Involving Patients and the Public in Cancer Associated Thrombosis Research: a strategy for success.

Edwards, Michelle; Seddon, Kathy; Baddeley, Elin; Ording, Anne Gulbech; Pearson, Mark; Mahe, Isabelle; Mooijaart, Simon; Klok, Frederikus A.; Noble, Simon I.R.; on behalf of the SERENITY consortium

Abstract

The role of public involvement (PI) in biomedical research has never been greater, with accumulating evidence demonstrating its ability to improve the quality of research and the likelihood of translating findings into clinical practice. As the demand for meaningful PI in research continues to grow, research teams are required to provide more than a tokenistic acknowledgement of the role of public contributors to the success of a project. This paper presents an overview of PI as a whole and specifically reflects on how it has added value, to an international cancer associated thrombosis research program. It introduces tools designed to guide teams unfamiliar with PI, introducing the Public Involvement in Research Impact Toolkit (PIRIT) which provides a structure for planning and reporting on PI activities from the study inception through conduct, to its impact.

Citation

Edwards, M., Seddon, K., Baddeley, E., Ording, A. G., Pearson, M., Mahe, I., Mooijaart, S., Klok, F. A., Noble, S. I., & on behalf of the SERENITY consortium. (2025). Involving Patients and the Public in Cancer Associated Thrombosis Research: a strategy for success. Thrombosis journal, 18, Article 100196. https://doi.org/10.1016/j.tru.2024.100196

• Journal Article Type: Article
• Acceptance Date: Dec 11, 2024
• Online Publication Date: Dec 13, 2024
• Publication Date: Mar 1, 2025
• Deposit Date: Dec 23, 2024
• Publicly Available Date: Jan 10, 2025
• Journal: Thrombosis Update
• Print ISSN: 1477-9560
• Publisher: Springer Verlag
• Peer Reviewed: Peer Reviewed
• Volume: 18
• Article Number: 100196
• DOI: https://doi.org/10.1016/j.tru.2024.100196
• Keywords: Public Involvement; Research partners; Public engagement; PIRIT tool; Cancer associated thrombosis; Patient centred care; SERENITY
• Public URL: https://hull-repository.worktribe.com/output/4966877