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COVID-19: Impact on Pediatric Palliative Care

Scott, Hannah May; Coombes, Lucy; Braybrook, Debbie; Roach, Anna; Harðardóttir, Daney; Bristowe, Katherine; Ellis-Smith, Clare; Higginson, Irene; Gao, Wei; Bluebond-Langner, Myra; Farsides, Bobbie; Murtagh, Fliss EM; Fraser, Lorna K.; Harding, Richard

Authors

Hannah May Scott

Lucy Coombes

Debbie Braybrook

Anna Roach

Daney Harðardóttir

Katherine Bristowe

Clare Ellis-Smith

Irene Higginson

Wei Gao

Myra Bluebond-Langner

Bobbie Farsides

Lorna K. Fraser

Richard Harding



Abstract

Context: Children and young people with life-limiting or life-threatening conditions and their families are potentially vulnerable during COVID-19 lockdowns due to pre-existing high clinical support needs and social participation limitations. Objectives: To explore the impact of the COVID-19 pandemic and lockdowns on this population. Methods: Sub-analysis of an emergent COVID-19 related theme from a larger semi-structured interview study investigating priority pediatric palliative care outcomes. One hundred and six United Kingdom-wide purposively-sampled Children and young people with life-limiting or life-threatening conditions, parent/carers, siblings, health professionals, and commissioners. Results: COVID-19 was raised by participants in 12/44 interviews conducted after the United Kingdom's first confirmed COVID-19 case. Key themes included loss of vital social support, disruption to services important to families, and additional psychological distress. Conclusion: Continued delivery of child- and family-centered palliative care requires innovative assessment and delivery of psycho-social support. Disruptions within treatment and care providers may compound support needs, requiring cordination for families facing multiagency delays.

Citation

Scott, H. M., Coombes, L., Braybrook, D., Roach, A., Harðardóttir, D., Bristowe, K., …Harding, R. (in press). COVID-19: Impact on Pediatric Palliative Care. Journal of pain and symptom management, https://doi.org/10.1016/j.jpainsymman.2022.02.330

Journal Article Type Article
Acceptance Date Feb 22, 2022
Online Publication Date Feb 25, 2022
Deposit Date Apr 19, 2022
Publicly Available Date Mar 28, 2024
Journal Journal of Pain and Symptom Management
Print ISSN 0885-3924
Electronic ISSN 1873-6513
Publisher Elsevier
Peer Reviewed Peer Reviewed
DOI https://doi.org/10.1016/j.jpainsymman.2022.02.330
Keywords Pediatrics; Palliative care; COVID-19
Public URL https://hull-repository.worktribe.com/output/3970752

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