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European Respiratory Society clinical practice guideline: palliative care for people with COPD or interstitial lung disease

Janssen, Daisy J.A.; Bajwah, Sabrina; Boon, Michele Hilton; Coleman, Courtney; Currow, David C.; Devillers, Albert; Vandendungen, Chantal; Ekström, Magnus; Flewett, Ron; Greenley, Sarah; Guldin, Mai Britt; Jácome, Cristina; Johnson, Miriam J.; Kurita, Geana Paula; Maddocks, Matthew; Marques, Alda; Pinnock, Hilary; Simon, Steffen T.; Tonia, Thomy; Marsaa, Kristoffer

Authors

Daisy J.A. Janssen

Sabrina Bajwah

Michele Hilton Boon

Courtney Coleman

David C. Currow

Albert Devillers

Chantal Vandendungen

Magnus Ekström

Ron Flewett

Mai Britt Guldin

Cristina Jácome

Geana Paula Kurita

Matthew Maddocks

Alda Marques

Hilary Pinnock

Steffen T. Simon

Thomy Tonia

Kristoffer Marsaa



Abstract

There is increased awareness of palliative care needs in people with COPD or interstitial lung disease (ILD). This European Respiratory Society (ERS) task force aimed to provide recommendations for initiation and integration of palliative care into the respiratory care of adult people with COPD or ILD. The ERS task force consisted of 20 members, including representatives of people with COPD or ILD and informal caregivers. Eight questions were formulated, four in the Population, Intervention, Comparison, Outcome format. These were addressed with full systematic reviews and application of Grading of Recommendations Assessment, Development and Evaluation for assessing the evidence. Four additional questions were addressed narratively. An "evidence-to-decision" framework was used to formulate recommendations. The following definition of palliative care for people with COPD or ILD was agreed. A holistic and multidisciplinary person-centred approach aiming to control symptoms and improve quality of life of people with serious health-related suffering because of COPD or ILD, and to support their informal caregivers. Recommendations were made regarding people with COPD or ILD and their informal caregivers: to consider palliative care when physical, psychological, social or existential needs are identified through holistic needs assessment; to offer palliative care interventions, including support for informal caregivers, in accordance with such needs; to offer advance care planning in accordance with preferences; and to integrate palliative care into routine COPD and ILD care. Recommendations should be reconsidered as new evidence becomes available.

Citation

Janssen, D. J., Bajwah, S., Boon, M. H., Coleman, C., Currow, D. C., Devillers, A., …Marsaa, K. (2023). European Respiratory Society clinical practice guideline: palliative care for people with COPD or interstitial lung disease. European respiratory journal, 62(2), https://doi.org/10.1183/13993003.02014-2022

Journal Article Type Article
Acceptance Date May 6, 2023
Online Publication Date Jun 8, 2023
Publication Date Aug 1, 2023
Deposit Date May 30, 2023
Publicly Available Date Jun 9, 2024
Journal The European respiratory journal
Print ISSN 0903-1936
Electronic ISSN 1399-3003
Publisher European Respiratory Society
Peer Reviewed Peer Reviewed
Volume 62
Issue 2
DOI https://doi.org/10.1183/13993003.02014-2022
Public URL https://hull-repository.worktribe.com/output/4301215