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Outputs (102)

Promoting independence in dementia: protocol for a feasibility trial of the PRIDE intervention for living well with dementia (2018)
Journal Article
Csipke, E., Yates, L., Cook, E. M., Leung, P., Charlesworth, G., Walton, H., Birt, L., & Orrell, M. (2018). Promoting independence in dementia: protocol for a feasibility trial of the PRIDE intervention for living well with dementia. International Journal of Clinical Trials, 5(4), 177-185. https://doi.org/10.18203/2349-3259.ijct20184399

INTRODUCTION In the UK over 800,000 older people have dementia, which can lead to social exclusion, loss of identity and independence due to deterioration in cognition, activities of daily living, the double stigma of age and dementia, and the reduce... Read More about Promoting independence in dementia: protocol for a feasibility trial of the PRIDE intervention for living well with dementia.

A qualitative study of the shared experience of humour between people living with dementia and their partners (2018)
Journal Article
Hickman, H., Clarke, C., & Wolverson, E. (in press). A qualitative study of the shared experience of humour between people living with dementia and their partners. Dementia, https://doi.org/10.1177/1471301218805895

Humour is a complex social and emotional experience which could constitute a positive resource for people endeavouring to live well with dementia. However, little is currently known about the shared use and value of humour in dyads where one person h... Read More about A qualitative study of the shared experience of humour between people living with dementia and their partners.

Implementing e-learning and e-tools for care home staff supporting residents with dementia and challenging behaviour: A process evaluation of the ResCare study using normalisation process theory (2018)
Journal Article
Poland, F., Keenan, J., Manthorpe, J., Hart, C., & Moniz-Cook, E. (2020). Implementing e-learning and e-tools for care home staff supporting residents with dementia and challenging behaviour: A process evaluation of the ResCare study using normalisation process theory. Dementia, 19(5), 1604-1620. https://doi.org/10.1177/1471301218803195

© The Author(s) 2018. Dementia-related symptoms, sometimes termed challenging or distressing behaviour, can give rise to significant distress in care homes. Individualised formulation-led interventions show promise in reducing these behaviours. ResCa... Read More about Implementing e-learning and e-tools for care home staff supporting residents with dementia and challenging behaviour: A process evaluation of the ResCare study using normalisation process theory.

Towards capturing meaningful outcomes for people with dementia in psychosocial intervention research: A pan-European consultation (2018)
Journal Article
Øksnebjerg, L., Diaz-Ponce, A., Gove, D., Moniz-Cook, E., Mountain, G., Chattat, R., & Woods, B. (2018). Towards capturing meaningful outcomes for people with dementia in psychosocial intervention research: A pan-European consultation. Health Expectations, 21(6), 1056-1065. https://doi.org/10.1111/hex.12799

Background: People with dementia are often marginalized and excluded from influence, also in relation to dementia research. There is, however, a growing requirement for inclusion through Patient and Public Involvement (PPI), but there is still limite... Read More about Towards capturing meaningful outcomes for people with dementia in psychosocial intervention research: A pan-European consultation.

Practitioners’ understanding of barriers to accessing specialist support by family carers of people with dementia in distress (2018)
Journal Article
Manthorpe, J., Hart, C., Watts, S., Goudie, F., Charlesworth, G., Fossey, J., & Moniz-Cook, E. (2018). Practitioners’ understanding of barriers to accessing specialist support by family carers of people with dementia in distress. International Journal of Care and Caring, 2(1), 109-123. https://doi.org/10.1332/239788218X15187915193354

Distressing symptoms in dementia are hard to manage for many family carers. This article explores practitioners’ perceptions of the barriers to accessing skilled behaviour management support encountered by carers. A survey of cases referred to the En... Read More about Practitioners’ understanding of barriers to accessing specialist support by family carers of people with dementia in distress.

Impact of person-centred care training and person-centred activities on quality of life, agitation, and antipsychotic use in people with dementia living in nursing homes: A cluster-randomised controlled trial (2018)
Journal Article
Ballard, C., Corbett, A., Orrell, M., Williams, G., Moniz-Cook, E., Romeo, R., Woods, B., Garrod, L., Testad, I., Woodward-Carlton, B., Wenborn, J., Knapp, M., & Fossey, J. (2018). Impact of person-centred care training and person-centred activities on quality of life, agitation, and antipsychotic use in people with dementia living in nursing homes: A cluster-randomised controlled trial. PLoS Medicine, 15(2), e1002500. https://doi.org/10.1371/journal.pmed.1002500

© 2018 Ballard et al. Background: Agitation is a common, challenging symptom affecting large numbers of people with dementia and impacting on quality of life (QoL). There is an urgent need for evidence-based, cost-effective psychosocial interventions... Read More about Impact of person-centred care training and person-centred activities on quality of life, agitation, and antipsychotic use in people with dementia living in nursing homes: A cluster-randomised controlled trial.

