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Outputs (461)

Patient and carer experience of breathlessness (2016)
Book Chapter
Hutchinson, A. (2016). Patient and carer experience of breathlessness. In C. Bausewein, D. C. Currow, & M. J. Johnson (Eds.), Palliative Care in Respiratory Disease (102-110). European Respiratory Society. https://doi.org/10.1183/2312508X.10011615

© ERS 2016. Chronic breathlessness has wide-ranging, interrelated, physical, psychological, social and existential consequences for those living with it, and for family and friends who care for them. Despite this, the symptom often remains invisible... Read More about Patient and carer experience of breathlessness.

Measuring health-related quality of life in patients with conservatively managed stage 5 chronic kidney disease: limitations of the Medical Outcomes Study Short Form 36: SF-36 (2016)
Journal Article
Erez, G., Selman, L., & Murtagh, F. E. (2016). Measuring health-related quality of life in patients with conservatively managed stage 5 chronic kidney disease: limitations of the Medical Outcomes Study Short Form 36: SF-36. Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation, 25(11), 2799-2809. https://doi.org/10.1007/s11136-016-1313-7

© 2016, The Author(s). Purpose: Chronic kidney disease (CKD) negatively affects health-related quality of life (HRQoL), which is often measured using the Medical Outcomes Study Short Form 36 (SF-36) questionnaire. However, the adequacy of SF-36 in th... Read More about Measuring health-related quality of life in patients with conservatively managed stage 5 chronic kidney disease: limitations of the Medical Outcomes Study Short Form 36: SF-36.

Medical students writing on death, dying and palliative care : a qualitative analysis of reflective essays (2016)
Journal Article
Boland, J. W., Dikomitis, L., & Gadoud, A. (2016). Medical students writing on death, dying and palliative care : a qualitative analysis of reflective essays. BMJ supportive & palliative care, 6(4), 486-492. https://doi.org/10.1136/bmjspcare-2016-001110

Background: Medical students and doctors are becoming better prepared to care for patients with palliative care needs and support patients at the end of life. This preparation needs to start at medical school. Objective: To assess how medical student... Read More about Medical students writing on death, dying and palliative care : a qualitative analysis of reflective essays.

Can "realist" randomised controlled trials be genuinely realist? (2016)
Journal Article
Van Belle, S., Wong, G., Westhorp, G., Pearson, M., Emmel, N., Manzano, A., & Marchal, B. (2016). Can "realist" randomised controlled trials be genuinely realist?. Trials, 17(1), Article 313. https://doi.org/10.1186/s13063-016-1407-0

In this paper, we respond to a paper by Jamal and colleagues published in Trials in October 2015 and take an opportunity to continue the much-needed debate about what applied scientific realism is. The paper by Jamal et al. is useful because it expos... Read More about Can "realist" randomised controlled trials be genuinely realist?.

Communication and support from health-care professionals to families, with dependent children, following the diagnosis of parental life-limiting illness : a systematic review (2016)
Journal Article
Fearnley, R., & Boland, J. W. (2017). Communication and support from health-care professionals to families, with dependent children, following the diagnosis of parental life-limiting illness : a systematic review. Palliative medicine, 31(3), 212-222. https://doi.org/10.1177/0269216316655736

Background: Communication between parents and their children about parental life-limiting illness is stressful. Parents want support from health-care professionals; however, the extent of this support is not known. Awareness of family’s needs would h... Read More about Communication and support from health-care professionals to families, with dependent children, following the diagnosis of parental life-limiting illness : a systematic review.

Missing data in randomized controlled trials testing palliative interventions pose a significant risk of bias and loss of power: a systematic review and meta-analyses (2016)
Journal Article
Hussain, J. A., White, I. R., Langan, D., Johnson, M. J., Currow, D. C., Torgerson, D. J., & Bland, M. (2016). Missing data in randomized controlled trials testing palliative interventions pose a significant risk of bias and loss of power: a systematic review and meta-analyses. Journal of clinical epidemiology, 74, 57-65. https://doi.org/10.1016/j.jclinepi.2015.12.003

Objectives To assess the risk posed by missing data (MD) to the power and validity of trials evaluating palliative interventions. Study Design and Setting A systematic review of MD in published randomized controlled trials (RCTs) of palliative interv... Read More about Missing data in randomized controlled trials testing palliative interventions pose a significant risk of bias and loss of power: a systematic review and meta-analyses.

What approaches to social prescribing work, for whom, and in what circumstances? A protocol for a realist review (2016)
Journal Article
Husk, K., Blockley, K., Lovell, R., Bethel, A., Bloomfield, D., Warber, S., Pearson, M., Lang, I., Byng, R., & Garside, R. (2016). What approaches to social prescribing work, for whom, and in what circumstances? A protocol for a realist review. Systematic reviews, 5(1), Article 93. https://doi.org/10.1186/s13643-016-0269-6

© 2016 The Author(s). Background: The use of non-drug, non-health-service interventions has been proposed as a cost-effective alternative to help those with long-term conditions manage their illness and improve their health and well-being. Interventi... Read More about What approaches to social prescribing work, for whom, and in what circumstances? A protocol for a realist review.

Content and quality of websites supporting self-management of chronic breathlessness in advanced illness: a systematic review (2016)
Journal Article
Luckett, T., Disler, R., Hosie, A., Johnson, M., Davidson, P., Currow, D., Sumah, A., & Phillips, J. (2016). Content and quality of websites supporting self-management of chronic breathlessness in advanced illness: a systematic review. NPJ Primary Care Respiratory Medicine, 26(1), Article ARTN 16025. https://doi.org/10.1038/npjpcrm.2016.25

Chronic breathlessness is a common, burdensome and distressing symptom in many advanced chronic illnesses. Self-management strategies are essential to optimise treatment, daily functioning and emotional coping. People with chronic illness commonly se... Read More about Content and quality of websites supporting self-management of chronic breathlessness in advanced illness: a systematic review.

Improving the Reporting of Health and Psychological Research (2016)
Journal Article
Fuller, T. E., Pearson, M., & Peters, J. (2016). Improving the Reporting of Health and Psychological Research. Australian Psychologist, 51(3), 182-187. https://doi.org/10.1111/ap.12135

A growing body of empirical evidence has consistently demonstrated that much publically and privately funded research is reported in a way that makes it difficult for the findings to be included in evidence syntheses or used by researchers, clinician... Read More about Improving the Reporting of Health and Psychological Research.