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Outputs (70)

Inclusion, characteristics and outcomes of people requiring palliative care in studies of non-pharmacological interventions for delirium: A systematic review (2019)
Journal Article
Hosie, A., Siddiqi, N., Featherstone, I., Johnson, M., Lawlor, P. G., Bush, S. H., Amgarth-Duff, I., Edwards, L., Cheah, S. L., Phillips, J., & Agar, M. (2019). Inclusion, characteristics and outcomes of people requiring palliative care in studies of non-pharmacological interventions for delirium: A systematic review. Palliative medicine, 33(8), 878-899. https://doi.org/10.1177/0269216319853487

© The Author(s) 2019. Background: Delirium is common, distressing, serious and under-researched in specialist palliative care settings. Objectives: To examine whether people requiring palliative care were included in non-pharmacological delirium inte... Read More about Inclusion, characteristics and outcomes of people requiring palliative care in studies of non-pharmacological interventions for delirium: A systematic review.

Clustering of 27,525,663 death records from the United States based on health conditions associated with death: an example of big health data exploration (2019)
Journal Article
Janssen, D. J., Rechberger, S., Wouters, E. F., Schols, J. M., Johnson, M. J., Currow, D. C., Curtis, J. R., & Spruit, M. A. (2019). Clustering of 27,525,663 death records from the United States based on health conditions associated with death: an example of big health data exploration. Journal of Clinical Medicine, 8(7), Article 922. https://doi.org/10.3390/jcm8070922

Background: Insight into health conditions associated with death can inform healthcare policy. We aimed to cluster 27,525,663 deceased people based on the health conditions associated with death to study the associations between the health condition... Read More about Clustering of 27,525,663 death records from the United States based on health conditions associated with death: an example of big health data exploration.

A brief, patient- and proxy-reported outcome measure in advanced illness: Validity, reliability and responsiveness of the Integrated Palliative care Outcome Scale (IPOS) (2019)
Journal Article
Murtagh, F. E., Ramsenthaler, C., Firth, A., Groeneveld, E. I., Lovell, N., Simon, S. T., Denzel, J., Guo, P., Bernhardt, F., Schildmann, E., van Oorschot, B., Hodiamont, F., Streitwieser, S., Higginson, I. J., & Bausewein, C. (in press). A brief, patient- and proxy-reported outcome measure in advanced illness: Validity, reliability and responsiveness of the Integrated Palliative care Outcome Scale (IPOS). Palliative medicine, 026921631985426. https://doi.org/10.1177/0269216319854264

Background:
Few measures capture the complex symptoms and concerns of those receiving palliative care.

Aim:
To validate the Integrated Palliative care Outcome Scale, a measure underpinned by extensive psychometric development, by evaluating its vali... Read More about A brief, patient- and proxy-reported outcome measure in advanced illness: Validity, reliability and responsiveness of the Integrated Palliative care Outcome Scale (IPOS).

Which outcome domains are important in palliative care and when? An international expert consensus workshop, using the nominal group technique (2019)
Journal Article
de Wolf-Linder, S., Dawkins, M., Wicks, F., Pask, S., Eagar, K., Evans, C. J., Higginson, I. J., & Murtagh, F. E. (in press). Which outcome domains are important in palliative care and when? An international expert consensus workshop, using the nominal group technique. Palliative medicine, 026921631985415. https://doi.org/10.1177/0269216319854154

© The Author(s) 2019. Background: When capturing patient-level outcomes in palliative care, it is essential to identify which outcome domains are most important and focus efforts to capture these, in order to improve quality of care and minimise coll... Read More about Which outcome domains are important in palliative care and when? An international expert consensus workshop, using the nominal group technique.

Towards person‐centred care for people living with HIV: what core outcomes matter, and how might we assess them? A cross‐national multi‐centre qualitative study with key stakeholders (2019)
Journal Article
Bristowe, K., Clift, P., James, R., Josh, J., Platt, M., Whetham, J., Nixon, E., Post, F. A., McQuillan, K., Ní Cheallaigh, C., Murtagh, F. E., Anderson, J., Sullivan, A. K., & Harding, R. (2019). Towards person‐centred care for people living with HIV: what core outcomes matter, and how might we assess them? A cross‐national multi‐centre qualitative study with key stakeholders. HIV Medicine, 20(8), 542-554. https://doi.org/10.1111/hiv.12758

Objectives
People living with HIV (PLWH) have multidimensional concerns requiring person‐centred care. Routine use of patient‐reported outcome measures (PROMs) improves outcomes. No brief PROM currently reflects the breadth of concerns for PLWH. This... Read More about Towards person‐centred care for people living with HIV: what core outcomes matter, and how might we assess them? A cross‐national multi‐centre qualitative study with key stakeholders.

Timely recognition of palliative care needs of patients with advanced chronic heart failure: a pilot study of a Dutch translation of the Needs Assessment Tool: Progressive Disease – Heart Failure (NAT:PD-HF) (2019)
Journal Article
Janssen, D. J., Boyne, J., Currow, D. C., Schols, J. M., Johnson, M. J., & La Rocca, H. P. (2019). Timely recognition of palliative care needs of patients with advanced chronic heart failure: a pilot study of a Dutch translation of the Needs Assessment Tool: Progressive Disease – Heart Failure (NAT:PD-HF). European journal of cardiovascular nursing : journal of the Working Group on Cardiovascular Nursing of the European Society of Cardiology, 18(5), 375-388. https://doi.org/10.1177/1474515119831510

© The European Society of Cardiology 2019. Background: The Needs Assessment Tool: Progressive Disease – Heart Failure (NAT:PD-HF) was developed to identify and triage palliative care needs in patients with chronic heart failure. A Dutch version is cu... Read More about Timely recognition of palliative care needs of patients with advanced chronic heart failure: a pilot study of a Dutch translation of the Needs Assessment Tool: Progressive Disease – Heart Failure (NAT:PD-HF).

Health-related quality of life and well-being in people over 75 years of age with end-stage kidney disease managed with dialysis or comprehensive conservative care: A cross-sectional study in the UK and Australia (2019)
Journal Article
Shah, K. K., Murtagh, F. E., McGeechan, K., Crail, S., Burns, A., Tran, A. D., & Morton, R. L. (2019). Health-related quality of life and well-being in people over 75 years of age with end-stage kidney disease managed with dialysis or comprehensive conservative care: A cross-sectional study in the UK and Australia. BMJ open, 9(5), Article e027776. https://doi.org/10.1136/bmjopen-2018-027776

© Author(s) (or their employer(s)) 2018. Re-use permitted under CC BY-NC. No commercial re-use. See rights and permissions. Published by BMJ. Objective To measure health-related quality of life (HRQoL) and well-being in older people with end-stage ki... Read More about Health-related quality of life and well-being in people over 75 years of age with end-stage kidney disease managed with dialysis or comprehensive conservative care: A cross-sectional study in the UK and Australia.

Battery operated fan and chronic breathlessness: Does it help? (2019)
Journal Article
Barnes-Harris, M., Swan, F., Allgar, V., Booth, S., Currow, D., Hart, S., Phillips, J., & Johnson, M. J. (in press). Battery operated fan and chronic breathlessness: Does it help?. BMJ supportive & palliative care, https://doi.org/10.1136/bmjspcare-2018-001749

Objectives: To examine whether use of a hand-held fan (â € fan') improves breathlessness and increases physical activity. Methods: A secondary exploratory analysis using pooled data from the fan arms of two feasibility randomised controlled trials in... Read More about Battery operated fan and chronic breathlessness: Does it help?.