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Towards person‐centred care for people living with HIV: what core outcomes matter, and how might we assess them? A cross‐national multi‐centre qualitative study with key stakeholders

Bristowe, K.; Clift, P.; James, R.; Josh, J.; Platt, M.; Whetham, J.; Nixon, E.; Post, F. A.; McQuillan, K.; Ní Cheallaigh, C.; Murtagh, F. E.M.; Anderson, J.; Sullivan, A. K.; Harding, R.

Authors

K. Bristowe

P. Clift

R. James

J. Josh

M. Platt

J. Whetham

E. Nixon

F. A. Post

K. McQuillan

C. Ní Cheallaigh

J. Anderson

A. K. Sullivan

R. Harding



Abstract

Objectives
People living with HIV (PLWH) have multidimensional concerns requiring person‐centred care. Routine use of patient‐reported outcome measures (PROMs) improves outcomes. No brief PROM currently reflects the breadth of concerns for PLWH. This study sought to identify priority outcomes for PLWH, model current practice, explore views on introducing PROMs into routine care, and devise a model for person‐centred care incorporating the PROM.

Methods
A cross‐national multi‐centre study (London, Brighton and Dublin) was carried out. Semi‐structured qualitative interviews with adult PLWH, HIV health care professionals and HIV commissioners (responsible for planning and commissioning services) were performed. Interviews were analysed using thematic and framework analysis.

Results
PLWH (n = 28), professionals (n = 21) and commissioners (n = 8) described concerns related to living with HIV across six domains: physical (e.g. pain and gastrointestinal symptoms), cognitive (e.g. memory and sleep), psychological (e.g. anxiety and depression), social (e.g. isolation and intimacy), welfare (e.g. finances and fears regarding change of immigration status), and information (e.g. long‐term outcomes) needs. Themes were highly inter‐related, impacting across domains of need (e.g. physical and cognitive problems impacting on psychological and social wellbeing). Perceived benefits of using PROMs in routine HIV care included improved person‐centredness, patient empowerment, fewer missed concerns, increased engagement with services, and informed planning of services. Potential challenges included heterogeneity of PLWH, literacy, and utility for those who struggle to engage with care.

Conclusions
This study presents a novel model of person‐centred care incorporating an HIV‐specific PROM. The model reflects priorities of key stakeholders. Explicit use of PROMs in routine HIV care could afford benefits for PLWH, clinical teams and commissioners.

Citation

Bristowe, K., Clift, P., James, R., Josh, J., Platt, M., Whetham, J., …Harding, R. (2019). Towards person‐centred care for people living with HIV: what core outcomes matter, and how might we assess them? A cross‐national multi‐centre qualitative study with key stakeholders. HIV Medicine, 20(8), 542-554. https://doi.org/10.1111/hiv.12758

Journal Article Type Article
Acceptance Date Apr 18, 2019
Online Publication Date Jun 4, 2019
Publication Date 2019-09
Deposit Date Jun 6, 2019
Publicly Available Date Jun 5, 2020
Journal HIV Medicine
Print ISSN 1464-2662
Electronic ISSN 1468-1293
Publisher Wiley
Peer Reviewed Peer Reviewed
Volume 20
Issue 8
Pages 542-554
DOI https://doi.org/10.1111/hiv.12758
Keywords Health Policy; Pharmacology (medical); Infectious Diseases
Public URL https://hull-repository.worktribe.com/output/1948380
Publisher URL https://onlinelibrary.wiley.com/doi/full/10.1111/hiv.12758

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