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A comprehensive model of factors associated with capability to "live well" for family caregivers of people living with mild-to-moderate dementia: Findings from the ideal study

Clare, Linda; Wu, Yu Tzu; Quinn, Catherine; Jones, Ian R.; Victor, Christina R.; Nelis, Sharon M.; Martyr, Anthony; Litherland, Rachael; Pickett, James A.; Hindle, John V.; Jones, Roy W.; Knapp, Martin; Kopelman, Michael D.; Morris, Robin G.; Rusted, Jennifer M.; Thom, Jeanette M.; Lamont, Ruth A.; Henderson, Catherine; Rippon, Isla; Hillman, Alexandra; Matthews, Fiona E.

Authors

Linda Clare

Yu Tzu Wu

Catherine Quinn

Ian R. Jones

Christina R. Victor

Sharon M. Nelis

Anthony Martyr

Rachael Litherland

James A. Pickett

John V. Hindle

Roy W. Jones

Martin Knapp

Michael D. Kopelman

Robin G. Morris

Jennifer M. Rusted

Jeanette M. Thom

Ruth A. Lamont

Catherine Henderson

Isla Rippon

Alexandra Hillman



Abstract

Introduction: Understanding key influences on outcomes for caregivers of people with dementia is hampered by inconsistent conceptualization and measurement of outcomes and limited evidence about the relative impact of different variables. We aimed to address these issues. Methods: We analyzed data from 1283 caregivers of communitydwelling individuals with mild-to-moderate dementia in the Improving the experience of Dementia and Enhancing Active Life cohort study. We generated a "living well" latent factor from measures of quality of life, satisfaction with life, and well-being. We used structural equation modelling to derive latent variables for 7 domains reflecting caregivers' perceptions of their personal resources and experiences, and to examine the associations with caregivers' perceptions of their capability to "live well." Results: The domain of psychological characteristics and psychological health was most strongly related to living well [2.53; 95% confidence interval (CI), 2.08-2.97], followed by physical fitness and physical health (1.48; 95% CI, 1.04-1.91) and experiencing caregiving (1.34; 95% CI, 0.99-1.70). Social capitals, assets and resources (0.68; 95% CI, 0.35-1.00) and relationship with the person with dementia (-0.22; 95% CI,-0.41 to-0.03) had smaller, significant associations. Social location (0.28; 95% CI,-0.33 to 0.89) and managing everyday life with dementia (0.06; 95% CI,-0.15 to 0.28) were not significantly associated with living well. Discussion: These findings demonstrate the importance of supporting caregivers' psychological and physical health and their ability to develop and maintain positive coping strategies, as well as enabling them to maintain vital social capitals, assets and resources.

Citation

Clare, L., Wu, Y. T., Quinn, C., Jones, I. R., Victor, C. R., Nelis, S. M., …Matthews, F. E. (2019). A comprehensive model of factors associated with capability to "live well" for family caregivers of people living with mild-to-moderate dementia: Findings from the ideal study. Alzheimer Disease and Associated Disorders, 33(1), 29-35. https://doi.org/10.1097/WAD.0000000000000285

Journal Article Type Article
Publication Date Jan 1, 2019
Deposit Date Dec 8, 2023
Journal Alzheimer Disease and Associated Disorders
Print ISSN 0893-0341
Publisher Lippincott, Williams & Wilkins
Volume 33
Issue 1
Pages 29-35
DOI https://doi.org/10.1097/WAD.0000000000000285
Public URL https://hull-repository.worktribe.com/output/4452389