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The roles of dispositional coping style and social support in helping people with respiratory disease cope with a breathlessness crisis

Garcia, Maja Villanueva; Luckett, Tim; Johnson, Miriam; Hutchinson, Ann; Lal, Sara; Phillips, Jane

Authors

Maja Villanueva Garcia

Tim Luckett

Sara Lal

Jane Phillips



Abstract

Aim:
To explore the role of coping moderators in self-management of breathlessness crises by people with advanced respiratory disease.
Design:
A secondary analysis of semi-structured interview data.
Methods:
Interviews with patients who had advanced respiratory disease, chronic breathlessness and at least one experience where they considered presenting to Emergency but self-managed instead (a ‘near miss’). Participants were recruited from New South Wales, Queensland, Victoria, South Australia or Tasmania. Eligible caregivers were those who contributed to Emergency-related decision-making. Interviews were coded inductively, and then deductively against the coping moderators social support and dispositional coping style, defined by the Transactional Model of Stress and Coping.
Results:
Interviews were conducted between October 2015 and April 2016 with 20 patients and 3 caregivers. Social networks offered emotional and practical support but also had potential for conflict with patients’ ‘hardy’ coping style. Patient hardiness (characterized by a sense of ‘commitment’ and ‘challenge’) promoted a proactive approach to self-management but made some patients less willing to accept support. Information-seeking tendencies varied between patients and was sometimes shared with caregivers. An optimistic coping style appeared to be less equivocally beneficial.
Conclusion:
This study shows that social support and coping style may influence how people self-manage through their breathlessness crises and identified ways in which coping moderators can facilitate or hinder effective self-management.
Impact:
This study confers insights into how social-support and coping style can be supported and optimised to facilitate breathlessness self-management. Acknowledging coping moderator interactions is beneficial for developing resources and strategies that recognise patient mastery.
Key words: breathlessness, dyspnea, self-management, coping, nursing, social support, respiratory, emergency, qualitative 

Journal Article Type Article
Publication Date 2019-09
Print ISSN 0309-2402
Publisher Wiley
Peer Reviewed Peer Reviewed
Volume 75
Issue 9
Pages 1953-1965
APA6 Citation Garcia, M., Luckett, T., Johnson, M., Hutchinson, A., Lal, S., & Phillips, J. (2019). The roles of dispositional coping style and social support in helping people with respiratory disease cope with a breathlessness crisis. Journal of advanced nursing, 75(9), 1953-1965. https://doi.org/10.1111/jan.14039
DOI https://doi.org/10.1111/jan.14039
Keywords Breathlessness; Dyspnea; Self-management; Coping; Nursing; Social support; Respiratory; Emergency; Qualitative
Publisher URL https://onlinelibrary.wiley.com/doi/abs/10.1111/jan.14039?af=R

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