Christina M. van der Feltz-Cornelis
STIMULATE-ICP-Delphi (Symptoms, Trajectory, Inequalities and Management: Understanding Long-COVID to Address and Transform Existing Integrated Care Pathways Delphi): Study protocol
van der Feltz-Cornelis, Christina M.; Sweetman, Jennifer; Allsopp, Gail; Attree, Emily; Crooks, Michael G.; Cuthbertson, Daniel J.; Forshaw, Denise; Gabbay, Mark; Green, Angela; Heightman, Melissa; Hillman, Toby; Hishmeh, Lyth; Khunti, Kamlesh; Lip, Gregory Y.H.; Lorgelly, Paula; Montgomery, Hugh; Strain, W. David; Wall, Emma; Watkins, Caroline; Williams, Nefyn; Wootton, Dan G.; Banerjee, Amitava; Banerjee, Amitava; Murray, Professor Elizabeth; Dehbi, Hakim Moulay; Montgomery, Hugh; Mu, Yi; Clegg, Sarah; Ramasawmy, Mel; Goodfellow, Henry; Weerakkody, Sampath; Sunkersing, David; Gomes, Manuel; Quaye, Michelle; Gilani, Farhat; Jaami, Yusuf; Hillman, Toby; Wall, Emma; Brennan, Ewen; Sarna, Amanpreet; Lorgelly, Paula; Watkins, Dame Caroline; Forshaw, Denise; Prescott, Gordon; Stimulate, L. C.T.U.; Clegg, Andrew; Benedetto, Valerio; Allsopp, Dr Gail; Gabbay, Mark; Lip, Gregory; Cuthbertson, Dan; Wootton, Dan; Williams, Nefyn; Crooks, Michael; Green, Angela; van der Feltz-Cornelis, Christina...
Authors
Jennifer Sweetman
Gail Allsopp
Emily Attree
Prof Michael Crooks m.g.crooks@hull.ac.uk
Professor of Respiratory Medicine
Daniel J. Cuthbertson
Denise Forshaw
Mark Gabbay
Angela Green
Melissa Heightman
Toby Hillman
Lyth Hishmeh
Kamlesh Khunti
Gregory Y.H. Lip
Paula Lorgelly
Hugh Montgomery
W. David Strain
Emma Wall
Caroline Watkins
Nefyn Williams
Dan G. Wootton
Amitava Banerjee
Amitava Banerjee
Professor Elizabeth Murray
Hakim Moulay Dehbi
Hugh Montgomery
Yi Mu
Sarah Clegg
Mel Ramasawmy
Henry Goodfellow
Sampath Weerakkody
David Sunkersing
Manuel Gomes
Michelle Quaye
Farhat Gilani
Yusuf Jaami
Toby Hillman
Emma Wall
Ewen Brennan
Amanpreet Sarna
Paula Lorgelly
Dame Caroline Watkins
Denise Forshaw
Gordon Prescott
L. C.T.U. Stimulate
Andrew Clegg
Valerio Benedetto
Dr Gail Allsopp
Mark Gabbay
Gregory Lip
Dan Cuthbertson
Dan Wootton
Nefyn Williams
Prof Michael Crooks m.g.crooks@hull.ac.uk
Professor of Respiratory Medicine
Angela Green
Christina van der Feltz-Cornelis
Jennifer Sweetman
Han I. Wang
Natalie Smith
Fidan Turk
Kamlesh Khunti
Lauren O’Mahoney
Rachael Evans
David Strain
Rachel Botell
Jasmine Hayer
Rachel Hext
Kim Horstmanshof
Mag Leahy
Antony Loveless
Clare Loveless
Rita Mallinson Cookson
Andrew Williams
Rachel Williams
Ileana Selejan
Nisreen Alwan
Donna Clutterbuck
Marija Pantelic
Chris Robson
Mike Brady
Rajarshi Banerjee
Cat Kelly
Angela Barone
Johannes Alberts
Rob Suriano
Michele Pansini
Anu Chandra
Gemma Clunie
Dominic Crocombe
Shane McAuliffe
Abstract
Introduction As mortality rates from COVID-19 disease fall, the high prevalence of long-term sequelae (Long COVID) is becoming increasingly widespread, challenging healthcare systems globally. Traditional pathways of care for Long Term Conditions (LTCs) have tended to be managed by disease-specific specialties, an approach that has been ineffective in delivering care for patients with multi-morbidity. The multi-system nature of Long COVID and its impact on physical and psychological health demands a more effective model of holistic, integrated care. The evolution of integrated care systems (ICSs) in the UK presents an important opportunity to explore areas of mutual benefit to LTC, multi-morbidity and Long COVID care. There may be benefits in comparing and contrasting ICPs for Long COVID with ICPs for other LTCs. Methods and analysis This study aims to evaluate health services requirements for ICPs for Long COVID and their applicability to other LTCs including multi-morbidity and the overlap with medically not yet explained symptoms (MNYES). The study will follow a Delphi design and involve an expert panel of stakeholders including people with lived experience, as well as clinicians with expertise in Long COVID and other LTCs. Study processes will include expert panel and moderator panel meetings, surveys, and interviews. The Delphi process is part of the overall STIMULATE-ICP programme, aimed at improving integrated care for people with Long COVID. Ethics and dissemination Ethical approval for this Delphi study has been obtained (Research Governance Board of the University of York) as have approvals for the other STIMULATE-ICP studies. Study outcomes are likely to inform policy for ICPs across LTCs. Results will be disseminated through scientific publication, conference presentation and communications with patients and stakeholders involved in care of other LTCs and Long COVID.
Citation
van der Feltz-Cornelis, C. M., Sweetman, J., Allsopp, G., Attree, E., Crooks, M. G., Cuthbertson, D. J., Forshaw, D., Gabbay, M., Green, A., Heightman, M., Hillman, T., Hishmeh, L., Khunti, K., Lip, G. Y., Lorgelly, P., Montgomery, H., Strain, W. D., Wall, E., Watkins, C., Williams, N., …McAuliffe, S. (2022). STIMULATE-ICP-Delphi (Symptoms, Trajectory, Inequalities and Management: Understanding Long-COVID to Address and Transform Existing Integrated Care Pathways Delphi): Study protocol. PLoS ONE, 17(11 November), Article e0277936. https://doi.org/10.1371/journal.pone.0277936
Journal Article Type | Article |
---|---|
Acceptance Date | Oct 17, 2022 |
Online Publication Date | Nov 30, 2022 |
Publication Date | Nov 1, 2022 |
Deposit Date | Oct 15, 2024 |
Publicly Available Date | Oct 22, 2024 |
Journal | PLoS ONE |
Print ISSN | 1932-6203 |
Publisher | Public Library of Science |
Peer Reviewed | Peer Reviewed |
Volume | 17 |
Issue | 11 November |
Article Number | e0277936 |
DOI | https://doi.org/10.1371/journal.pone.0277936 |
Public URL | https://hull-repository.worktribe.com/output/4155565 |
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Copyright Statement
Copyright: © 2022 van der Feltz-Cornelis et al. This is an open access article distributed under the terms of the Creative Commons Attribution License, which permits unrestricted use, distribution, and reproduction in any medium, provided the original author and source are credited.
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