All Outputs (149)

Parental death: a systematic review of support experiences and needs of children and parent survivors (2022)
Journal Article
Wray, A., Pickwell-Smith, B., Greenley, S., Pask, S., Bamidele, O., Wright, B., …Boland, J. W. (2022). Parental death: a systematic review of support experiences and needs of children and parent survivors. BMJ supportive & palliative care, https://doi.org/10.1136/spcare-2022-003793

Background: Bereaved people need a supportive response from those around them. Knowing children's and surviving parents' needs following parental death is the first step to ensuring a supportive response. However, no systematic review has reported on... Read More about Parental death: a systematic review of support experiences and needs of children and parent survivors.

Primary palliative care in Japan: needs estimation and projections - national database study with international comparisons (2022)
Journal Article
Ito, M., Aoyama, M., Murtagh, F. E., & Miyashita, M. (2022). Primary palliative care in Japan: needs estimation and projections - national database study with international comparisons. BMJ supportive & palliative care, https://doi.org/10.1136/spcare-2022-003743

Objectives: We aimed to estimate the potential population that requires palliative care, clarify the relationship between this population and the rate of ageing in Japan, and compare these trends with those of other countries. Design: We used the nat... Read More about Primary palliative care in Japan: needs estimation and projections - national database study with international comparisons.

Charitably funded hospices and the challenges associated with the COVID-19 pandemic: a mixed-methods study (CovPall) (2022)
Journal Article
Garner, I. W., Walshe, C., Dunleavey, L., Bradshaw, A., Preston, N., Fraser, L. K., …Higginson, I. J. (2022). Charitably funded hospices and the challenges associated with the COVID-19 pandemic: a mixed-methods study (CovPall). BMC Palliative Care, 21(1), Article 176. https://doi.org/10.1186/s12904-022-01070-8

BACKGROUND: Independent charitably funded hospices have been an important element of the UK healthcare response to the COVID-19 pandemic. Hospices usually have different funding streams, procurement processes, and governance arrangements compared to... Read More about Charitably funded hospices and the challenges associated with the COVID-19 pandemic: a mixed-methods study (CovPall).

Understanding opioid analgesic prescribing and cognitive adverse effects in older adults: a mixed methods study (2022)
Thesis
Pask, S. Understanding opioid analgesic prescribing and cognitive adverse effects in older adults: a mixed methods study. (Thesis). Hull York Medical School. https://hull-repository.worktribe.com/output/4424999

Background: Pain is prevalent in older adults (≥65). Opioids are used to manage moderate to severe pain, but older populations may be more at risk of adverse effects. Opioid-induced cognitive impairment can be distressing but evidence to inform our u... Read More about Understanding opioid analgesic prescribing and cognitive adverse effects in older adults: a mixed methods study.

The range and suitability of outcome measures used in the assessment of palliative treatment for inoperable malignant bowel obstruction: A systematic review (2022)
Journal Article
Seddon, K., Bravington, A., Obita, G., Baddeley, E., Johnson, M. J., Murtagh, F. E., Currow, D. C., Boland, E. G., Nelson, A., Oliver, A., Noble, S. I., & Boland, J. W. (2022). The range and suitability of outcome measures used in the assessment of palliative treatment for inoperable malignant bowel obstruction: A systematic review. Palliative medicine, 36(9), 1336-1350. https://doi.org/10.1177/02692163221122352

Background: Malignant bowel obstruction, a complication of certain advanced cancers, causes severe symptoms which profoundly affect quality of life. Clinical management remains complex, and outcome assessment is inconsistent.

Aim: To identify outc... Read More about The range and suitability of outcome measures used in the assessment of palliative treatment for inoperable malignant bowel obstruction: A systematic review.

