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STIMULATE-ICP-Delphi (Symptoms, Trajectory, Inequalities and Management: Understanding Long-COVID to Address and Transform Existing Integrated Care Pathways Delphi): Study protocol

van der Feltz-Cornelis, Christina M.; Sweetman, Jennifer; Allsopp, Gail; Attree, Emily; Crooks, Michael G.; Cuthbertson, Daniel J.; Forshaw, Denise; Gabbay, Mark; Green, Angela; Heightman, Melissa; Hillman, Toby; Hishmeh, Lyth; Khunti, Kamlesh; Lip, Gregory Y.H.; Lorgelly, Paula; Montgomery, Hugh; Strain, W. David; Wall, Emma; Watkins, Caroline; Williams, Nefyn; Wootton, Dan G.; Banerjee, Amitava; Banerjee, Amitava; Murray, Professor Elizabeth; Dehbi, Hakim Moulay; Montgomery, Hugh; Mu, Yi; Clegg, Sarah; Ramasawmy, Mel; Goodfellow, Henry; Weerakkody, Sampath; Sunkersing, David; Gomes, Manuel; Quaye, Michelle; Gilani, Farhat; Jaami, Yusuf; Hillman, Toby; Wall, Emma; Brennan, Ewen; Sarna, Amanpreet; Lorgelly, Paula; Watkins, Dame Caroline; Forshaw, Denise; Prescott, Gordon; Stimulate, L. C.T.U.; Clegg, Andrew; Benedetto, Valerio; Allsopp, Dr Gail; Gabbay, Mark; Lip, Gregory; Cuthbertson, Dan; Wootton, Dan; Williams, Nefyn; Crooks, Michael; Green, Angela; van der Feltz-Cornelis, Christina...

Authors

Christina M. van der Feltz-Cornelis

Jennifer Sweetman

Gail Allsopp

Emily Attree

Daniel J. Cuthbertson

Denise Forshaw

Mark Gabbay

Angela Green

Melissa Heightman

Toby Hillman

Lyth Hishmeh

Kamlesh Khunti

Gregory Y.H. Lip

Paula Lorgelly

Hugh Montgomery

W. David Strain

Emma Wall

Caroline Watkins

Nefyn Williams

Dan G. Wootton

Amitava Banerjee

Amitava Banerjee

Professor Elizabeth Murray

Hakim Moulay Dehbi

Hugh Montgomery

Yi Mu

Sarah Clegg

Mel Ramasawmy

Henry Goodfellow

Sampath Weerakkody

David Sunkersing

Manuel Gomes

Michelle Quaye

Farhat Gilani

Yusuf Jaami

Toby Hillman

Emma Wall

Ewen Brennan

Amanpreet Sarna

Paula Lorgelly

Dame Caroline Watkins

Denise Forshaw

Gordon Prescott

L. C.T.U. Stimulate

Andrew Clegg

Valerio Benedetto

Dr Gail Allsopp

Mark Gabbay

Gregory Lip

Dan Cuthbertson

Dan Wootton

Nefyn Williams

Angela Green

Christina van der Feltz-Cornelis

Jennifer Sweetman

Han I. Wang

Natalie Smith

Fidan Turk

Kamlesh Khunti

Lauren O’Mahoney

Rachael Evans

David Strain

Rachel Botell

Jasmine Hayer

Rachel Hext

Kim Horstmanshof

Mag Leahy

Antony Loveless

Clare Loveless

Rita Mallinson Cookson

Andrew Williams

Rachel Williams

Ileana Selejan

Nisreen Alwan

Donna Clutterbuck

Marija Pantelic

Chris Robson

Mike Brady

Rajarshi Banerjee

Cat Kelly

Angela Barone

Johannes Alberts

Rob Suriano

Michele Pansini

Anu Chandra

Gemma Clunie

Dominic Crocombe

Shane McAuliffe



Abstract

Introduction As mortality rates from COVID-19 disease fall, the high prevalence of long-term sequelae (Long COVID) is becoming increasingly widespread, challenging healthcare systems globally. Traditional pathways of care for Long Term Conditions (LTCs) have tended to be managed by disease-specific specialties, an approach that has been ineffective in delivering care for patients with multi-morbidity. The multi-system nature of Long COVID and its impact on physical and psychological health demands a more effective model of holistic, integrated care. The evolution of integrated care systems (ICSs) in the UK presents an important opportunity to explore areas of mutual benefit to LTC, multi-morbidity and Long COVID care. There may be benefits in comparing and contrasting ICPs for Long COVID with ICPs for other LTCs. Methods and analysis This study aims to evaluate health services requirements for ICPs for Long COVID and their applicability to other LTCs including multi-morbidity and the overlap with medically not yet explained symptoms (MNYES). The study will follow a Delphi design and involve an expert panel of stakeholders including people with lived experience, as well as clinicians with expertise in Long COVID and other LTCs. Study processes will include expert panel and moderator panel meetings, surveys, and interviews. The Delphi process is part of the overall STIMULATE-ICP programme, aimed at improving integrated care for people with Long COVID. Ethics and dissemination Ethical approval for this Delphi study has been obtained (Research Governance Board of the University of York) as have approvals for the other STIMULATE-ICP studies. Study outcomes are likely to inform policy for ICPs across LTCs. Results will be disseminated through scientific publication, conference presentation and communications with patients and stakeholders involved in care of other LTCs and Long COVID.

Citation

van der Feltz-Cornelis, C. M., Sweetman, J., Allsopp, G., Attree, E., Crooks, M. G., Cuthbertson, D. J., Forshaw, D., Gabbay, M., Green, A., Heightman, M., Hillman, T., Hishmeh, L., Khunti, K., Lip, G. Y., Lorgelly, P., Montgomery, H., Strain, W. D., Wall, E., Watkins, C., Williams, N., …McAuliffe, S. (2022). STIMULATE-ICP-Delphi (Symptoms, Trajectory, Inequalities and Management: Understanding Long-COVID to Address and Transform Existing Integrated Care Pathways Delphi): Study protocol. PLoS ONE, 17(11 November), Article e0277936. https://doi.org/10.1371/journal.pone.0277936

Journal Article Type Article
Acceptance Date Oct 17, 2022
Online Publication Date Nov 30, 2022
Publication Date Nov 1, 2022
Deposit Date Oct 15, 2024
Publicly Available Date Oct 22, 2024
Journal PLoS ONE
Print ISSN 1932-6203
Publisher Public Library of Science
Peer Reviewed Peer Reviewed
Volume 17
Issue 11 November
Article Number e0277936
DOI https://doi.org/10.1371/journal.pone.0277936
Public URL https://hull-repository.worktribe.com/output/4155565

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Publisher Licence URL
http://creativecommons.org/licenses/by/4.0

Copyright Statement
Copyright: © 2022 van der Feltz-Cornelis et al. This is an open access article distributed under the terms of the Creative Commons Attribution License, which permits unrestricted use, distribution, and reproduction in any medium, provided the original author and source are credited.





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