Isla Rippon
Dyadic perspectives on loneliness and social isolation among people with dementia and spousal carers: findings from the IDEAL programme
Rippon, Isla; Victor, Christina R.; Martyr, Anthony; Matthews, Fiona E.; Quinn, Catherine; Rusted, Jennifer M.; Jones, Roy W.; Collins, Rachel; van Horik, Jayden; Pentecost, Claire; Allan, Louise; Clare, Linda
Authors
Christina R. Victor
Anthony Martyr
Professor Fiona Matthews F.Matthews@hull.ac.uk
Pro-Vice-Chancellor Research and Enterprise
Catherine Quinn
Jennifer M. Rusted
Roy W. Jones
Rachel Collins
Jayden van Horik
Claire Pentecost
Louise Allan
Linda Clare
Abstract
Objectives: This study aims to investigate the impact of self and partner experiences of loneliness and social isolation on life satisfaction in people with dementia and their spousal carers. Methods: We used data from 1042 dementia caregiving dyads in the Improving the experience of Dementia and Enhancing Active Life (IDEAL) programme cohort. Loneliness was measured using the six-item De Jong Gierveld loneliness scale and social isolation using the six-item Lubben Social Network Scale. Data were analysed using the Actor-Partner Interdependence Model framework. Results: Self-rated loneliness was associated with poorer life satisfaction for both people with dementia and carers. The initial partner effects observed between the loneliness of the carer and the life satisfaction of the person with dementia and between social isolation reported by the person with dementia and life satisfaction of the carer were reduced to nonsignificance once the quality of the relationship between them was considered. Discussion: Experiencing greater loneliness and social isolation is linked with reduced life satisfaction for people with dementia and carers. However, having a positive view of the quality of the relationship between them reduced the impact of loneliness and social isolation on life satisfaction. Findings suggest the need to consider the experiences of both the person with dementia and the carer when investigating the impact of loneliness and social isolation. Individual interventions to mitigate loneliness or isolation may enhance life satisfaction for both partners and not simply the intervention recipient.
Citation
Rippon, I., Victor, C. R., Martyr, A., Matthews, F. E., Quinn, C., Rusted, J. M., Jones, R. W., Collins, R., van Horik, J., Pentecost, C., Allan, L., & Clare, L. (in press). Dyadic perspectives on loneliness and social isolation among people with dementia and spousal carers: findings from the IDEAL programme. Aging and Mental Health, 1-9. https://doi.org/10.1080/13607863.2023.2286618
Journal Article Type | Article |
---|---|
Acceptance Date | Dec 3, 2023 |
Online Publication Date | Dec 11, 2023 |
Deposit Date | Dec 12, 2023 |
Publicly Available Date | Dec 14, 2023 |
Journal | Aging and Mental Health |
Print ISSN | 1360-7863 |
Publisher | Routledge |
Peer Reviewed | Peer Reviewed |
Pages | 1-9 |
DOI | https://doi.org/10.1080/13607863.2023.2286618 |
Keywords | Psychiatry and Mental health; Geriatrics and Gerontology; Gerontology; Pshychiatric Mental Health |
Public URL | https://hull-repository.worktribe.com/output/4482233 |
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Copyright Statement
© 2023 The Author(s). Published by Informa UK Limited, trading as Taylor & Francis Group. This is an Open Access article distributed under the terms of the Creative Commons Attribution License (http://creativecommons.org/licenses/by/4.0/), which permits unrestricted use, distribution, and reproduction in any medium, provided the original work is properly cited. The terms on which this article has been published allow the posting of the Accepted Manuscript in a repository by the author(s) or with their consent.
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