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A Web-Based Self-management App for Living Well With Dementia: User-Centered Development Study

Lee, Abigail Rebecca; Csipke, Emese; Yates, Lauren; Moniz-Cook, Esme; McDermott, Orii; Taylor, Steven; Stephens, Michael; Kelleher, Daniel; Orrell, Martin


Abigail Rebecca Lee

Emese Csipke

Lauren Yates

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Professor Esme Moniz-Cook
Professor of Clinical Psychology of Ageing and Dementia Care Research/ Dementia Research Work Group Lead

Orii McDermott

Steven Taylor

Michael Stephens

Daniel Kelleher

Martin Orrell


Background: Self-management, autonomy, and quality of life are key constructs in enabling people to live well with dementia. This population often becomes isolated following diagnosis, but it is important for them to feel encouraged to maintain their daily activities and stay socially active. Promoting Independence in Dementia (PRIDE) fosters social inclusion and greater dementia self-management through an interactive handbook. Objective: This study aimed to develop a paper-based PRIDE manual on a web-based platform. Methods: Two overarching stages were used to create the web-based version of PRIDE. The first was Preliminary Development, which encompassed tendering, preliminary development work, consultations, beta version of the website, user testing and consultation on beta version, and production of the final web-based prototype. The second stage was Development of the Final PRIDE App, which included 2 sprints and further user testing. Results: Through a lengthy development process, modifications were made to app areas such as the log-in process, content layout, and aesthetic appearance. Feedback from the target population was incorporated into the process to achieve a dementia-friendly product. The finished PRIDE app has defined areas for reading dementia-related topics, creating activity plans, and logging these completed activities. Conclusions: The PRIDE app has evolved from its initial prototype into a more dementia-friendly and usable program that is suitable for further testing. The finished version will be tested in a reach, effectiveness, adoption, implementation, and maintenance study, with its potential reach, effectiveness, and adoption explored. Feedback gathered during the reach, effectiveness, adoption, implementation, and maintenance study will lead to any further developments in the app to increase its applicability to the target audience and usability.


Lee, A. R., Csipke, E., Yates, L., Moniz-Cook, E., McDermott, O., Taylor, S., …Orrell, M. (2023). A Web-Based Self-management App for Living Well With Dementia: User-Centered Development Study. JMIR Human Factors, 10, Article e40785.

Journal Article Type Article
Acceptance Date Feb 17, 2023
Online Publication Date Feb 24, 2023
Publication Date 2023
Deposit Date Mar 25, 2023
Publicly Available Date Mar 27, 2023
Journal JMIR Human Factors
Electronic ISSN 2292-9495
Publisher JMIR Publications
Peer Reviewed Peer Reviewed
Volume 10
Article Number e40785
Keywords Dementia; Self-management; Independence; Quality of life; Web-based; Website; Psychosocial
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Copyright Statement
©Abigail Rebecca Lee, Emese Csipke, Lauren Yates, Esme Moniz-Cook, Orii McDermott, Steven Taylor, Michael Stephens,<br /> Daniel Kelleher, Martin Orrell. Originally published in JMIR Human Factors (, 24.02.2023. This<br /> is an open-access article distributed under the terms of the Creative Commons Attribution License<br /> (, which permits unrestricted use, distribution, and reproduction in any medium,<br /> provided the original work, first published in JMIR Human Factors, is properly cited. The complete bibliographic information,<br /> a link to the original publication on, as well as this copyright and license information must be<br /> included.

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