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All Outputs (431)

Pulmonary rehabilitation, physical activity, respiratory failure and palliative respiratory care (2019)
Journal Article
Spruit, M. A., Rochester, C. L., Pitta, F., Kenn, K., Schols, A. M., Hart, N., Wouters, E. F. M., Nava, S., Dreher, M., Janssen, D. J. A., Johnson, M. J., Curtis, R. J., Sastry, M., & Franssen, F. M. E. (2019). Pulmonary rehabilitation, physical activity, respiratory failure and palliative respiratory care. Thorax, 74(7), 693-699. https://doi.org/10.1136/thoraxjnl-2018-212044

© Author(s) (or their employer(s)) 2019. No commercial re-use. See rights and permissions. Published by BMJ. The CIRO Academy in Horn (the Netherlands) organised a 2-day meeting to present and discuss the studies published in 2017 pertaining to key p... Read More about Pulmonary rehabilitation, physical activity, respiratory failure and palliative respiratory care.

Airflow relieves chronic breathlessness in people with advanced disease: an exploratory systematic review and meta-analyses (2019)
Journal Article
Swan, F., Newey, A., Bland, M., Allgar, V., Booth, S., Bausewein, C., Yorke, J., & Johnson, M. (2019). Airflow relieves chronic breathlessness in people with advanced disease: an exploratory systematic review and meta-analyses. Palliative medicine, 33(6), 618-633. https://doi.org/10.1177/0269216319835393

Background: Chronic breathlessness is a neglected symptom of advanced diseases. Aim: To examine the effect of airflow for chronic breathlessness relief. Design: Exploratory systematic review and meta-analysis. Data sources: Medline, CINAHL, AMED and... Read More about Airflow relieves chronic breathlessness in people with advanced disease: an exploratory systematic review and meta-analyses.

Delirium management by palliative medicine specialists: a survey from the association for palliative medicine of Great Britain and Ireland (2019)
Journal Article
Boland, J. W., Kabir, M., Bush, S. H., Spiller, J. A., Johnson, M. J., Agar, M., & Lawlor, P. (in press). Delirium management by palliative medicine specialists: a survey from the association for palliative medicine of Great Britain and Ireland. BMJ supportive & palliative care, bmjspcare-2018-001586. https://doi.org/10.1136/bmjspcare-2018-001586

Objectives Delirium is common in palliative care settings. Management includes detection, treatment of cause(s), non-pharmacological interventions and family support; strategies which are supported with varying levels of evidence. Emerging evidence s... Read More about Delirium management by palliative medicine specialists: a survey from the association for palliative medicine of Great Britain and Ireland.

Optimising feedback for early career professionals: a scoping review and new framework (2019)
Journal Article
Mattick, K., Brennan, N., Briscoe, S., Papoutsi, C., & Pearson, M. (2019). Optimising feedback for early career professionals: a scoping review and new framework. Medical Education, 53(4), 355-368. https://doi.org/10.1111/medu.13794

© 2019 John Wiley & Sons Ltd and The Association for the Study of Medical Education Context: Meta-analyses have shown that feedback can be a powerful intervention to increase learning and performance but there is significant variability in impact.... Read More about Optimising feedback for early career professionals: a scoping review and new framework.

Patients’ views on care and their association with outcomes in palliative care (2019)
Journal Article
Pinto, C., Firth, A. M., Groeneveld, E. I., Guo, P., Sykes, N., & Murtagh, F. E. (2019). Patients’ views on care and their association with outcomes in palliative care. Palliative medicine, 33(4), 467-469. https://doi.org/10.1177/0269216319831383

When patients face advanced illness, their experience of care is especially important. In palliative care, we often rely on the accounts of bereaved relatives to report the quality of end-of-life care, and there are no validated patient-reported meas... Read More about Patients’ views on care and their association with outcomes in palliative care.

Parental life-limiting illness: What do we tell the children? (2019)
Journal Article
Fearnley, R., & Boland, J. W. (2019). Parental life-limiting illness: What do we tell the children?. Healthcare, 7(1), 47. https://doi.org/10.3390/healthcare7010047

Being diagnosed with and having a life-limiting illness is a stressful experience which is compounded when the patient has dependent children. An important aspect of the patient’s psychosocial care should include recognition that their children are a... Read More about Parental life-limiting illness: What do we tell the children?.

