Relational and psychological aspects of the experience of chronic fatigue syndrome for patients and their significant others : a grounded theory study

Cunnah, Katie Jane

Abstract

Social processes have been investigated as a maintaining factor in chronic fatigue syndrome, also known as myalgic encephamyelitis (CFS/ME), and the responses of the significant others (SOs) of people with CFS/ME (PwCFS/ME) have been shown to be associated with illness outcomes. Experiences of PwCFS/ME and their significant others have been explored, but with limited depth and/or breadth. This study aimed to develop a nuanced understanding of relationships between PwCFS/ME and their SOs, describing emotional and relational characteristics, processes and consequences. 15 participants consisting of PwCFS/ME (n=9) and SOs of PwCFS/ME (n=6) completed a total of 26 audio-recorded, semi-structured interviews which were analysed according to grounded theory methodology. Four categories are presented: Onset, The Problem Pattern, Cohesion and Acceptance, with The Problem Pattern being the core category. Within these, patterns of family functioning are identified and discussed in relation to family systems theory and models of family cohesion. Three key dimensions of cohesion are identified in the data: disengagement, enmeshment, and healthy cohesion, as are the emotional experiences that accompany these relational patterns. Future research and interventions that incorporate the significant other should aim to improve togetherness, autonomy, and acceptance in relationships, with the goal of improving quality of life within the limitations of the illness.

Citation

Cunnah, K. J. Relational and psychological aspects of the experience of chronic fatigue syndrome for patients and their significant others : a grounded theory study. (Thesis). University of Hull. https://hull-repository.worktribe.com/output/4223559

• Thesis Type: Thesis
• Deposit Date: Oct 26, 2021
• Publicly Available Date: Feb 24, 2023
• Keywords: Psychology
• Public URL: https://hull-repository.worktribe.com/output/4223559
• Additional Information: Department of Psychology, The University of Hull
• Award Date: Nov 1, 2019