Skip to main content

Research Repository

Advanced Search

Person-centered assessment of apathy and resistance to care in people living with dementia: Review of existing measures

Mast, Benjamin T.; Ertle, Emilee M.; Kolanowski, Ann; Mountain, Gail; Moniz-Cook, Esme; Halek, Margareta

Authors

Benjamin T. Mast

Emilee M. Ertle

Ann Kolanowski

Gail Mountain

Profile Image

Professor Esme Moniz-Cook E.D.Moniz-Cook@hull.ac.uk
Professor of Clinical Psychology of Ageing and Dementia Care Research/ Dementia Research Work Group Lead

Margareta Halek



Abstract

Introduction: The review described in this paper builds upon the Dementia Care Practice Recommendations (DCPR) published by the Alzheimer's Association in 2018 and addresses behavior change and the need for targeted outcome measures that evolve from person-centered frameworks and help evaluate interventions. Apathy and resistance to care (RTC) are two specific behavioral expressions of unmet need or distress exhibited by people living with dementia, which are upsetting to formal and family caregivers and compromise quality of life for people living with dementia. Methods: We conducted literature searches of major databases (PsycInfo, PubMed, EBSCO, CINAHL) for papers examining apathy and RTC constructs in samples of people living with dementia. Reliability and validity coefficients were reviewed and reported, along with examination of whether each measure facilitates contextual understanding of behavior. Results: Three stand-alone measures of RTC and ten measures of apathy were identified and reviewed. The RTC measures demonstrated good psychometric properties but do not include the perspective of the person living with dementia or contextual aspects of the behavior. The identified apathy measures demonstrated fair to good psychometric properties, and although there is greater consideration of context, none adequately include the perspective of the person living with dementia. Discussion: Although reliable and valid measures have been developed to measure apathy and RTC in people living with dementia, there is greater need for conceptually driven measurement of behavior context and for tools that elicit and include the perspective of the person living with dementia.

Citation

Mast, B. T., Ertle, E. M., Kolanowski, A., Mountain, G., Moniz-Cook, E., & Halek, M. (2022). Person-centered assessment of apathy and resistance to care in people living with dementia: Review of existing measures. Alzheimer's and Dementia: Translational Research and Clinical Interventions, 8(1), Article e12316. https://doi.org/10.1002/trc2.12316

Journal Article Type Article
Acceptance Date May 11, 2022
Online Publication Date Jul 26, 2022
Publication Date 2022
Deposit Date Jan 10, 2023
Publicly Available Date Jan 11, 2023
Journal Alzheimer's and Dementia: Translational Research and Clinical Interventions
Electronic ISSN 2352-8737
Publisher Wiley Open Access
Peer Reviewed Peer Reviewed
Volume 8
Issue 1
Article Number e12316
DOI https://doi.org/10.1002/trc2.12316
Public URL https://hull-repository.worktribe.com/output/4165017

Files

Published article (1.4 Mb)
PDF

Publisher Licence URL
http://creativecommons.org/licenses/by-nc/4.0

Copyright Statement
© 2022 The Authors. Alzheimer's & Dementia: Translational Research & Clinical Interventions published by Wiley Periodicals, LLC on behalf of Alzheimer's Association.<br /> <br /> This is an open access article under the terms of the Creative Commons Attribution-NonCommercial License, which permits use, distribution and reproduction in any medium, provided the original work is properly cited and is not used for commercial purposes.



You might also like



Downloadable Citations