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Patients’ views on care and their association with outcomes in palliative care

Pinto, Cathryn; Firth, Alice M; Firth, Alice M.; Groeneveld, Esther Iris; Guo, Ping; Sykes, Nigel; Murtagh, Fliss E.M.

Authors

Cathryn Pinto

Alice M Firth

Alice M. Firth

Esther Iris Groeneveld

Ping Guo

Nigel Sykes



Abstract

When patients face advanced illness, their experience of care is especially important. In palliative care, we often rely on the accounts of bereaved relatives to report the quality of end-of-life care, and there are no validated patient-reported measures of the experience of care. We report therefore on a new questionnaire, Views on Care (VOC), to address this gap. It consists of four questions (see the following link for full questionnaire: www.pos-pal.org) selected/refined from St Christopher’s Index of Patient Priorities (SKIPP), which address patients’ evaluation of (1) change in their main concerns, (2) benefit from palliative services, (3) previous and (4) current quality of life (3 and 4 adapted from EORTC QLQ-C15-PAL – well-validated in advanced illness).

Journal Article Type Letter
Publication Date Apr 1, 2019
Journal Palliative Medicine
Print ISSN 0269-2163
Electronic ISSN 1477-030X
Publisher SAGE Publications
Peer Reviewed Peer Reviewed
Volume 33
Issue 4
Pages 467-469
APA6 Citation Pinto, C., Firth, A. M., Groeneveld, E. I., Guo, P., Sykes, N., & Murtagh, F. E. (2019). Patients’ views on care and their association with outcomes in palliative care. Palliative medicine, 33(4), 467-469. https://doi.org/10.1177/0269216319831383
DOI https://doi.org/10.1177/0269216319831383
Keywords Anesthesiology and Pain Medicine; General Medicine
Publisher URL https://journals.sagepub.com/doi/10.1177/0269216319831383

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This article is distributed under the terms of the Creative Commons Attribution-NonCommercial 4.0 License (http://www.creativecommons.org/licenses/by-nc/4.0/) which permits non-commercial use, reproduction and distribution of the work without further permission provided the original work is attributed as specified on the SAGE and Open Access pages (https://us.sagepub.com/en-us/nam/open-access-at-sage).





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