Professor Miriam Johnson Miriam.Johnson@hull.ac.uk
Professor
The roles of dispositional coping style and social support in helping people with respiratory disease cope with a breathlessness crisis
Johnson, Miriam; Garcia, Maja Villanueva; Luckett, Tim; Hutchinson, Ann; Lal, Sara; Phillips, Jane
Authors
Maja Villanueva Garcia
Tim Luckett
Dr Ann Hutchinson Ann.Hutchinson@hull.ac.uk
Research Fellow
Sara Lal
Jane Phillips
Abstract
Aim: To explore the role of coping moderators in self-management of breathlessness crises by people with advanced respiratory disease. Design: A secondary analysis of semi-structured interview data. Methods: Interviews with patients who had advanced respiratory disease, chronic breathlessness and at least one experience where they considered presenting to Emergency but self-managed instead (a “near miss”). Participants were recruited from New South Wales, Queensland, Victoria, South Australia or Tasmania. Eligible caregivers were those who contributed to Emergency-related decision-making. Interviews were coded inductively and then deductively against the coping moderators social support and dispositional coping style, defined by the Transactional Model of Stress and Coping. Results: Interviews were conducted between October 2015 - April 2016 with 20 patients and three caregivers. Social networks offered emotional and practical support but also had potential for conflict with patients' ‘hardy’ coping style. Patient hardiness (characterized by a sense of ‘commitment’ and ‘challenge’) promoted a proactive approach to self-management but made some patients less willing to accept support. Information-seeking tendencies varied between patients and were sometimes shared with caregivers. An optimistic coping style appeared to be less equivocally beneficial. Conclusion: This study shows that social support and coping style may influence how people self-manage through their breathlessness crises and identified ways coping moderators can facilitate or hinder effective self-management. Impact: This study confers insights into how social-support and coping style can be supported and optimized to facilitate breathlessness self-management. Acknowledging coping moderator interactions is beneficial for developing resources and strategies that recognise patient mastery.
Citation
Johnson, M., Garcia, M. V., Luckett, T., Hutchinson, A., Lal, S., & Phillips, J. (2019). The roles of dispositional coping style and social support in helping people with respiratory disease cope with a breathlessness crisis. Journal of advanced nursing, 75(9), 1953-1965. https://doi.org/10.1111/jan.14039
Journal Article Type | Article |
---|---|
Acceptance Date | Apr 2, 2019 |
Online Publication Date | Apr 22, 2019 |
Publication Date | 2019-09 |
Deposit Date | Apr 17, 2019 |
Publicly Available Date | Apr 23, 2020 |
Journal | Journal of Advanced Nursing |
Print ISSN | 0309-2402 |
Electronic ISSN | 1365-2648 |
Publisher | Wiley |
Peer Reviewed | Peer Reviewed |
Volume | 75 |
Issue | 9 |
Pages | 1953-1965 |
DOI | https://doi.org/10.1111/jan.14039 |
Keywords | Breathlessness; Dyspnea; Self-management; Coping; Nursing; Social support; Respiratory; Emergency; Qualitative |
Public URL | https://hull-repository.worktribe.com/output/1612296 |
Publisher URL | https://onlinelibrary.wiley.com/doi/abs/10.1111/jan.14039?af=R |
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©2019 The authors
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