High feeding dependence prevalence in residents living in Italian nursing homes requires new policies: findings from a regionally based cross-sectional study (2018)
Journal Article
Palese, A., Grassetti, L., Bandera, D., Zuttion, R., Ferrario, B., Ponta, S., Hayter, M., & Watson, R. (2018). High feeding dependence prevalence in residents living in Italian nursing homes requires new policies: findings from a regionally based cross-sectional study. Health Policy, 122(3), 301-308. https://doi.org/10.1016/j.healthpol.2018.01.011

Objectives: An increased amount of functional dependence has been reported among residents living in nursing homes. Among others, feeding dependence is one of the most complex needs to satisfy: behind the attempt to personalise meals with individual... Read More about High feeding dependence prevalence in residents living in Italian nursing homes requires new policies: findings from a regionally based cross-sectional study.

Psychosocial interventions for people with dementia: a synthesis of systematic reviews (2018)
Journal Article
McDermott, O., Charlesworth, G., Hogervorst, E., Stoner, C., Moniz-Cook, E., Spector, A., Csipke, E., & Orrell, M. (2019). Psychosocial interventions for people with dementia: a synthesis of systematic reviews. Aging and Mental Health, 23(4), 393-403. https://doi.org/10.1080/13607863.2017.1423031

Objectives: Over the last 10 years there has been a multitude of studies of psychosocial interventions for people with dementia. However, clinical services face a dilemma about which intervention should be introduced into clinical practice because of... Read More about Psychosocial interventions for people with dementia: a synthesis of systematic reviews.

“I never thought I could do that…”: Findings from an Alexander Technique pilot group for older people with a fear of falling. (2017)
Journal Article
Glover, L., Kinsey, D., Clappison, D. J., Gardiner, E., & Jomeen, J. (2018). “I never thought I could do that…”: Findings from an Alexander Technique pilot group for older people with a fear of falling. European Journal of Integrative Medicine, 17, 79-85. https://doi.org/10.1016/j.eujim.2017.11.008

© 2017 Elsevier GmbH Introduction Fear of falling is a major problem facing the health care system. No clear evidence exists as to the most effective management approach although a need for both psychological and physical intervention is recognised.... Read More about “I never thought I could do that…”: Findings from an Alexander Technique pilot group for older people with a fear of falling..

Exploring the evidence base for how people with dementia and their informal carers manage their medication in the community : a mixed studies review (2017)
Journal Article
Hilton, A., Aston, L., Maidment, I., Moutela, T., & Shaw, R. (2017). Exploring the evidence base for how people with dementia and their informal carers manage their medication in the community : a mixed studies review. BMC Geriatrics, 17(1), Article ARTN 242. https://doi.org/10.1186/s12877-017-0638-6

Background: Little is known about the general medicines management issues for people with dementia living in the community. This review has three aims: firstly to explore and evaluate the international literature on how people with dementia manage me... Read More about Exploring the evidence base for how people with dementia and their informal carers manage their medication in the community : a mixed studies review.

The Edinburgh feeding evaluation in dementia scale: a longitudinal study in nursing home residents (2017)
Journal Article
Watson, R., Bagnasco, A., Catania, G., Aleo, G., Zanini, M., & Sasso, L. (2017). The Edinburgh feeding evaluation in dementia scale: a longitudinal study in nursing home residents. Dementia and Geriatric Cognitive Disorders, 44(3-4), 196-202. https://doi.org/10.1159/000478519

Aims/Background: The Edinburgh Feeding Evaluation in Dementia (EdFED) scale has been shown to have good psychometric properties using a range of methods including Mokken scaling. We aimed to study the Italian version of the EdFED using Mokken scaling... Read More about The Edinburgh feeding evaluation in dementia scale: a longitudinal study in nursing home residents.

