Outputs (52)

Involving Patients and the Public in Cancer Associated Thrombosis Research: a strategy for success. (2024)
Journal Article
Edwards, M., Seddon, K., Baddeley, E., Ording, A. G., Pearson, M., Mahe, I., Mooijaart, S., Klok, F. A., Noble, S. I., & on behalf of the SERENITY consortium. (2025). Involving Patients and the Public in Cancer Associated Thrombosis Research: a strategy for success. Thrombosis journal, 18, Article 100196. https://doi.org/10.1016/j.tru.2024.100196

The role of public involvement (PI) in biomedical research has never been greater, with accumulating evidence demonstrating its ability to improve the quality of research and the likelihood of translating findings into clinical practice. As the deman... Read More about Involving Patients and the Public in Cancer Associated Thrombosis Research: a strategy for success..

Community out-of-hours palliative care – ‘It’s a patchwork of services’: A qualitative study exploring care provision (2024)
Journal Article
Firth, A. M., Goodrich, J., Gaczkowska, I., Harding, R., Murtagh, F. E., & Evans, C. J. (in press). Community out-of-hours palliative care – ‘It’s a patchwork of services’: A qualitative study exploring care provision. Palliative medicine, https://doi.org/10.1177/02692163241302671

Background: People in receipt of community palliative care usually receive care from a range of services and require access to care 24/7. However, care outside of normal working hours varies, with little understanding of which models of care are opti... Read More about Community out-of-hours palliative care – ‘It’s a patchwork of services’: A qualitative study exploring care provision.

Empowering informal caregivers and nurses to take a person-centred view: adaptation and clinical utility of the Integrated Palliative Outcome Scale (IPOS-Dem) for use in acute and community care settings (2024)
Journal Article
de Wolf-Linder, S., Kramer, I., Reisinger, M., Murtagh, F. E., Schubert, M., & Ramsenthaler, C. (2024). Empowering informal caregivers and nurses to take a person-centred view: adaptation and clinical utility of the Integrated Palliative Outcome Scale (IPOS-Dem) for use in acute and community care settings. BMC Geriatrics, 24(1), Article 1030. https://doi.org/10.1186/s12877-024-05608-8

Background: Dementia is a progressive and terminal illness. Symptoms are present for people with dementia across all stages, leading to poor quality of life and considerable carer burden. In acute and community care services, no holistic, person-cent... Read More about Empowering informal caregivers and nurses to take a person-centred view: adaptation and clinical utility of the Integrated Palliative Outcome Scale (IPOS-Dem) for use in acute and community care settings.

Barriers and facilitators for cardiopulmonary resuscitation discussions with people with heart failure (2024)
Journal Article
Barnes-Harris, M. M., Datla, S., Abel, A., Clark, A. L., & Johnson, M. J. (2024). Barriers and facilitators for cardiopulmonary resuscitation discussions with people with heart failure. PLoS ONE, 19(12), Article e0314631. https://doi.org/10.1371/journal.pone.0314631

Background Care planning with people with advanced heart failure enables appropriate care, and prevents futile interventions, such as cardio-pulmonary resuscitation (CPR). Aim To explore what motivates clinicians to conduct, and people with heart fai... Read More about Barriers and facilitators for cardiopulmonary resuscitation discussions with people with heart failure.

Exploring COPD patients’ and carers’ experiences, understandings and expectations of exacerbations: an interview study (2024)
Journal Article
Hutchinson, A., Russell, R., Cummings, H., Usmani, O., MacFadyen, S., Cohen, J., Morris, T., Muellerova, H., Xu, Y., Hellens, G., Roy, K., & Crooks, M. G. (2025). Exploring COPD patients’ and carers’ experiences, understandings and expectations of exacerbations: an interview study. BJGP Open, https://doi.org/10.3399/BJGPO.2024.0026

Background: Chronic Obstructive Pulmonary Disease (COPD) exacerbations are clinically significant events that affect millions globally.
Aim: To explore patients’ and carers’ experiences, understandings and responses to exacerbations.
Design and... Read More about Exploring COPD patients’ and carers’ experiences, understandings and expectations of exacerbations: an interview study.

