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Feasibility and acceptability evaluation of the PRIDE (Promoting Independence in Dementia) intervention for living well with dementia

Csipke, Emese; Moniz-Cook, Esme; Leung, Phuong; Yates, Lauren; Birt, Linda; Walton, Holly; Hogervorst, Eef; Mountain, Gail; Charlesworth, Georgina; Orrell, Martin

Authors

Emese Csipke

Professor Esme Moniz-Cook E.D.Moniz-Cook@hull.ac.uk
Professor of Clinical Psychology of Ageing and Dementia Care Research/ Dementia Research Work Group Lead

Phuong Leung

Lauren Yates

Linda Birt

Holly Walton

Eef Hogervorst

Gail Mountain

Georgina Charlesworth

Martin Orrell



Abstract

Objectives: Post-diagnostic psychosocial interventions could play an important role in supporting people with mild dementia remain independent. The PRIDE intervention was developed to address this.
Method: The mixed methods non-randomised, pre-post feasibility study occurred across England. Facilitators were recruited from the voluntary sector and memory services. Participants and their supporters took part in the 3-session intervention. Outcome measures were collected at baseline and follow-up. To evaluate acceptability, focus groups and interviews were conducted with a sub-sample of participants and facilitators.
Results: Contextual challenges to delivery including national research governance changes, affecting recruitment of study sites. Thirty-four dyads consented, with 14 facilitators providing the intervention. Dyads took part in at least two sessions (79%), and 73% in all three. Outcome measures were completed by 79% without difficulty, with minimal missing data. No significant changes were found on pre and post assessments. Post-hoc analysis found moderate effect size improvements for self-management (SMAS instrument) in people with dementia (d=0 .41) and quality of life (EQ5D measure) in carers (d=0.40). Qualitative data indicated that dyads found PRIDE acceptable, as did intervention facilitators.
Conclusions: The 3-session intervention was well accepted by participant-dyads and intervention facilitators. A randomised controlled trial of PRIDE would need to carefully consider recruitment potential across geographically varied settings, and site-stratification according to knowledge of contextual factors, such as the diversity of post-diagnostic services across the country. Letting sites themselves be responsible for identifying suitable intervention facilitators was successful. The self-report measures showed potential to be included in the main trial.

Journal Article Type Article
Journal International Psychogeriatrics
Print ISSN 1041-6102
Publisher Cambridge University Press (CUP)
Peer Reviewed Peer Reviewed
APA6 Citation Csipke, E., Moniz-Cook, E., Leung, P., Yates, L., Birt, L., Walton, H., …Orrell, M. (in press). Feasibility and acceptability evaluation of the PRIDE (Promoting Independence in Dementia) intervention for living well with dementia. International Psychogeriatrics, https://doi.org/10.1017/S1041610220001386
DOI https://doi.org/10.1017/S1041610220001386
Keywords Cognitive decline; Dementia; Psychosocial intervention; Research design and methodology; Community care
Publisher URL https://www.cambridge.org/core/journals/international-psychogeriatrics/article/feasibility-and-acceptability-evaluation-of-the-promoting-independence-in-dementia-pride-intervention-for-living-well-with-dementia/367FD8B99BAB2ABC324B1AA95EFE242E
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