Jem Bhatt
Stigma among UK family carers of people living with dementia
Bhatt, Jem; Scior, Katrina; Stoner, Charlotte R.; Moniz-Cook, Esme; Charlesworth, Georgina
Authors
Katrina Scior
Charlotte R. Stoner
Professor Esme Moniz-Cook E.D.Moniz-Cook@hull.ac.uk
Emeritus Professor of Clinical Psychology of Ageing and Dementia Care Research / Dementia Research Work Group Lead
Georgina Charlesworth
Abstract
Background Models of caregiving seldom include the role of stigma when understanding the experiences of carers of people living with dementia. Aims To investigate the validity of the Family Stigma Instrument (FAMSI), and use it to explore the extent to which experiences of stigma are endorsed in family carers of people living with dementia. Method The FAMSI was tested with 70 carers of people living with dementia. They also completed a measure of self-esteem. Results The FAMSI demonstrated some good preliminary psychometric properties. Carers endorsed stigma by association more so than affiliate stigma constructs, suggesting that carers were aware that others viewed or treated them in a stigmatising fashion but did not endorse internalised consequences of this as much (e.g. behavioural or affective affiliate stigma). Conclusions The FAMSI offers new avenues for understanding the contribution of stigma to caregiver burden in dementia. It also captures the positive aspects of caregiving, which may mitigate internalised stigma in family carers, and has good potential for evaluating stigma-neutralising interventions in dementia care.
Citation
Bhatt, J., Scior, K., Stoner, C. R., Moniz-Cook, E., & Charlesworth, G. (2022). Stigma among UK family carers of people living with dementia. BJPsych Open, 8(6), Article E179. https://doi.org/10.1192/bjo.2022.585
| Journal Article Type | Article |
|---|---|
| Acceptance Date | Sep 8, 2022 |
| Online Publication Date | Oct 7, 2022 |
| Publication Date | Nov 7, 2022 |
| Deposit Date | Jan 10, 2023 |
| Publicly Available Date | Jan 13, 2023 |
| Journal | BJPsych Open |
| Print ISSN | 2056-4724 |
| Electronic ISSN | 2056-4724 |
| Publisher | Royal College of Psychiatrists |
| Peer Reviewed | Peer Reviewed |
| Volume | 8 |
| Issue | 6 |
| Article Number | E179 |
| DOI | https://doi.org/10.1192/bjo.2022.585 |
| Keywords | Stigma and discrimination; Carers; Dementia; Social functioning; Attitudes |
| Public URL | https://hull-repository.worktribe.com/output/4112040 |
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Copyright Statement
© The Author(s), 2022. Published by Cambridge University Press
on behalf of the Royal College of Psychiatrists. This is an Open
Access article, distributed under the terms of the Creative
Commons Attribution licence (http://creativecommons.org/
licenses/by/4.0/), which permits unrestricted re-use, distribution
and reproduction, provided the original article is properly cited.
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