The hand-held fan and the Calming Hand for people with chronic breathlessness: a feasibility trial (2019)
Journal Article
Swan, F., English, A., Allgar, V., Hart, S. P., & Johnson, M. J. (2019). The hand-held fan and the Calming Hand for people with chronic breathlessness: a feasibility trial. Journal of pain and symptom management, 57(6), 1051-1061.e1. https://doi.org/10.1016/j.jpainsymman.2019.02.017

Context: The battery-operated hand-held fan (“fan”)and the Calming Hand (CH), a cognitive strategy, are interventions used in clinical practice to relieve chronic breathlessness. Objective: To test the feasibility of a Phase III randomized controlled... Read More about The hand-held fan and the Calming Hand for people with chronic breathlessness: a feasibility trial.

How can training in care of the dying be improved? (2019)
Journal Article
Gajebasia, S., Pearce, J., Redman, M., Johnson, M., & Finn, G. (2019). How can training in care of the dying be improved?. Clinical Teacher, 16(6), 610-614. https://doi.org/10.1111/tct.12999

Background: Care of the dying patient is an intrinsic part of the role of Foundation Year doctors (FYs). This study aimed to explore FYs’ experiences of training and their perceived training needs for their role in care of the dying. Care of the dyin... Read More about How can training in care of the dying be improved?.

Haematology nurses' perspectives of their patients' places of care and death: a UK qualitative interview study (2019)
Journal Article
McCaughan, D., Roman, E., Smith, A. G., Garry, A. C., Johnson, M. J., Patmore, R. D., Howard, M. R., & Howell, D. A. (2019). Haematology nurses' perspectives of their patients' places of care and death: a UK qualitative interview study. European journal of oncology nursing, 39, 70-80. https://doi.org/10.1016/j.ejon.2019.02.003

Purpose: Patients with haematological malignancies are more likely to die in hospital, and less likely to access palliative care than people with other cancers, though the reasons for this are not well understood. The purpose of our study was to expl... Read More about Haematology nurses' perspectives of their patients' places of care and death: a UK qualitative interview study.

The views and experiences of older people with conservatively managed renal failure: A qualitative study of communication, information and decision-making (2019)
Journal Article
Selman, L. E., Bristowe, K., Higginson, I. J., & Murtagh, F. E. M. (2019). The views and experiences of older people with conservatively managed renal failure: A qualitative study of communication, information and decision-making. BMC Nephrology, 20(1), 1-12. https://doi.org/10.1186/s12882-019-1230-4

Background: Older people with advanced kidney disease require information and support from clinicians when deciding whether to have dialysis or conservative (non-dialysis) care. There is evidence that communication practices, information provision an... Read More about The views and experiences of older people with conservatively managed renal failure: A qualitative study of communication, information and decision-making.

Prevalence, symptom burden, and natural history of deep vein thrombosis in people with advanced cancer in specialist palliative care units (HIDDen): a prospective longitudinal observational study (2019)
Journal Article
White, C., Noble, S. I. R., Watson, M., Swan, F., Allgar, V. L., Napier, E., Nelson, A., McAuley, J., Doherty, J., Lee, B., & Johnson, M. J. (2019). Prevalence, symptom burden, and natural history of deep vein thrombosis in people with advanced cancer in specialist palliative care units (HIDDen): a prospective longitudinal observational study. The Lancet Haematology, 6(2), e79-e88. https://doi.org/10.1016/S2352-3026%2818%2930215-1

© 2019 The Author(s). Published by Elsevier Ltd. This is an Open Access article under the CC BY-NC-ND 4.0 license Background: The prevalence of deep venous thrombosis in patients with advanced cancer is unconfirmed and it is unknown whether current i... Read More about Prevalence, symptom burden, and natural history of deep vein thrombosis in people with advanced cancer in specialist palliative care units (HIDDen): a prospective longitudinal observational study.

Twelve tips for developing palliative care teaching in an undergraduate curriculum for medical students (2019)
Journal Article
Boland, J. W., Barclay, S., & Gibbins, J. (2019). Twelve tips for developing palliative care teaching in an undergraduate curriculum for medical students. Medical Teacher, 41(12), 1359-1365. https://doi.org/10.1080/0142159X.2018.1533243

Palliative care is the holistic care of patients with advanced, progressive incurable illness. Palliative care is well recognized as an essential component of medical student curricula. However, teaching is variable within medical schools. Using curr... Read More about Twelve tips for developing palliative care teaching in an undergraduate curriculum for medical students.

