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Towards an expert consensus to delineate a clinical syndrome of chronic breathlessness

Currow, David C.; Johnson, Miriam J.; Yorke, Janelle; Hansen-Flaschen, John; Lansing, Robert; Ekström, Magnus; Similowski, Thomas; Currow, David

Authors

David C. Currow

Janelle Yorke

John Hansen-Flaschen

Robert Lansing

Magnus Ekström

Thomas Similowski

David Currow



Abstract

Copyright ©ERS 2017. Breathlessness that persists despite treatment for the underlying conditions is debilitating. Identifying this discrete entity as a clinical syndrome should raise awareness amongst patients, clinicians, service providers, researchers and research funders.Using the Delphi method, questions and statements were generated via expert group consultations and one-to-one interviews (n=17). These were subsequently circulated in three survey rounds (n=34, n=25, n=31) to an extended international group from various settings (clinical and laboratory; hospital, hospice and community) and working within the basic sciences and clinical specialties. The a priori target agreement for each question was 70%. Findings were discussed at a multinational workshop.The agreed term, chronic breathlessness syndrome, was defined as breathlessness that persists despite optimal treatment of the underlying pathophysiology and that results in disability. A stated duration was not needed for "chronic". Key terms for French and German translation were also discussed and the need for further consensus recognised, especially with regard to cultural and linguistic interpretation.We propose criteria for chronic breathlessness syndrome. Recognition is an important first step to address the therapeutic nihilism that has pervaded this neglected symptom and could empower patients and caregivers, improve clinical care, focus research, and encourage wider uptake of available and emerging evidence-based interventions.

Journal Article Type Article
Publication Date May 1, 2017
Journal European respiratory journal
Print ISSN 0903-1936
Electronic ISSN 1399-3003
Publisher European Respiratory Society
Peer Reviewed Peer Reviewed
Volume 49
Issue 5
Article Number 1602277
APA6 Citation Johnson, M. J., Yorke, J., Hansen-Flaschen, J., Lansing, R., Ekström, M., Similowski, T., & Currow, D. (2017). Towards an expert consensus to delineate a clinical syndrome of chronic breathlessness. The European respiratory journal, 49(5), doi:10.1183/13993003.02277-2016
DOI https://doi.org/10.1183/13993003.02277-2016
Keywords Chronic breathlessness
Publisher URL http://erj.ersjournals.com/content/49/5/1602277
Additional Information This is a description of an article published in: European respiratory journal, 2017, v.49 issue 5.

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