All Outputs (454)

Quality of life among caregivers of people with end-stage kidney disease managed with dialysis or comprehensive conservative care (2020)
Journal Article
Shah, K. K., Murtagh, F. E., McGeechan, K., Crail, S. M., Burns, A., & Morton, R. L. (2020). Quality of life among caregivers of people with end-stage kidney disease managed with dialysis or comprehensive conservative care. BMC Nephrology, 21(1), 160. https://doi.org/10.1186/s12882-020-01830-9

BACKGROUND: To measure health-related and care-related quality of life among informal caregivers of older people with end-stage kidney disease (ESKD), and to determine the association between caregiver quality of life and care recipient's treatment t... Read More about Quality of life among caregivers of people with end-stage kidney disease managed with dialysis or comprehensive conservative care.

Breathlessness and opioid prescribing in COPD in general practice: a cross-sectional, observational study (2020)
Journal Article
Currow, D. C., Johnson, M. J., Pollack, A., Ferreira, D. H., Kochovska, S., Ekström, M., & Harrison, C. (2020). Breathlessness and opioid prescribing in COPD in general practice: a cross-sectional, observational study. ERJ Open Research, 6(2), Article 00299-2019. https://doi.org/10.1183/23120541.00299-2019

Chronic breathlessness is a disabling syndrome, prevalent in people with advanced chronic obstructive pulmonary disease (COPD). Regular, low-dose, oral sustained-release morphine is approved in Australia to reduce symptomatic chronic breathlessness.... Read More about Breathlessness and opioid prescribing in COPD in general practice: a cross-sectional, observational study.

Interventions to minimise doctors’ mental ill-health and its impacts on the workforce and patient care: the Care Under Pressure realist review (2020)
Journal Article
Carrieri, D., Pearson, M., Mattick, K., Papoutsi, C., Briscoe, S., Wong, G., & Jackson, M. (in press). Interventions to minimise doctors’ mental ill-health and its impacts on the workforce and patient care: the Care Under Pressure realist review. Health Services and Delivery Research, 8(19), 1-132. https://doi.org/10.3310/hsdr08190

Background The growing incidence of mental ill-health in health professionals, including doctors, is a global concern. Although a large body of literature exists on interventions that offer support, advice and/or treatment to sick doctors, it has no... Read More about Interventions to minimise doctors’ mental ill-health and its impacts on the workforce and patient care: the Care Under Pressure realist review.

Physical activity and nutrition interventions for older adults with cancer: a systematic review (2020)
Journal Article
Forbes, C. C., Swan, F., Greenley, S. L., Lind, M., & Johnson, M. J. (2020). Physical activity and nutrition interventions for older adults with cancer: a systematic review. Journal of cancer survivorship : research and practice, 14(5), 689-711. https://doi.org/10.1007/s11764-020-00883-x

Purpose: The aim of this review was to summarize the current literature for the effectiveness of activity and nutritional based interventions on health-related quality of life (HRQoL) in older adults living with and beyond cancer (LWBC). Methods: We... Read More about Physical activity and nutrition interventions for older adults with cancer: a systematic review.

A Dyadic Growth Modeling Approach for Examining Associations Between Weight Gain and Lung Function Decline (2020)
Journal Article
Cornelius, T., Schwartz, J. E., Balte, P., Bhatt, S. P., Cassano, P. A., Currow, D., Jacobs, D. R., Johnson, M., Kalhan, R., Kronmal, R., Loehr, L., O’Connor, G. T., Smith, B., White, W. B., Yende, S., & Oelsner, E. C. (2020). A Dyadic Growth Modeling Approach for Examining Associations Between Weight Gain and Lung Function Decline. American Journal of Epidemiology, 189(10), 1173-1184. https://doi.org/10.1093/aje/kwaa059

The relationship between body weight and lung function is complex. Using a dyadic multilevel linear modeling approach, treating body mass index (BMI; weight (kg)/height (m)2) and lung function as paired, within-person outcomes, we tested the hypothes... Read More about A Dyadic Growth Modeling Approach for Examining Associations Between Weight Gain and Lung Function Decline.

