Planning for the future: Exploring the experiences of older carers of adult children with a learning disability

Deville, Jane; Davies, Helen; Kane, Ros; Nelson, David; Mansfield, Paul

Abstract

There are a large number of adults with learning disabilities who live with and are cared for by their parents. There is a need for interventions to support older carers with their caring role and to plan for a time when they can no longer continue caring. This research looked at a local support service in England that aimed to support carers over 55 who had an adult child with a learning disability living at home. Twelve carers were interviewed individually. The study highlights the unmet needs of older family carers and shows the value of support from a carer perspective. Abstract: Background: There are a significant number of adults with a learning disability who live with and are cared for by their parents. There is a pressing need for interventions to support older parent carers with their role and to plan for a time when they can no longer continue caring. This article reports on the experiences of older parent carers who have been in receipt of an intervention to support future planning, in a rural part of England, delivered to older carers of their adult children with learning disabilities. Methods: Semi-structured carer interviews (n = 12) were conducted and analysed thematically. Results: Four themes were identified (a) emotional needs of carer, (b) future planning, (c) accessing other services and resources and (d) links to adult care services. Carers welcomed the flexibility of the intervention and its focus on support for them, relieving their sense of isolation. Conclusions: The research highlights the unmet needs of older family carers and shows the value of tailored support from a carer perspective. The findings have implications for national social care provision delivered to carers of adult children with learning disabilities in rural areas.

Citation

Deville, J., Davies, H., Kane, R., Nelson, D., & Mansfield, P. (2019). Planning for the future: Exploring the experiences of older carers of adult children with a learning disability. British Journal of Learning Disabilities, 47(3), 208-214. https://doi.org/10.1111/bld.12279

• Journal Article Type: Article
• Acceptance Date: May 15, 2019
• Online Publication Date: Jun 6, 2019
• Publication Date: Sep 1, 2019
• Deposit Date: Feb 20, 2025
• Journal: British Journal of Learning Disabilities
• Print ISSN: 1354-4187
• Publisher: Wiley
• Peer Reviewed: Peer Reviewed
• Volume: 47
• Issue: 3
• Pages: 208-214
• DOI: https://doi.org/10.1111/bld.12279
• Keywords: Care management; Disabled children; Family support; Parenting
• Public URL: https://hull-repository.worktribe.com/output/5041876
• Other Repo URL: https://hdl.handle.net/10779/lincoln.24376768.v4