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A participatory approach to understand what might be most meaningful to people living with dementia in a positive psychology intervention

Jackman, Victoria; Wolverson, Emma; Clarke, Chris; Quinn, Catherine

Authors

Victoria Jackman

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Dr Emma Wolverson E.Wolverson@hull.ac.uk
Reader in Ageing and Dementia. Research Lead for Dementia UK.

Chris Clarke

Catherine Quinn



Abstract

ABSTRACT
Objectives: This study aimed to understand which character strengths are most important for people living with dementia and therefore which strengths-based psychological interventions could be most meaningful and acceptable.
Methods: A participatory design, utilising Delphi methodology, was incorporated into an iterative three stage framework: (1) literature reviewed for Positive Psychology (PP) interventions and patient
public involvement to define the character strengths; (2) modified Delphi (N = 10) identified which character strengths are most important for living with dementia; (3) focus groups (N = 14) explored
which PP interventions are most acceptable and meaningful. Qualitative data from the focus groups was analysed using thematic analysis.
Results: Love, kindness and humour were deemed the most important character strengths for living with dementia. Qualitative data from the focus groups was captured in three superordinate themes:
(1) lack of opportunity not capacity; (2) key considerations of PP interventions for people living with dementia; and (3) potential benefits of PP interventions.
Conclusions: Love, kindness and humour come naturally to people with dementia, but people may lack social opportunities to use these strengths. Therefore, a PP intervention promoting positive emotion, social relationships and connection to one’s values appears most meaningful and acceptable as this may provide a social context to use and maintain these strengths.

Citation

Jackman, V., Wolverson, E., Clarke, C., & Quinn, C. (in press). A participatory approach to understand what might be most meaningful to people living with dementia in a positive psychology intervention. Dementia, https://doi.org/10.1080/13607863.2023.2299967

Journal Article Type Article
Acceptance Date Dec 12, 2023
Online Publication Date Jan 8, 2024
Deposit Date Jan 8, 2024
Publicly Available Date Jan 9, 2024
Journal Dementia
Print ISSN 1471-3012
Publisher SAGE Publications
Peer Reviewed Peer Reviewed
DOI https://doi.org/10.1080/13607863.2023.2299967
Keywords Dementia; Character strengths; Positive psychology intervention; Coproduction
Public URL https://hull-repository.worktribe.com/output/4508061

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Publisher Licence URL
https://creativecommons.org/licenses/by-nc-nd/4.0/

Copyright Statement
© 2024 The Author(s). Published by Informa UK Limited, trading as Taylor & Francis Group
This is an Open Access article distributed under the terms of the Creative Commons Attribution-NonCommercial-NoDerivatives License (http://creativecommons.org/licenses/by-nc-nd/4.0/), which permits non-commercial re-use, distribution, and reproduction in any medium, provided the original work is properly cited, and is not altered, transformed, or built upon in any way. The terms on which this article has been published allow the posting of the Accepted Manuscript in a repository by the author(s) or with their consent.




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