Optimising strategies to address mental ill-health in doctors and medical students: 'Care under Pressure' realist review and implementation guidance (2020)
Journal Article
Carrieri, D., Mattick, K., Pearson, M., Papoutsi, C., Briscoe, S., Wong, G., & Jackson, M. (2020). Optimising strategies to address mental ill-health in doctors and medical students: 'Care under Pressure' realist review and implementation guidance. BMC medicine, 18(1), Article 76. https://doi.org/10.1186/s12916-020-01532-x

© 2020 The Author(s). Background: Mental ill-health in health professionals, including doctors, is a global and growing concern. The existing literature on interventions that offer support, advice and/or treatment to sick doctors has not yet been syn... Read More about Optimising strategies to address mental ill-health in doctors and medical students: 'Care under Pressure' realist review and implementation guidance.

“So, I try not to go…” Acute-on-chronic breathlessness and presentation to the emergency department: in-depth interviews with patients, carers and clinicians (2020)
Journal Article
Hutchinson, A., Galvin, K., & Johnson, M. J. (2020). “So, I try not to go…” Acute-on-chronic breathlessness and presentation to the emergency department: in-depth interviews with patients, carers and clinicians. Journal of pain and symptom management, 60(2), 316-325. https://doi.org/10.1016/j.jpainsymman.2020.03.014

Context: People with acute-on-chronic breathlessness due to cardiorespiratory conditions frequently present to the emergency department (ED) causing burden for the person concerned, their care takers, and emergency services. Objective: To understand... Read More about “So, I try not to go…” Acute-on-chronic breathlessness and presentation to the emergency department: in-depth interviews with patients, carers and clinicians.

Managing the supportive care needs of those affected by COVID-19 (2020)
Journal Article
Bajwah, S., Wilcock, A., Towers, R., Costantini, M., Bausewein, C., Johnson, M. J., Simon, S. T., Bendstrup, E., Prentice, W., Johnson, M. J., Currow, D. C., Kreuter, M., Wells, A. U., Birring, S. S., Edmonds, P., & Higginson, I. J. (2020). Managing the supportive care needs of those affected by COVID-19. European respiratory journal, 55(4), Article 2000815. https://doi.org/10.1183/13993003.00815-2020

Interview transcripts for “I’m living in a ‘no’ world now…”- A Qualitative Study of The Widespread Impact of Living with Chronic Breathlessness, and Experiences of Identification and Assessment of this Symptom in an Older, Frail community-based Population. (2020)
Data
Elliott-Button, H. Interview transcripts for “I’m living in a ‘no’ world now…”- A Qualitative Study of The Widespread Impact of Living with Chronic Breathlessness, and Experiences of Identification and Assessment of this Symptom in an Older, Frail community-based Population. [Dataset]

Background Chronic breathlessness is a debilitating symptom with detrimental impact on individuals and carers. However, little is known about the experiences of community-dwelling, frail, older adults living with chronic breathlessness. Aims T... Read More about Interview transcripts for “I’m living in a ‘no’ world now…”- A Qualitative Study of The Widespread Impact of Living with Chronic Breathlessness, and Experiences of Identification and Assessment of this Symptom in an Older, Frail community-based Population..

Living in the mo(ve)ment: An ethnographic exploration of hospice patients’ experiences of participating in Tai Chi (2020)
Journal Article
Burke, S. M., Bradshaw, A., Phoenix, C., & Shaunna, B. (2020). Living in the mo(ve)ment: An ethnographic exploration of hospice patients’ experiences of participating in Tai Chi. Psychology of sport and exercise, 49, Article 101687. https://doi.org/10.1016/j.psychsport.2020.101687

Purpose: Tai Chi is increasingly being used as a complimentary therapy in hospice care to help patients self-manage multiple and complex health needs. However, currently there is limited understanding of Tai Chi from patients’ perspective, including... Read More about Living in the mo(ve)ment: An ethnographic exploration of hospice patients’ experiences of participating in Tai Chi.