End of life care in paediatric settings: UK national survey (2024)
Journal Article
Bedendo, A., Papworth, A., Beresford, B., Phillips, B., Vasudevan, C., Walker, G. L., Weatherly, H., Feltbower, R., Hinde, S., Hewitt, C. E., Murtagh, F., Noyes, J., Hackett, J., Hain, R., Oddie, S., Subramanian, G., Haynes, A., & Fraser, L. (online). End of life care in paediatric settings: UK national survey. BMJ Supportive & Palliative Care, Article spcare-2023-004673. https://doi.org/10.1136/spcare-2023-004673

Objectives To describe end of life care in settings where, in the UK, most children die; to explore commonalities and differences within and between settings; and to test whether there are distinct, alternative models of end of life care. Methods An... Read More about End of life care in paediatric settings: UK national survey.

Communicating treatment options to older patients with advanced kidney disease: a conversation analysis study (2024)
Journal Article
Selman, L. E., Shaw, C. B., Sowden, R., Murtagh, F. E., Tulsky, J. A., Parry, R., Caskey, F. J., & Barnes, R. K. (2024). Communicating treatment options to older patients with advanced kidney disease: a conversation analysis study. BMC Nephrology, 25(1), Article 417. https://doi.org/10.1186/s12882-024-03855-w

Background: Choosing to have dialysis or conservative kidney management is often challenging for older people with advanced kidney disease. While we know that clinical communication has a major impact on patients’ treatment decision-making, little is... Read More about Communicating treatment options to older patients with advanced kidney disease: a conversation analysis study.

Midwifery-led antenatal pelvic floor muscle exercise intervention to reduce postnatal urinary incontinence: APPEAL research programme including a feasibility and pilot cluster RCT (2024)
Journal Article
Macarthur, C., Bick, D., Salmon, V., Jones, E., Hay-Smith, J., Bishop, J., Gkini, E., Hemming, K., Webb, S., Pearson, M., Coleman, T., Terry, R., Edwards, L., Frawley, H., Oborn, E., & Dean, S. (2024). Midwifery-led antenatal pelvic floor muscle exercise intervention to reduce postnatal urinary incontinence: APPEAL research programme including a feasibility and pilot cluster RCT. Programme Grants for Applied Research, 12(9), https://doi.org/10.3310/TJDH7946

Background: Antenatal pelvic floor muscle exercises are effective in reducing postnatal urinary incontinence. Midwives, however, lack training and confidence to promote these exercises and often do not provide information or support to women to do th... Read More about Midwifery-led antenatal pelvic floor muscle exercise intervention to reduce postnatal urinary incontinence: APPEAL research programme including a feasibility and pilot cluster RCT.

Understanding European patterns of deprescribing antithrombotic medication during end-of-life care in patients with cancer (2024)
Journal Article
Martens, E. S., Becker, D., Abele, C., Abbel, D., Achterberg, W. P., Bax, J. J., Bertoletti, L., Edwards, M. E., Font, C., Gava, A., Goedegebuur, J., Højen, A. A., Huisman, M. V., Kruip, M. J., Mahé, I., Mooijaart, S. P., Pearson, M., Seddon, K., Szmit, S., Noble, S. I., …Konstantinides, S. V. (2025). Understanding European patterns of deprescribing antithrombotic medication during end-of-life care in patients with cancer. Thrombosis Research, 245, Article 109205. https://doi.org/10.1016/j.thromres.2024.109205

Background: Even though antithrombotic therapy (ATT) probably has little or even negative effect on the well-being of patients with cancer near the end of life, it is often continued until death, possibly leading to excess bleeding complications, inc... Read More about Understanding European patterns of deprescribing antithrombotic medication during end-of-life care in patients with cancer.

Hospice topophilia and topophobia as experienced by a local population: Implications for equity of access (2024)
Journal Article
Bayley, Z., & Crowther, L. (2024). Hospice topophilia and topophobia as experienced by a local population: Implications for equity of access. Health and Place, 90, Article 103381. https://doi.org/10.1016/j.healthplace.2024.103381

The examination of hospice settings from the position of space and place is an emerging area of academic interest. Engaging with this perspective, this paper explores how topophilia and topophobia of the physical hospice setting coincides with and in... Read More about Hospice topophilia and topophobia as experienced by a local population: Implications for equity of access.