Outputs (6)

Meaningful patient and public engagement in dissemination—embedding co-production in dementia research (2024)
Journal Article
de Wolf-Linder, S., Kramer, I., Hersperger, M., Schubert, M., Bachi, S., Stolz, M., Wolverson, E., & Ramsenthaler, C. (2024). Meaningful patient and public engagement in dissemination—embedding co-production in dementia research. Frontiers in Dementia, 3, Article 1426019. https://doi.org/10.3389/frdem.2024.1426019

Background: Patient and Public Involvement and Engagement (PPIE) is still underutilised in both dementia research and corresponding dissemination activities.

Aim: To describe the methods, format, and lessons learned in co-creating and co-producing... Read More about Meaningful patient and public engagement in dissemination—embedding co-production in dementia research.

Improving caring quality for people with dementia in nursing homes using IPOS-Dem: A stepped-wedge cluster randomized controlled trial protocol (2021)
Journal Article
Spichiger, F., Koppitz, A. L., De Wolf-Linder, S., Murtagh, F. E., Volken, T., & Larkin, P. (in press). Improving caring quality for people with dementia in nursing homes using IPOS-Dem: A stepped-wedge cluster randomized controlled trial protocol. Journal of advanced nursing, https://doi.org/10.1111/jan.14953

Aims: We aim to evaluate the effectiveness of the Integrated Palliative Care Outcome Scale for people with dementia-based case studies to improve the caring quality for people with dementia in nursing homes by frontline staff and family members. Back... Read More about Improving caring quality for people with dementia in nursing homes using IPOS-Dem: A stepped-wedge cluster randomized controlled trial protocol.

Which outcome domains are important in palliative care and when? An international expert consensus workshop, using the nominal group technique (2019)
Journal Article
de Wolf-Linder, S., Dawkins, M., Wicks, F., Pask, S., Eagar, K., Evans, C. J., Higginson, I. J., & Murtagh, F. E. (in press). Which outcome domains are important in palliative care and when? An international expert consensus workshop, using the nominal group technique. Palliative medicine, 026921631985415. https://doi.org/10.1177/0269216319854154

© The Author(s) 2019. Background: When capturing patient-level outcomes in palliative care, it is essential to identify which outcome domains are most important and focus efforts to capture these, in order to improve quality of care and minimise coll... Read More about Which outcome domains are important in palliative care and when? An international expert consensus workshop, using the nominal group technique.

Perspectives of patients, family caregivers and health professionals on the use of outcome measures in palliative care and lessons for implementation: a multi-method qualitative study (2018)
Journal Article
Pinto, C., Bristowe, K., Witt, J., Davies, J. M., de Wolf-Linder, S., Dawkins, M., Guo, P., Higginson, I. J., Daveson, B., & Murtagh, F. E. (2018). Perspectives of patients, family caregivers and health professionals on the use of outcome measures in palliative care and lessons for implementation: a multi-method qualitative study. Annals of palliative medicine, 7(s3), S137-S150. https://doi.org/10.21037/apm.2018.09.02

Background: Routine use of outcome measures in palliative care is recommended to demonstrate and improve quality of care. The use of outcome measures is relatively recent in UK specialist palliative care services and understanding their use in practi... Read More about Perspectives of patients, family caregivers and health professionals on the use of outcome measures in palliative care and lessons for implementation: a multi-method qualitative study.

Taking patient and public involvement online: Qualitative evaluation of an online forum for palliative care and rehabilitation research (2018)
Journal Article
Brighton, L. J., Pask, S., Benalia, H., Bailey, S., Sumerfield, M., Witt, J., de Wolf-Linder, S., Etkind, S. N., Murtagh, F. E., Koffman, J., & Evans, C. J. (2018). Taking patient and public involvement online: Qualitative evaluation of an online forum for palliative care and rehabilitation research. Research Involvement and Engagement, 4(1), Article 14. https://doi.org/10.1186/s40900-018-0097-z

Background
Patient and public involvement (PPI) in research is increasingly recognised as important. Most PPI activities take place face-to-face, yet this can be difficult for people with ill health or caring responsibilities, and may exclude people... Read More about Taking patient and public involvement online: Qualitative evaluation of an online forum for palliative care and rehabilitation research.

Social and clinical determinants of preferences and their achievement at the end of life: Prospective cohort study of older adults receiving palliative care in three countries (2017)
Journal Article
Higginson, I. J., Bennett, E., Daveson, B. A., Cooper, F., Morrison, R. S., Yi, D., de Wolf-Linder, S., Meier, D., Dzingina, M., Smith, M., Ellis-Smith, C., Ryan, K., Evans, C., McQuillan, R., Ferguson, T., Normand, C., Henson, L., Johnston, B. M., Murtagh, F. E., Kaler, P., …Wei, G. (2017). Social and clinical determinants of preferences and their achievement at the end of life: Prospective cohort study of older adults receiving palliative care in three countries. BMC Geriatrics, 17(1), https://doi.org/10.1186/s12877-017-0648-4

© 2017 The Author(s). Background: Achieving choice is proposed as a quality marker. But little is known about what influences preferences especially among older adults. We aimed to determine and compare, across three countries, factors associated wit... Read More about Social and clinical determinants of preferences and their achievement at the end of life: Prospective cohort study of older adults receiving palliative care in three countries.