Towards person-centred quality care for children with life-limiting and life-threatening illness: Self-reported symptoms, concerns and priority outcomes from a multi-country qualitative study (2020)
Journal Article
Namisango, E., Bristowe, K., Murtagh, F. E., Downing, J., Powell, R. A., Abas, M., Lohfeld, L., Ali, Z., Atieno, M., Haufiku, D., Guma, S., Luyirika, E. B., Mwangi-Powell, F. N., Higginson, I. J., & Harding, R. (2020). Towards person-centred quality care for children with life-limiting and life-threatening illness: Self-reported symptoms, concerns and priority outcomes from a multi-country qualitative study. Palliative medicine, 34(3), 319-335. https://doi.org/10.1177/0269216319900137

© The Author(s) 2020. Background: Paediatric life-limiting and life-threatening conditions (life-limiting conditions) place significant strain on children, families and health systems. Given high service use among this population, it is essential tha... Read More about Towards person-centred quality care for children with life-limiting and life-threatening illness: Self-reported symptoms, concerns and priority outcomes from a multi-country qualitative study.

Understanding usual care in randomised controlled trials of complex interventions: A multi-method approach (2020)
Journal Article
Yorganci, E., Evans, C. J., Johnson, H., Barclay, S., Murtagh, F. E., Yi, D., Gao, W., Pickles, A., & Koffman, J. (2020). Understanding usual care in randomised controlled trials of complex interventions: A multi-method approach. Palliative medicine, https://doi.org/10.1177/0269216320905064

Background Evaluations of complex interventions compared to usual care provided in palliative care are increasing. Not describing usual care may affect the interpretation of an intervention’s effectiveness, yet how it can be described remains unclear... Read More about Understanding usual care in randomised controlled trials of complex interventions: A multi-method approach.

Supportive care for end-stage kidney disease: an integral part of kidney services across a range of income settings around the world (2020)
Journal Article
Hole, B., Hemmelgarn, B., Brown, E., Brown, M., McCulloch, M. I., Zuniga, C., Andreoli, S. P., Blake, P. G., Couchoud, C., Cueto-Manzano, A. M., Dreyer, G., Garcia Garcia, G., Jager, K. J., McKnight, M., Morton, R. L., Murtagh, F. E., Naicker, S., Obrador, G. T., Perl, J., Rahman, M., …Caskey, F. J. (2020). Supportive care for end-stage kidney disease: an integral part of kidney services across a range of income settings around the world. Kidney International Supplements, 10(1), e86-e94. https://doi.org/10.1016/j.kisu.2019.11.008

© 2020 International Society of Nephrology A key component of treatment for all people with advanced kidney disease is supportive care, which aims to improve quality of life and can be provided alongside therapies intended to prolong life, such as di... Read More about Supportive care for end-stage kidney disease: an integral part of kidney services across a range of income settings around the world.

Hospice inpatient deep vein thrombosis detection (HIDDen) in advanced non-malignant diseases : A longitudinal pilot study (2020)
Journal Article
White, C., Noble, S., Swan, F., Watson, M., Allgar, V., Napier, E., Nelson, A., & Johnson, M. J. (in press). Hospice inpatient deep vein thrombosis detection (HIDDen) in advanced non-malignant diseases : A longitudinal pilot study. BMJ supportive & palliative care, bmjspcare-2019-002039. https://doi.org/10.1136/bmjspcare-2019-002039

© Author(s) (or their employer(s)) 2020. No commercial re-use. See rights and permissions. Published by BMJ. Objectives: To gain preliminary data regarding the prevalence of proximal deep vein thrombosis (DVT) in those with non-malignant conditions a... Read More about Hospice inpatient deep vein thrombosis detection (HIDDen) in advanced non-malignant diseases : A longitudinal pilot study.

Development and evaluation of a screening tool to aid the diagnosis of a cluster headache (2020)
Journal Article
Buture, A., Boland, J. W., Dikomitis, L., Huang, C., & Ahmed, F. (2020). Development and evaluation of a screening tool to aid the diagnosis of a cluster headache. Brain Sciences, 10(2), Article 77. https://doi.org/10.3390/brainsci10020077

Cluster headache (CH), a severe primary headache, is often misdiagnosed and mismanaged. The aim of this study was to develop and evaluate a screening tool to aid the diagnosis of CH. We developed a novel 12-item screening tool. This was comprised of... Read More about Development and evaluation of a screening tool to aid the diagnosis of a cluster headache.