Time intervals from first symptom to diagnosis for head and neck cancers: An analysis of linked patient reports and medical records from the UK (2019)
Journal Article
Allgar, V. L., Oliver, S. E., Chen, H., Oviasu, O., Johnson, M. J., & Macleod, U. (2019). Time intervals from first symptom to diagnosis for head and neck cancers: An analysis of linked patient reports and medical records from the UK. Cancer epidemiology, 59, 37-45. https://doi.org/10.1016/j.canep.2019.01.008

© 2019 Elsevier Ltd Background: England has significantly higher mortality risks due to Head and Neck Cancer (HNC) compared with other European countries. Early diagnosis is important as it is likely to increase early-stage diagnosis and improve surv... Read More about Time intervals from first symptom to diagnosis for head and neck cancers: An analysis of linked patient reports and medical records from the UK.

Alteration in endothelial permeability occurs in response to the activation of PAR2 by factor Xa but not directly by the TF-factor VIIa complex (2019)
Journal Article
Benelhaj, N. E., Maraveyas, A., Featherby, S., Collier, M. E., Johnson, M. J., & Ettelaie, C. (2019). Alteration in endothelial permeability occurs in response to the activation of PAR2 by factor Xa but not directly by the TF-factor VIIa complex. Thrombosis Research, 175, 13-20. https://doi.org/10.1016/j.thromres.2019.01.009

Alterations in the endothelial permeability occur in response to the activation of coagulation mechanisms in order to control clot formation. The activation of the protease activated receptors (PAR) can induce signals that regulate such cellular resp... Read More about Alteration in endothelial permeability occurs in response to the activation of PAR2 by factor Xa but not directly by the TF-factor VIIa complex.

Agreement between breathlessness severity and unpleasantness in people with chronic breathlessness: A longitudinal clinical study (2019)
Journal Article
Ekström, M., Williams, M., Johnson, M. J., Huang, C., & Currow, D. C. (2019). Agreement between breathlessness severity and unpleasantness in people with chronic breathlessness: A longitudinal clinical study. Journal of pain and symptom management, 57(4), 715-723.e5. https://doi.org/10.1016/j.jpainsymman.2019.01.001

Context: Chronic breathlessness is a cardinal symptom in cardiopulmonary disease where both overall intensity or severity (S) and unpleasantness (U) are commonly quantified. Objective: We aimed to evaluate agreement between breathlessness severity an... Read More about Agreement between breathlessness severity and unpleasantness in people with chronic breathlessness: A longitudinal clinical study.

Update on the pathophysiology of cluster headache: Imaging and neuropeptide studies (2019)
Journal Article
Buture, A., Boland, J. W., Dikomitis, L., & Ahmed, F. (2019). Update on the pathophysiology of cluster headache: Imaging and neuropeptide studies. Journal of Pain Research, 12, 269-281. https://doi.org/10.2147/JPR.S175312

Objective: Cluster headache (CH) is the most severe primary headache condition. Its pathophysiology is multifaceted and incompletely understood. This review brings together the latest neuroimaging and neuropeptide evidence on the pathophysiology of C... Read More about Update on the pathophysiology of cluster headache: Imaging and neuropeptide studies.

Identifying potentially inappropriate prescribing in older people with dementia: a systematic review (2019)
Journal Article
Hukins, D., Macleod, U., & Boland, J. W. (2019). Identifying potentially inappropriate prescribing in older people with dementia: a systematic review. European Journal of Clinical Pharmacology, 75(4), 467-481. https://doi.org/10.1007/s00228-018-02612-x

Purpose: Older people with dementia are at risk of adverse events associated with potentially inappropriate prescribing. Aim: to describe (1) how international tools designed to identify potentially inappropriate prescribing have been used in studies... Read More about Identifying potentially inappropriate prescribing in older people with dementia: a systematic review.

Invisible and intangible illness: A qualitative interview study of patients’ experiences and understandings of conservatively managed end-stage kidney disease (2019)
Journal Article
Bristowe, K., Selman, L. E., Higginson, I. J., & Murtagh, F. E. (2019). Invisible and intangible illness: A qualitative interview study of patients’ experiences and understandings of conservatively managed end-stage kidney disease. Annals of palliative medicine, 8(2), 121-129. https://doi.org/10.21037/apm.2018.12.06

Background: Increasing numbers of older adults are living with kidney disease. For those with comorbidities, conservative management of end-stage kidney disease is a viable option: dialysis may afford limited or no survival benefit, and perceived bur... Read More about Invisible and intangible illness: A qualitative interview study of patients’ experiences and understandings of conservatively managed end-stage kidney disease.