Symptom management in people dying with COVID-19: multinational observational study (2022)
Journal Article
Oluyase, A. O., Bajwah, S., Sleeman, K. E., Walshe, C., Preston, N., Hocaoglu, M., …Higginson, I. J. (2022). Symptom management in people dying with COVID-19: multinational observational study. BMJ Supportive & Palliative Care, 12(4), 439-447. https://doi.org/10.1136/spcare-2022-003799

OBJECTIVES: To describe multinational prescribing practices by palliative care services for symptom management in patients dying with COVID-19 and the perceived effectiveness of medicines. METHODS: We surveyed specialist palliative care services, con... Read More about Symptom management in people dying with COVID-19: multinational observational study.

Implementation lessons learnt when trialling palliative care interventions in the intensive care unit: relationships between determinants, implementation strategies, and models of delivery-a systematic review protocol (2022)
Journal Article
Meddick-Dyson, S. A., Boland, J. W., Pearson, M., Greenley, S., Gambe, R., Budding, J. R., & Murtagh, F. E. (2022). Implementation lessons learnt when trialling palliative care interventions in the intensive care unit: relationships between determinants, implementation strategies, and models of delivery-a systematic review protocol. Systematic reviews, 11(1), Article 186. https://doi.org/10.1186/s13643-022-02054-8

BACKGROUND: Heterogeneity amongst palliative care interventions in the intensive care unit (ICU) and their outcomes has meant that, even when found to be effective, translation of evidence into practice is hindered. Previous evidence reviews have sug... Read More about Implementation lessons learnt when trialling palliative care interventions in the intensive care unit: relationships between determinants, implementation strategies, and models of delivery-a systematic review protocol.

The assessment and management of unintentional weight loss associated with cachexia in a primary care setting: a mixed-methods study (2022)
Thesis
Nwulu, U. U. The assessment and management of unintentional weight loss associated with cachexia in a primary care setting: a mixed-methods study. (Thesis). Hull York Medical School. https://hull-repository.worktribe.com/output/4420753

Introduction: Unintentional weight loss (UWL) is the main symptom of cachexia, a multifactorial syndrome associated with advanced disease. Other symptoms include loss of appetite and muscle weakness. UWL in older adults can be caused by many disease... Read More about The assessment and management of unintentional weight loss associated with cachexia in a primary care setting: a mixed-methods study.

The association between socioeconomic position and the symptoms and concerns of hospital inpatients seen by specialist palliative care: Analysis of routinely collected patient data (2022)
Journal Article
Davies, J. M., Sleeman, K. E., Ramsenthaler, C., Prentice, W., Maddocks, M., & Murtagh, F. E. (2022). The association between socioeconomic position and the symptoms and concerns of hospital inpatients seen by specialist palliative care: Analysis of routinely collected patient data. Palliative medicine, https://doi.org/10.1177/02692163221115331

Background: Understanding how socioeconomic position influences the symptoms and concerns of patients approaching the end of life is important for planning more equitable care. Data on this relationship is lacking, particularly for patients with non-... Read More about The association between socioeconomic position and the symptoms and concerns of hospital inpatients seen by specialist palliative care: Analysis of routinely collected patient data.

The most important components of out-of-hours community care for patients at the end of life: A Delphi study of healthcare professionals’ and patient and family carers’ perspectives (2022)
Journal Article
Goodrich, J., Tutt, L., Firth, A. M., Evans, C. J., Murtagh, F. E., & Harding, R. (2022). The most important components of out-of-hours community care for patients at the end of life: A Delphi study of healthcare professionals’ and patient and family carers’ perspectives. Palliative medicine, https://doi.org/10.1177/02692163221106284

Background: Community services for palliative patients outside normal working hours are variable and the best evidence-based models of care have not been determined. Aim: To establish expert consensus on the most important components of out-of-hours... Read More about The most important components of out-of-hours community care for patients at the end of life: A Delphi study of healthcare professionals’ and patient and family carers’ perspectives.