Openness Personality Trait Associated With Benefit From a Nonpharmacological Breathlessness Intervention in People With Intrathoracic Cancer: An Exploratory Analysis (2020)
Journal Article
Johnson, M. J., Nabb, S., Booth, S., & Kanaan, M. (2020). Openness Personality Trait Associated With Benefit From a Nonpharmacological Breathlessness Intervention in People With Intrathoracic Cancer: An Exploratory Analysis. Journal of pain and symptom management, 59(5), 1059-1066.e2. https://doi.org/10.1016/j.jpainsymman.2020.01.006

Context: Breathlessness is common in people with lung cancer. Nonpharmacological breathlessness interventions reduce distress because of and increase mastery over breathlessness. Objectives: Identify patient characteristics associated with response t... Read More about Openness Personality Trait Associated With Benefit From a Nonpharmacological Breathlessness Intervention in People With Intrathoracic Cancer: An Exploratory Analysis.

Practice review: Evidence-based and effective management of pain in patients with advanced cancer (2020)
Journal Article
Chapman, E. J., Edwards, Z., Boland, J. W., Maddocks, M., Fettes, L., Malia, C., Mulvey, M. R., & Bennett, M. I. (2020). Practice review: Evidence-based and effective management of pain in patients with advanced cancer. Palliative medicine, 34(4), 444-453. https://doi.org/10.1177/0269216319896955

© The Author(s) 2020. Background: Pain of a moderate or severe intensity affects over half of patients with advanced cancer and remains undertreated in at least one-third of these patients. Aim: The aim of this study was to provide a pragmatic overvi... Read More about Practice review: Evidence-based and effective management of pain in patients with advanced cancer.

“Are you doing your pelvic floor?” An ethnographic exploration of the interaction between women and midwives about pelvic floor muscle exercises (PFME) during pregnancy (2020)
Journal Article
Terry, R., Jarvie, R., Hay-Smith, J., Salmon, V., Pearson, M., Boddy, K., MacArthur, C., & Dean, S. (2020). “Are you doing your pelvic floor?” An ethnographic exploration of the interaction between women and midwives about pelvic floor muscle exercises (PFME) during pregnancy. Midwifery, 83, Article 102647. https://doi.org/10.1016/j.midw.2020.102647

Objective Many women experience urinary incontinence (UI) during and after pregnancy. Pelvic floor muscle exercises (PFME) can prevent and reduce the symptoms of UI. The objective of the study was to explore challenges, opportunities and concerns fo... Read More about “Are you doing your pelvic floor?” An ethnographic exploration of the interaction between women and midwives about pelvic floor muscle exercises (PFME) during pregnancy.

Cannabinoids for adult cancer-related pain: systematic review and meta-analysis (2020)
Journal Article
Boland, E. G., Bennett, M. I., Allgar, V., & Boland, J. W. (2020). Cannabinoids for adult cancer-related pain: systematic review and meta-analysis. BMJ supportive & palliative care, 10(1), 14-24. https://doi.org/10.1136/bmjspcare-2019-002032

Objectives There is increased interest in cannabinoids for cancer pain management and legislative changes are in progress in many countries. This study aims to determine the beneficial and adverse effects of cannabis/cannabinoids compared with plac... Read More about Cannabinoids for adult cancer-related pain: systematic review and meta-analysis.

Palliative care for non-cancer conditions in primary care: a time trend analysis in the UK (2009–2014) (2020)
Journal Article
Gadoud, A., Kane, E., Oliver, S. E., Johnson, M. J., MacLeod, U., & Allgar, V. (2020). Palliative care for non-cancer conditions in primary care: a time trend analysis in the UK (2009–2014). BMJ supportive & palliative care, Article 001833. https://doi.org/10.1136/bmjspcare-2019-001833

Objectives While guidelines recommend palliative care in non-cancer conditions, this has not been widely implemented. We examined whether the recording of a palliative care approach and the numbers of hospital deaths for deceased patients with heart... Read More about Palliative care for non-cancer conditions in primary care: a time trend analysis in the UK (2009–2014).