Serena Sabatini
Longitudinal Predictors of Informant-Rated Involvement of People with Dementia in Everyday Decision-Making: Findings from the IDEAL Program
Sabatini, Serena; Martyr, Anthony; Gamble, Laura D.; Collins, Rachel; Matthews, Fiona E.; Morris, Robin G.; Rusted, Jennifer M.; Pentecost, Claire; Quinn, Catherine; Clare, Linda
Authors
Anthony Martyr
Laura D. Gamble
Rachel Collins
Professor Fiona Matthews F.Matthews@hull.ac.uk
Pro-Vice-Chancellor Research and Enterprise
Robin G. Morris
Jennifer M. Rusted
Claire Pentecost
Catherine Quinn
Linda Clare
Abstract
The extent to which people with dementia are involved in everyday decision-making is unclear. We explored informant-rated involvement of people with dementia in everyday decision-making over 2 years and whether functional, behavioral, and psychological factors related to the person with dementia and the caregiver explain variability in involvement of people with dementia in everyday decision-making. We used IDEAL data for 1182 people with dementia and their caregivers. Baseline mean score on the decision-making involvement scale was 31/45; it minimally declined over time. People with dementia who were female, single, and/or whose caregiver was younger had greater involvement in everyday decision-making than those without these characteristics. Better cognition, fewer functional difficulties, fewer neuropsychiatric symptoms, less caregiver stress, and better informant-rated relationship quality were associated with higher involvement in everyday decision-making. Cognitive and functional rehabilitation, and educational resources for caregivers, could prolong involvement of people with dementia in everyday decision-making.
Citation
Sabatini, S., Martyr, A., Gamble, L. D., Collins, R., Matthews, F. E., Morris, R. G., Rusted, J. M., Pentecost, C., Quinn, C., & Clare, L. (2023). Longitudinal Predictors of Informant-Rated Involvement of People with Dementia in Everyday Decision-Making: Findings from the IDEAL Program. Journal of applied gerontology, 42(2), 290-301. https://doi.org/10.1177/07334648221128558
Journal Article Type | Article |
---|---|
Acceptance Date | Sep 7, 2022 |
Online Publication Date | Oct 4, 2022 |
Publication Date | Feb 1, 2023 |
Deposit Date | Dec 10, 2023 |
Publicly Available Date | Dec 11, 2023 |
Journal | Journal of Applied Gerontology |
Print ISSN | 0733-4648 |
Electronic ISSN | 1552-4523 |
Publisher | SAGE Publications |
Peer Reviewed | Peer Reviewed |
Volume | 42 |
Issue | 2 |
Pages | 290-301 |
DOI | https://doi.org/10.1177/07334648221128558 |
Keywords | Alzheimer’s disease; Caregiving; Functional ability; Cognitive capacity; Neuropsychiatric symptoms; Caregiver stress; Relationship quality |
Public URL | https://hull-repository.worktribe.com/output/4450777 |
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Copyright Statement
© The Author(s) 2022.
Creative Commons License (CC BY 4.0)
This article is distributed under the terms of the Creative Commons Attribution 4.0 License (https://creativecommons.org/licenses/by/4.0/) which permits any use, reproduction and distribution of the work without further permission provided the original work is attributed as specified on the SAGE and Open Access page (https://us.sagepub.com/en-us/nam/open-access-at-sage).
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