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Longitudinal Predictors of Informant-Rated Involvement of People with Dementia in Everyday Decision-Making: Findings from the IDEAL Program

Sabatini, Serena; Martyr, Anthony; Gamble, Laura D.; Collins, Rachel; Matthews, Fiona E.; Morris, Robin G.; Rusted, Jennifer M.; Pentecost, Claire; Quinn, Catherine; Clare, Linda

Authors

Serena Sabatini

Anthony Martyr

Laura D. Gamble

Rachel Collins

Robin G. Morris

Jennifer M. Rusted

Claire Pentecost

Catherine Quinn

Linda Clare



Abstract

The extent to which people with dementia are involved in everyday decision-making is unclear. We explored informant-rated involvement of people with dementia in everyday decision-making over 2 years and whether functional, behavioral, and psychological factors related to the person with dementia and the caregiver explain variability in involvement of people with dementia in everyday decision-making. We used IDEAL data for 1182 people with dementia and their caregivers. Baseline mean score on the decision-making involvement scale was 31/45; it minimally declined over time. People with dementia who were female, single, and/or whose caregiver was younger had greater involvement in everyday decision-making than those without these characteristics. Better cognition, fewer functional difficulties, fewer neuropsychiatric symptoms, less caregiver stress, and better informant-rated relationship quality were associated with higher involvement in everyday decision-making. Cognitive and functional rehabilitation, and educational resources for caregivers, could prolong involvement of people with dementia in everyday decision-making.

Citation

Sabatini, S., Martyr, A., Gamble, L. D., Collins, R., Matthews, F. E., Morris, R. G., Rusted, J. M., Pentecost, C., Quinn, C., & Clare, L. (2023). Longitudinal Predictors of Informant-Rated Involvement of People with Dementia in Everyday Decision-Making: Findings from the IDEAL Program. Journal of applied gerontology, 42(2), 290-301. https://doi.org/10.1177/07334648221128558

Journal Article Type Article
Acceptance Date Sep 7, 2022
Online Publication Date Oct 4, 2022
Publication Date Feb 1, 2023
Deposit Date Dec 10, 2023
Publicly Available Date Dec 11, 2023
Journal Journal of Applied Gerontology
Print ISSN 0733-4648
Electronic ISSN 1552-4523
Publisher SAGE Publications
Peer Reviewed Peer Reviewed
Volume 42
Issue 2
Pages 290-301
DOI https://doi.org/10.1177/07334648221128558
Keywords Alzheimer’s disease; Caregiving; Functional ability; Cognitive capacity; Neuropsychiatric symptoms; Caregiver stress; Relationship quality
Public URL https://hull-repository.worktribe.com/output/4450777

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Publisher Licence URL
http://creativecommons.org/licenses/by/4.0

Copyright Statement
© The Author(s) 2022.
Creative Commons License (CC BY 4.0)
This article is distributed under the terms of the Creative Commons Attribution 4.0 License (https://creativecommons.org/licenses/by/4.0/) which permits any use, reproduction and distribution of the work without further permission provided the original work is attributed as specified on the SAGE and Open Access page (https://us.sagepub.com/en-us/nam/open-access-at-sage).




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