Symptom Control and Survival for People Severely ill With COVID: A Multicentre Cohort Study (CovPall-Symptom) (2022)
Journal Article
Higginson, I. J., Hocaoglu, M., Fraser, L. K., Maddocks, M., Sleeman, K. E., Oluyase, A. O., Chambers, R. L., Preston, N., Dunleavy, L., Bradshaw, A., Bajwah, S., Murtagh, F. E., Walshe, C., & On behalf of theCovPall study team. (2022). Symptom Control and Survival for People Severely ill With COVID: A Multicentre Cohort Study (CovPall-Symptom). Journal of pain and symptom management, 64(4), 377-390. https://doi.org/10.1016/j.jpainsymman.2022.06.009

Context: Evidence of symptom control outcomes in severe COVID is scant. Objectives: To determine changes in symptoms among people severely ill or dying with COVID supported by palliative care, and associations with treatments and survival. Methods: M... Read More about Symptom Control and Survival for People Severely ill With COVID: A Multicentre Cohort Study (CovPall-Symptom).

Face and content validity, acceptability, feasibility, and implementability of a novel outcome measure for children with life-limiting or life-threatening illness in three sub-Saharan African countries (2022)
Journal Article
Namisango, E., Bristowe, K., Murtagh, F. E., Downing, J., Powell, R. A., Atieno, M., …Harding, R. (2022). Face and content validity, acceptability, feasibility, and implementability of a novel outcome measure for children with life-limiting or life-threatening illness in three sub-Saharan African countries. Palliative medicine, 36(7), 1140-1153. https://doi.org/10.1177/02692163221099583

Background: The Children’s Palliative Care Outcome Scale (C-POS) is the first measure developed for children with life-limiting and -threatening illness. It is essential to determine whether the measure addresses what matters to children, and if they... Read More about Face and content validity, acceptability, feasibility, and implementability of a novel outcome measure for children with life-limiting or life-threatening illness in three sub-Saharan African countries.

Thinking About the Future, Symptom Control and Other Aspects of Palliative Care in Advanced CKD (2022)
Book Chapter
Murtagh, F. E., Wilson, J., & Davison, S. N. (2022). Thinking About the Future, Symptom Control and Other Aspects of Palliative Care in Advanced CKD. In M. Harber (Ed.), Primer on Nephrology (1163-1174). Cham: Springer. https://doi.org/10.1007/978-3-030-76419-7_68

Palliative and supportive care have always been important for those with advanced CKD, but – until recently – there has been little research or evidence to inform best care. This is changing rapidly. This chapter draws on recent evidence to provide a... Read More about Thinking About the Future, Symptom Control and Other Aspects of Palliative Care in Advanced CKD.

Symptom burden and lived experiences of patients, caregivers and healthcare professionals on the management of malignant bowel obstruction: A qualitative systematic review (2022)
Journal Article
Baddeley, E., Mann, M., Bravington, A., Johnson, M. J., Currow, D., Murtagh, F. E., …Noble, S. (in press). Symptom burden and lived experiences of patients, caregivers and healthcare professionals on the management of malignant bowel obstruction: A qualitative systematic review. Palliative medicine, https://doi.org/10.1177/02692163221081331

Background: Malignant bowel obstruction occurs in up to 50% of people with advanced ovarian and 15% of people with gastrointestinal cancers. Evaluation and comparison of interventions to manage symptoms are hampered by inconsistent evaluations of eff... Read More about Symptom burden and lived experiences of patients, caregivers and healthcare professionals on the management of malignant bowel obstruction: A qualitative systematic review.

COVID-19: Impact on Pediatric Palliative Care (2022)
Journal Article
Scott, H. M., Coombes, L., Braybrook, D., Roach, A., Harðardóttir, D., Bristowe, K., …Harding, R. (in press). COVID-19: Impact on Pediatric Palliative Care. Journal of pain and symptom management, https://doi.org/10.1016/j.jpainsymman.2022.02.330

Context: Children and young people with life-limiting or life-threatening conditions and their families are potentially vulnerable during COVID-19 lockdowns due to pre-existing high clinical support needs and social participation limitations. Objecti... Read More about COVID-19: Impact on Pediatric Palliative Care.

