Longitudinal Predictors of Informant-Rated Involvement of People with Dementia in Everyday Decision-Making: Findings from the IDEAL Program

Sabatini, Serena; Martyr, Anthony; Gamble, Laura D.; Collins, Rachel; Matthews, Fiona E.; Morris, Robin G.; Rusted, Jennifer M.; Pentecost, Claire; Quinn, Catherine; Clare, Linda

Abstract

The extent to which people with dementia are involved in everyday decision-making is unclear. We explored informant-rated involvement of people with dementia in everyday decision-making over 2 years and whether functional, behavioral, and psychological factors related to the person with dementia and the caregiver explain variability in involvement of people with dementia in everyday decision-making. We used IDEAL data for 1182 people with dementia and their caregivers. Baseline mean score on the decision-making involvement scale was 31/45; it minimally declined over time. People with dementia who were female, single, and/or whose caregiver was younger had greater involvement in everyday decision-making than those without these characteristics. Better cognition, fewer functional difficulties, fewer neuropsychiatric symptoms, less caregiver stress, and better informant-rated relationship quality were associated with higher involvement in everyday decision-making. Cognitive and functional rehabilitation, and educational resources for caregivers, could prolong involvement of people with dementia in everyday decision-making.

Citation

Sabatini, S., Martyr, A., Gamble, L. D., Collins, R., Matthews, F. E., Morris, R. G., Rusted, J. M., Pentecost, C., Quinn, C., & Clare, L. (2023). Longitudinal Predictors of Informant-Rated Involvement of People with Dementia in Everyday Decision-Making: Findings from the IDEAL Program. Journal of applied gerontology, 42(2), 290-301. https://doi.org/10.1177/07334648221128558

• Journal Article Type: Article
• Acceptance Date: Sep 7, 2022
• Online Publication Date: Oct 4, 2022
• Publication Date: Feb 1, 2023
• Deposit Date: Dec 10, 2023
• Publicly Available Date: Dec 11, 2023
• Journal: Journal of Applied Gerontology
• Print ISSN: 0733-4648
• Electronic ISSN: 1552-4523
• Publisher: SAGE Publications
• Peer Reviewed: Peer Reviewed
• Volume: 42
• Issue: 2
• Pages: 290-301
• DOI: https://doi.org/10.1177/07334648221128558
• Keywords: Alzheimer’s disease; Caregiving; Functional ability; Cognitive capacity; Neuropsychiatric symptoms; Caregiver stress; Relationship quality
• Public URL: https://hull-repository.worktribe.com/output/4450777