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Feasibility and acceptability evaluation of the PRIDE (Promoting Independence in Dementia) intervention for living well with dementia

Csipke, Emese; Moniz-Cook, Esme; Leung, Phuong; Yates, Lauren; Birt, Linda; Walton, Holly; Hogervorst, Eef; Mountain, Gail; Charlesworth, Georgina; Orrell, Martin

Authors

Emese Csipke

Professor Esme Moniz-Cook E.D.Moniz-Cook@hull.ac.uk
Professor of Clinical Psychology of Ageing and Dementia Care Research/ Dementia Research Work Group Lead

Phuong Leung

Lauren Yates

Linda Birt

Holly Walton

Eef Hogervorst

Gail Mountain

Georgina Charlesworth

Martin Orrell



Abstract

Objectives: Post-diagnostic psychosocial interventions could play an important role in supporting people with mild dementia remain independent. The PRIDE intervention was developed to address this.
Method: The mixed methods non-randomised, pre-post feasibility study occurred across England. Facilitators were recruited from the voluntary sector and memory services. Participants and their supporters took part in the 3-session intervention. Outcome measures were collected at baseline and follow-up. To evaluate acceptability, focus groups and interviews were conducted with a sub-sample of participants and facilitators.
Results: Contextual challenges to delivery including national research governance changes, affecting recruitment of study sites. Thirty-four dyads consented, with 14 facilitators providing the intervention. Dyads took part in at least two sessions (79%), and 73% in all three. Outcome measures were completed by 79% without difficulty, with minimal missing data. No significant changes were found on pre and post assessments. Post-hoc analysis found moderate effect size improvements for self-management (SMAS instrument) in people with dementia (d=0 .41) and quality of life (EQ5D measure) in carers (d=0.40). Qualitative data indicated that dyads found PRIDE acceptable, as did intervention facilitators.
Conclusions: The 3-session intervention was well accepted by participant-dyads and intervention facilitators. A randomised controlled trial of PRIDE would need to carefully consider recruitment potential across geographically varied settings, and site-stratification according to knowledge of contextual factors, such as the diversity of post-diagnostic services across the country. Letting sites themselves be responsible for identifying suitable intervention facilitators was successful. The self-report measures showed potential to be included in the main trial.

Citation

Csipke, E., Moniz-Cook, E., Leung, P., Yates, L., Birt, L., Walton, H., …Orrell, M. (in press). Feasibility and acceptability evaluation of the PRIDE (Promoting Independence in Dementia) intervention for living well with dementia. International Psychogeriatrics, https://doi.org/10.1017/S1041610220001386

Journal Article Type Article
Acceptance Date Jun 19, 2020
Online Publication Date Aug 27, 2020
Deposit Date Jul 30, 2020
Publicly Available Date Feb 28, 2021
Journal International Psychogeriatrics
Print ISSN 1041-6102
Electronic ISSN 1741-203X
Publisher Cambridge University Press
Peer Reviewed Peer Reviewed
DOI https://doi.org/10.1017/S1041610220001386
Keywords Cognitive decline; Dementia; Psychosocial intervention; Research design and methodology; Community care
Public URL https://hull-repository.worktribe.com/output/3531079
Publisher URL https://www.cambridge.org/core/journals/international-psychogeriatrics/article/feasibility-and-acceptability-evaluation-of-the-promoting-independence-in-dementia-pride-intervention-for-living-well-with-dementia/367FD8B99BAB2ABC324B1AA95EFE242E

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