Impact of WHELD intervention on neuropsychiatric symptoms, antipsychotic use and quality of life in people with dementia living in nursing homes: a cluster- randomized trial (2017)
Presentation / Conference Contribution
Crawford, F., Ballard, C., Fossey, J., Corbett, A., Orrell, M., Romeo, R., Moniz-Cook, E., Woods, B., & Whitaker, R. Impact of WHELD intervention on neuropsychiatric symptoms, antipsychotic use and quality of life in people with dementia living in nursing homes: a cluster- randomized trial

Mental wellbeing in people with dementia following Cognitive Stimulation Therapy: Innovative practice (2017)
Journal Article
Allward, C., Dunn, R., Forshaw, G., Rewston, C., & Wass, N. (2020). Mental wellbeing in people with dementia following Cognitive Stimulation Therapy: Innovative practice. Dementia, 19(2), 496-504. https://doi.org/10.1177/1471301217722443

The benefits of Cognitive Stimulation Therapy in supporting cognitive functioning for people with dementia are well recognised. It has been proposed that Cognitive Stimulation Therapy may offer additional benefits in terms of a person’s sense of gene... Read More about Mental wellbeing in people with dementia following Cognitive Stimulation Therapy: Innovative practice.

Core outcome measures for interventions to prevent or slow the progress of dementia for people living with mild to moderate dementia: Systematic review and consensus recommendations (2017)
Journal Article
Webster, L., Groskreutz, D., Grinbergs-Saull, A., Howard, R., O'Brien, J. T., Mountain, G., Banerjee, S., Woods, B., Perneczky, R., Lafortune, L., Roberts, C., McCleery, J., Pickett, J., Bunn, F., Challis, D., Charlesworth, G., Featherstone, K., Fox, C., Goodman, C., Jones, R., …Livingston, G. (2017). Core outcome measures for interventions to prevent or slow the progress of dementia for people living with mild to moderate dementia: Systematic review and consensus recommendations. PLoS ONE, 12(6), e0179521. https://doi.org/10.1371/journal.pone.0179521

Background
There are no disease-modifying treatments for dementia. There is also no consensus on disease modifying outcomes. We aimed to produce the first evidence-based consensus on core outcome measures for trials of disease modification in mild-to... Read More about Core outcome measures for interventions to prevent or slow the progress of dementia for people living with mild to moderate dementia: Systematic review and consensus recommendations.

Positive psychology outcome measures for family caregivers of people living with dementia: a systematic review (2017)
Journal Article
Stansfeld, J., Stoner, C. R., Wenborn, J., Vernooij-Dassen, M., Moniz-Cook, E., & Orrell, M. (2017). Positive psychology outcome measures for family caregivers of people living with dementia: a systematic review. International Psychogeriatrics, 29(8), 1281-1296. https://doi.org/10.1017/S1041610217000655

Background: Family caregivers of people living with dementia can have both positive and negative experiences of caregiving. Despite this, existing outcome measures predominately focus on negative aspects of caregiving such as burden and depression. T... Read More about Positive psychology outcome measures for family caregivers of people living with dementia: a systematic review.

Alzheimer Europe's position on involving people with dementia in research through PPI (patient and public involvement) (2017)
Journal Article
Gove, D., Diaz-Ponce, A., Georges, J., Moniz-Cook, E., Mountain, G., Chattat, R., & Øksnebjerg, L. (2018). Alzheimer Europe's position on involving people with dementia in research through PPI (patient and public involvement). Aging and Mental Health, 22(6), 723-729. https://doi.org/10.1080/13607863.2017.1317334

This paper reflects Alzheimer Europe's position on PPI (patient and public involvement) in the context of dementia research and highlights some of the challenges and potential risks and benefits associated with such meaningful involvement. The paper... Read More about Alzheimer Europe's position on involving people with dementia in research through PPI (patient and public involvement).

The experience of epilepsy in later life : a qualitative exploration of illness representations (2017)
Journal Article
Yennadiou, H., & Wolverson, E. (2017). The experience of epilepsy in later life : a qualitative exploration of illness representations. Epilepsy and Behavior, 70(A), 87-93. https://doi.org/10.1016/j.yebeh.2017.01.033

The objective of this study is to explore how older people living with epilepsy appraise their condition through their lived-experience. The common-sense model of illness representations (CSMIR) provides a framework to explain how individuals make se... Read More about The experience of epilepsy in later life : a qualitative exploration of illness representations.

Identifying longitudinal sustainable hierarchies in activities of daily living (2017)
Journal Article
Watson, R., Palese, A., Zuttion, R., Ferrario, B., Ponta, S., & Hayter, M. (2017). Identifying longitudinal sustainable hierarchies in activities of daily living. Archives of Gerontology and Geriatrics, 71, 122-128. https://doi.org/10.1016/j.archger.2017.04.003

© 2017 Elsevier B.V. Activities of daily living serve as an indicator of progression in disability and rehabilitation. It is know that some of the measurement scales used show hierarchical properties indicating that activities of daily living are los... Read More about Identifying longitudinal sustainable hierarchies in activities of daily living.