Skip to main content

Research Repository

Advanced Search

Stigma among UK family carers of people living with dementia

Bhatt, Jem; Scior, Katrina; Stoner, Charlotte R.; Moniz-Cook, Esme; Charlesworth, Georgina


Jem Bhatt

Katrina Scior

Charlotte R. Stoner

Profile Image

Professor Esme Moniz-Cook
Professor of Clinical Psychology of Ageing and Dementia Care Research/ Dementia Research Work Group Lead

Georgina Charlesworth


Background Models of caregiving seldom include the role of stigma when understanding the experiences of carers of people living with dementia. Aims To investigate the validity of the Family Stigma Instrument (FAMSI), and use it to explore the extent to which experiences of stigma are endorsed in family carers of people living with dementia. Method The FAMSI was tested with 70 carers of people living with dementia. They also completed a measure of self-esteem. Results The FAMSI demonstrated some good preliminary psychometric properties. Carers endorsed stigma by association more so than affiliate stigma constructs, suggesting that carers were aware that others viewed or treated them in a stigmatising fashion but did not endorse internalised consequences of this as much (e.g. behavioural or affective affiliate stigma). Conclusions The FAMSI offers new avenues for understanding the contribution of stigma to caregiver burden in dementia. It also captures the positive aspects of caregiving, which may mitigate internalised stigma in family carers, and has good potential for evaluating stigma-neutralising interventions in dementia care.


Bhatt, J., Scior, K., Stoner, C. R., Moniz-Cook, E., & Charlesworth, G. (2022). Stigma among UK family carers of people living with dementia. BJPsych Open, 8(6), Article E179.

Journal Article Type Article
Acceptance Date Sep 8, 2022
Online Publication Date Oct 7, 2022
Publication Date Nov 7, 2022
Deposit Date Jan 10, 2023
Publicly Available Date Jan 13, 2023
Journal BJPsych Open
Print ISSN 2056-4724
Electronic ISSN 2056-4724
Publisher Royal College of Psychiatrists
Peer Reviewed Peer Reviewed
Volume 8
Issue 6
Article Number E179
Keywords Stigma and discrimination; Carers; Dementia; Social functioning; Attitudes
Public URL


Published article (345 Kb)

Publisher Licence URL

Copyright Statement
© The Author(s), 2022. Published by Cambridge University Press<br /> on behalf of the Royal College of Psychiatrists. This is an Open<br /> Access article, distributed under the terms of the Creative<br /> Commons Attribution licence (<br /> licenses/by/4.0/), which permits unrestricted re-use, distribution<br /> and reproduction, provided the original article is properly cited.

You might also like

Downloadable Citations