Patients’ views on care and their association with outcomes in palliative care

Pinto, Cathryn; Firth, Alice M.; Groeneveld, Esther Iris; Guo, Ping; Sykes, Nigel; Murtagh, Fliss E.M.

Abstract

When patients face advanced illness, their experience of care is especially important. In palliative care, we often rely on the accounts of bereaved relatives to report the quality of end-of-life care, and there are no validated patient-reported measures of the experience of care. We report therefore on a new questionnaire, Views on Care (VOC), to address this gap. It consists of four questions (see the following link for full questionnaire: www.pos-pal.org) selected/refined from St Christopher’s Index of Patient Priorities (SKIPP), which address patients’ evaluation of (1) change in their main concerns, (2) benefit from palliative services, (3) previous and (4) current quality of life (3 and 4 adapted from EORTC QLQ-C15-PAL – well-validated in advanced illness).

Citation

Pinto, C., Firth, A. M., Groeneveld, E. I., Guo, P., Sykes, N., & Murtagh, F. E. (2019). Patients’ views on care and their association with outcomes in palliative care. Palliative medicine, 33(4), 467-469. https://doi.org/10.1177/0269216319831383

• Journal Article Type: Letter
• Acceptance Date: Jan 25, 2019
• Online Publication Date: Mar 1, 2019
• Publication Date: Apr 1, 2019
• Deposit Date: Mar 2, 2019
• Publicly Available Date: Mar 4, 2019
• Journal: Palliative Medicine
• Print ISSN: 0269-2163
• Electronic ISSN: 1477-030X
• Publisher: SAGE Publications
• Peer Reviewed: Peer Reviewed
• Volume: 33
• Issue: 4
• Pages: 467-469
• DOI: https://doi.org/10.1177/0269216319831383
• Keywords: Anesthesiology and Pain Medicine; General Medicine
• Public URL: https://hull-repository.worktribe.com/output/1349307
• Publisher URL: https://journals.sagepub.com/doi/10.1177/0269216319831383