chronic kidney disease. Nephrology Dialysis Transplantation, 36(6), 975-982. https://doi.org/10.1093/ndt/gfaa209

Shared decision making in advanced chronic kidney disease (CKD) requires unbiased information on survival and person-centred outcomes known to matter to patients: quality of life, symptom burden and support from family and healthcare professionals. T... Read More about The Prepare for Kidney Care Study: prepare for renal dialysis versus responsive management in advanced chronic kidney disease.

Implementation of a complex intervention to improve care for patients whose situations are clinically uncertain in hospital settings: A multi-method study using normalisation process theory (2020)
Journal Article
Johnson, H., Yorganci, E., Evans, C. J., Barclay, S., Murtagh, F. E., Yi, D., Gao, W., Sampson, E. L., Droney, J., Farquhar, M., & Koffman, J. (2020). Implementation of a complex intervention to improve care for patients whose situations are clinically uncertain in hospital settings: A multi-method study using normalisation process theory. PLoS ONE, 15(9), Article e0239181. https://doi.org/10.1371/journal.pone.0239181

PURPOSE: To examine the use of Normalisation Process Theory (NPT) to establish if, and in what ways, the AMBER care bundle can be successfully normalised into acute hospital practice, and to identify necessary modifications to optimise its implementa... Read More about Implementation of a complex intervention to improve care for patients whose situations are clinically uncertain in hospital settings: A multi-method study using normalisation process theory.

International variation in dialysis discontinuation in patients with advanced kidney disease (2020)
Journal Article
Jassal, S. V., Larkina, M., Jager, K. J., Murtagh, F. E., O’Hare, A. M., Hanafusa, N., Morgenstern, H., Port, F. K., McCullough, K., Pisoni, R., Tentori, F., Perlman, R., & Swartz, R. D. (2020). International variation in dialysis discontinuation in patients with advanced kidney disease. Canadian Medical Association Journal, 192(35), E995-E1002. https://doi.org/10.1503/cmaj.191631

BACKGROUND: Decisions about dialysis for advanced kidney disease are often strongly shaped by sociocultural and system-level factors rather than the priorities and values of individual patients. We examined international variation in the uptake of co... Read More about International variation in dialysis discontinuation in patients with advanced kidney disease.

Health of mothers of children with a life-limiting condition: a protocol for comparative cohort study using the Clinical Practice Research Datalink (2020)
Journal Article
Fraser, L. K., Murtagh, F. E., Sheldon, T., Gilbody, S., & Hewitt, C. (2020). Health of mothers of children with a life-limiting condition: a protocol for comparative cohort study using the Clinical Practice Research Datalink. BMJ open, 10(7), Article e034024. https://doi.org/10.1136/bmjopen-2019-034024

INTRODUCTION: There are now nearly 50 000 children with a life-limiting or life-threatening condition in the UK. These include conditions where there is no reasonable hope of cure and from which they will die, as well as conditions for which curative... Read More about Health of mothers of children with a life-limiting condition: a protocol for comparative cohort study using the Clinical Practice Research Datalink.

The development and cognitive testing of the positive outcomes HIV PROM: A brief novel patient-reported outcome measure for adults living with HIV (2020)
Journal Article
Bristowe, K., Murtagh, F. E., Clift, P., James, R., Josh, J., Platt, M., Whetham, J., Nixon, E., Post, F. A., McQuillan, K., Cheallaigh, C. N., Kall, M., Anderson, J., Sullivan, A. K., & Harding, R. (2020). The development and cognitive testing of the positive outcomes HIV PROM: A brief novel patient-reported outcome measure for adults living with HIV. Health and quality of life outcomes, 18(1), Article 214. https://doi.org/10.1186/s12955-020-01462-5

© 2020 The Author(s). Background: People living with HIV experience burdensome multidimensional symptoms and concerns requiring person-centred care. Routine use of patient reported outcome measures can improve outcomes. There is no brief patient repo... Read More about The development and cognitive testing of the positive outcomes HIV PROM: A brief novel patient-reported outcome measure for adults living with HIV.

Development of a core outcome set to use in the research and assessment of malignant bowel obstruction: protocol for the RAMBO study (2020)
Journal Article
Baddeley, E., Bravington, A., Johnson, M., Currow, D., Murtagh, F. E., Boland, E., Obita, G., Nelson, A., Seddon, K., Oliver, A., Noble, S., & Boland, J. (2020). Development of a core outcome set to use in the research and assessment of malignant bowel obstruction: protocol for the RAMBO study. BMJ open, 10(6), Article 039154. https://doi.org/10.1136/bmjopen-2020-039154

INTRODUCTION: Studies regarding the management of malignant bowel obstruction (MBO) report conflicting findings. This is partly due to different outcome measures being used to evaluate severity of MBO and the response to treatments. Furthermore, curr... Read More about Development of a core outcome set to use in the research and assessment of malignant bowel obstruction: protocol for the RAMBO study.