Experiences of staff providing specialist palliative care during COVID-19: a multiple qualitative case study (2022)
Journal Article
Bradshaw, A., Dunleavy, L., Garner, I., Preston, N., Bajwah, S., Cripps, R., …CovPall study team. (in press). Experiences of staff providing specialist palliative care during COVID-19: a multiple qualitative case study. Journal of the Royal Society of Medicine, https://doi.org/10.1177/01410768221077366

Objective: To explore the experiences of, and impact on, staff working in palliative care during the COVID-19 pandemic. Design: Qualitative multiple case study using semi-structured interviews between November 2020 and April 2021 as part of the CovPa... Read More about Experiences of staff providing specialist palliative care during COVID-19: a multiple qualitative case study.

Conceptualising effective symptom management in palliative care: a novel model derived from qualitative data (2022)
Journal Article
Chapman, E. J., Pini, S., Edwards, Z., Elmokhallalati, Y., Murtagh, F. E., & Bennett, M. I. (2022). Conceptualising effective symptom management in palliative care: a novel model derived from qualitative data. BMC Palliative Care, 21(1), Article 17. https://doi.org/10.1186/s12904-022-00904-9

BACKGROUND: Pain, breathlessness and fatigue are some of the most challenging symptoms to manage in patients with advanced disease. Specialist palliative care leads to better symptom management, but factors contributing to successful symptom manageme... Read More about Conceptualising effective symptom management in palliative care: a novel model derived from qualitative data.

Concurrent validity and prognostic utility of the Needs Assessment Tool: Progressive Disease Heart Failure (2022)
Journal Article
King, C., Khamis, A., Ross, J., Murtagh, F. E., Johnson, M. J., & Ramsenthaler, C. (in press). Concurrent validity and prognostic utility of the Needs Assessment Tool: Progressive Disease Heart Failure. Journal of pain and symptom management, https://doi.org/10.1016/j.jpainsymman.2022.01.014

Context: People with advanced heart failure have supportive and palliative needs requiring systematic assessment. Objectives: We aimed to assess the validity of the Needs Assessment Tool: Progressive Disease – Heart Failure (NAT:PD-HF). Methods: Seco... Read More about Concurrent validity and prognostic utility of the Needs Assessment Tool: Progressive Disease Heart Failure.

End of life care for infants, children and young people (ENHANCE): Protocol for a mixed methods evaluation of current practice in the United Kingdom (2022)
Journal Article
Papworth, A., Hackett, J., Beresford, B., Murtagh, F., Weatherly, H., Hinde, S., Bedendo, A., Walker, G., Noyes, J., Oddie, S., Vasudevan, C., Feltbower, R., Phillips, B., Hain, R., Subramanian, G., Haynes, A., & Fraser, L. K. (2022). End of life care for infants, children and young people (ENHANCE): Protocol for a mixed methods evaluation of current practice in the United Kingdom. NIHR Open Research, 2(37), https://doi.org/10.3310/nihropenres.13273.1

Background: Although child mortality has decreased over the last few decades, around 4,500 infants and children die in the UK every year, many of whom require palliative care. There is, however, little evidence on paediatric end-of-life care services... Read More about End of life care for infants, children and young people (ENHANCE): Protocol for a mixed methods evaluation of current practice in the United Kingdom.

Understanding the impact of the Covid-19 pandemic on delivery of rehabilitation in specialist palliative care services: An analysis of the CovPall-Rehab survey data (2021)
Journal Article
Bayly, J., Bradshaw, A., Fettes, L., Omarjee, M., Talbot-Rice, H., Walshe, C., …Maddocks, M. (in press). Understanding the impact of the Covid-19 pandemic on delivery of rehabilitation in specialist palliative care services: An analysis of the CovPall-Rehab survey data. Palliative medicine, https://doi.org/10.1177/02692163211063397

Background: Palliative rehabilitation involves multi-professional processes and interventions aimed at optimising patients’ symptom self-management, independence and social participation throughout advanced illness. Rehabilitation services were highl... Read More about Understanding the impact of the Covid-19 pandemic on delivery of rehabilitation in specialist palliative care services: An analysis of the CovPall-Rehab survey data.