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Illness identity as an important component of candidacy: Contrasting experiences of help-seeking and access to care in cancer and heart disease

Macleod, Una; Blane, David; Browne, Susan; Conway, Ellie; Macdonald, Sara; Mair, Frances; May, Carl

Authors

David Blane

Susan Browne

Ellie Conway

Sara Macdonald

Frances Mair

Carl May



Abstract

How and when we use health services or healthcare provision has dominated exploration of and debates around healthcare access. Levels of utilisation are assumed as a proxy for access. Yet, focusing on utilisation conceals an important aspect of the access conundrum: the relationships that patients and potential patients have with the healthcare system and the professionals within those systems. Candidacy has been proposed as an antidote to traditional utilisation models. The Candidacy construct offers the ability to include patient-professional aspects alongside utilisation and thus promotes a deeper understanding of access. Originally applied to healthcare access for vulnerable populations, additional socio-demographic factors, including age and ethnicity, have also been shown to influence the Candidacy process. Here we propose a further extension of the Candidacy construct and illustrate the importance of illness identities when accessing healthcare. Drawing on a secondary data analysis of three data sets of qualitative interviews from colorectal cancer and heart failure patients we found that though similar access issues are apparent pre-diagnosis, diagnosis marks a critical juncture in the experience of access. Cancer patients describe a person-centred responsive healthcare system where their patienthood requires only modest assertion. Cancer speaks for itself. In marked contrast heart failure patients, describe struggling within a seemingly impermeable system to understand their illness, its implications and their own legitimacy as patients. Our work highlights the pressing need for healthcare professionals, systems and policies to promote a person centred approach, which is responsive and timely, regardless of illness category. To achieve this, attitudes regarding the importance or priority afforded to different categories of illness need to be tackled as they directly influence ideas of Candidacy and consequently access and experiences of care.

Citation

Macleod, U., Blane, D., Browne, S., Conway, E., Macdonald, S., Mair, F., & May, C. (2016). Illness identity as an important component of candidacy: Contrasting experiences of help-seeking and access to care in cancer and heart disease. Social science & medicine, 168, 101-110. https://doi.org/10.1016/j.socscimed.2016.08.022

Acceptance Date Aug 16, 2016
Online Publication Date Aug 18, 2016
Publication Date Nov 1, 2016
Deposit Date Sep 21, 2016
Publicly Available Date Sep 21, 2016
Journal Social science & medicine
Print ISSN 0277-9536
Electronic ISSN 1873-5347
Publisher Elsevier
Peer Reviewed Peer Reviewed
Volume 168
Pages 101-110
DOI https://doi.org/10.1016/j.socscimed.2016.08.022
Keywords United Kingdom, Candidacy, Illness identities, Access, Cancer, Heart failure, Secondary analysis
Public URL https://hull-repository.worktribe.com/output/443292
Publisher URL http://www.sciencedirect.com/science/article/pii/S0277953616304440
Copyright Statement ©2016 The University of Hull.
Additional Information Authors' accepted manuscript of article published in: Social science & medicine, 2016, v.168.

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Publisher Licence URL
http://creativecommons.org/licenses/by-nc-nd/4.0/

Copyright Statement
©2016 The University of Hull.





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