Maja Villanueva Garcia
The roles of dispositional coping style and social support in helping people with respiratory disease cope with a breathlessness crisis
Garcia, Maja Villanueva; Luckett, Tim; Johnson, Miriam; Hutchinson, Ann; Lal, Sara; Phillips, Jane
Professor Miriam Johnson Miriam.Johnson@hull.ac.uk
Dr Ann Hutchinson Ann.Hutchinson@hull.ac.uk
To explore the role of coping moderators in self-management of breathlessness crises by people with advanced respiratory disease.
A secondary analysis of semi-structured interview data.
Interviews with patients who had advanced respiratory disease, chronic breathlessness and at least one experience where they considered presenting to Emergency but self-managed instead (a ‘near miss’). Participants were recruited from New South Wales, Queensland, Victoria, South Australia or Tasmania. Eligible caregivers were those who contributed to Emergency-related decision-making. Interviews were coded inductively, and then deductively against the coping moderators social support and dispositional coping style, defined by the Transactional Model of Stress and Coping.
Interviews were conducted between October 2015 and April 2016 with 20 patients and 3 caregivers. Social networks offered emotional and practical support but also had potential for conflict with patients’ ‘hardy’ coping style. Patient hardiness (characterized by a sense of ‘commitment’ and ‘challenge’) promoted a proactive approach to self-management but made some patients less willing to accept support. Information-seeking tendencies varied between patients and was sometimes shared with caregivers. An optimistic coping style appeared to be less equivocally beneficial.
This study shows that social support and coping style may influence how people self-manage through their breathlessness crises and identified ways in which coping moderators can facilitate or hinder effective self-management.
This study confers insights into how social-support and coping style can be supported and optimised to facilitate breathlessness self-management. Acknowledging coping moderator interactions is beneficial for developing resources and strategies that recognise patient mastery.
Key words: breathlessness, dyspnea, self-management, coping, nursing, social support, respiratory, emergency, qualitative
|Journal Article Type||Article|
|Peer Reviewed||Peer Reviewed|
|APA6 Citation||Garcia, M., Luckett, T., Johnson, M., Hutchinson, A., Lal, S., & Phillips, J. (2019). The roles of dispositional coping style and social support in helping people with respiratory disease cope with a breathlessness crisis. Journal of advanced nursing, 75(9), 1953-1965. https://doi.org/10.1111/jan.14039|
|Keywords||Breathlessness; Dyspnea; Self-management; Coping; Nursing; Social support; Respiratory; Emergency; Qualitative|
©2019 The authors
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