A Web-Based Self-management App for Living Well With Dementia: User-Centered Development Study

Lee, Abigail Rebecca; Csipke, Emese; Yates, Lauren; Moniz-Cook, Esme; McDermott, Orii; Taylor, Steven; Stephens, Michael; Kelleher, Daniel; Orrell, Martin

Abstract

Background: Self-management, autonomy, and quality of life are key constructs in enabling people to live well with dementia. This population often becomes isolated following diagnosis, but it is important for them to feel encouraged to maintain their daily activities and stay socially active. Promoting Independence in Dementia (PRIDE) fosters social inclusion and greater dementia self-management through an interactive handbook. Objective: This study aimed to develop a paper-based PRIDE manual on a web-based platform. Methods: Two overarching stages were used to create the web-based version of PRIDE. The first was Preliminary Development, which encompassed tendering, preliminary development work, consultations, beta version of the website, user testing and consultation on beta version, and production of the final web-based prototype. The second stage was Development of the Final PRIDE App, which included 2 sprints and further user testing. Results: Through a lengthy development process, modifications were made to app areas such as the log-in process, content layout, and aesthetic appearance. Feedback from the target population was incorporated into the process to achieve a dementia-friendly product. The finished PRIDE app has defined areas for reading dementia-related topics, creating activity plans, and logging these completed activities. Conclusions: The PRIDE app has evolved from its initial prototype into a more dementia-friendly and usable program that is suitable for further testing. The finished version will be tested in a reach, effectiveness, adoption, implementation, and maintenance study, with its potential reach, effectiveness, and adoption explored. Feedback gathered during the reach, effectiveness, adoption, implementation, and maintenance study will lead to any further developments in the app to increase its applicability to the target audience and usability.

Citation

Lee, A. R., Csipke, E., Yates, L., Moniz-Cook, E., McDermott, O., Taylor, S., …Orrell, M. (2023). A Web-Based Self-management App for Living Well With Dementia: User-Centered Development Study. JMIR Human Factors, 10, Article e40785. https://doi.org/10.2196/40785

• Journal Article Type: Article
• Acceptance Date: Feb 17, 2023
• Online Publication Date: Feb 24, 2023
• Publication Date: 2023
• Deposit Date: Mar 25, 2023
• Publicly Available Date: Mar 27, 2023
• Journal: JMIR Human Factors
• Electronic ISSN: 2292-9495
• Publisher: JMIR Publications
• Peer Reviewed: Peer Reviewed
• Volume: 10
• Article Number: e40785
• DOI: https://doi.org/10.2196/40785
• Keywords: Dementia; Self-management; Independence; Quality of life; Web-based; Website; Psychosocial
• Public URL: https://hull-repository.worktribe.com/output/4249226