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All Outputs (470)

Strategies to address the shortcomings of commonly used advanced chronic heart failure descriptors to improve recruitment in palliative care research: A parallel mixed-methods feasibility study (2017)
Journal Article
Kane, P. M., Murtagh, F. E., Ryan, K. R., Brice, M., Mahon, N. G., McAdam, B., McQuillan, R., O’Gara, G., Raleigh, C., Tracey, C., Howley, C., Higginson, I. J., Daveson, B. A., & on behalf of BuildCARE. (2018). Strategies to address the shortcomings of commonly used advanced chronic heart failure descriptors to improve recruitment in palliative care research: A parallel mixed-methods feasibility study. Palliative medicine, 32(2), 517-524. https://doi.org/10.1177/0269216317706426

Background:
Recruitment challenges contribute to the paucity of palliative care research with advanced chronic heart failure patients.

Aim:
To describe the challenges and outline strategies of recruiting advanced chronic heart failure patients.

Des... Read More about Strategies to address the shortcomings of commonly used advanced chronic heart failure descriptors to improve recruitment in palliative care research: A parallel mixed-methods feasibility study.

Towards an expert consensus to delineate a clinical syndrome of chronic breathlessness (2017)
Journal Article
Johnson, M. J., Yorke, J., Hansen-Flaschen, J., Lansing, R., Ekström, M., Similowski, T., & Currow, D. (2017). Towards an expert consensus to delineate a clinical syndrome of chronic breathlessness. European respiratory journal, 49(5), Article 1602277. https://doi.org/10.1183/13993003.02277-2016

Copyright ©ERS 2017. Breathlessness that persists despite treatment for the underlying conditions is debilitating. Identifying this discrete entity as a clinical syndrome should raise awareness amongst patients, clinicians, service providers, researc... Read More about Towards an expert consensus to delineate a clinical syndrome of chronic breathlessness.

What influences the presentation of patients with chronic breathlessness to the Emergency Department? A mixed methods study (2017)
Thesis
Hutchinson, A. What influences the presentation of patients with chronic breathlessness to the Emergency Department? A mixed methods study. (Thesis). University of Hull. https://hull-repository.worktribe.com/output/497045

Background: Chronic breathlessness is a common and distressing symptom of many long-term cardiorespiratory conditions and cancers which are highly prevalent in both the UK and worldwide. It is associated with presentation to the emergency department... Read More about What influences the presentation of patients with chronic breathlessness to the Emergency Department? A mixed methods study.

A systematic review of the effectiveness of palliative interventions to treat rectal tenesmus in cancer (2017)
Journal Article
Ní Laoire, Á., Fettes, L., & Murtagh, F. E. (2017). A systematic review of the effectiveness of palliative interventions to treat rectal tenesmus in cancer. Palliative medicine, 31(10), 975-981. https://doi.org/10.1177/0269216317697897

Background:
Rectal tenesmus is a distressing symptom in patients with advanced cancer and challenging to treat. There is lack of consensus on the appropriate management of tenesmus in this patient population.

Aim:
To identify and examine the effecti... Read More about A systematic review of the effectiveness of palliative interventions to treat rectal tenesmus in cancer.

Chronic breathlessness associated with poorer physical and mental health-related quality of life (SF-12) across all adult age groups (2017)
Journal Article
Currow, D. C., Johnson, M. J., Dal Grande, E., Ekström, M., Ferreira, D., & McCaffrey, N. (2017). Chronic breathlessness associated with poorer physical and mental health-related quality of life (SF-12) across all adult age groups. Thorax, 72(12), 1151-1153. https://doi.org/10.1136/thoraxjnl-2016-209908

© 2017 Published by the BMJ Publishing Group Limited. Little is known about the impact of chronic breathlessness (modified Medical Research Council (mMRC) score ≥2 for most days, at least three of the last six months) on health-related quality of lif... Read More about Chronic breathlessness associated with poorer physical and mental health-related quality of life (SF-12) across all adult age groups.

Breathlessness and presentation to the emergency department: a survey and clinical record review (2017)
Journal Article
Hutchinson, A., Pickering, A., Williams, P., Bland, J. M., & Johnson, M. J. (2017). Breathlessness and presentation to the emergency department: a survey and clinical record review. BMC Pulmonary Medicine, 17(1), Article 53. https://doi.org/10.1186/s12890-017-0396-4

Background Breathlessness is a frequently occurring symptom of cardiorespiratory conditions and is a common cause of emergency department presentation. The aim of this study was to estimate the prevalence of acute-on-chronic breathlessness as a cause... Read More about Breathlessness and presentation to the emergency department: a survey and clinical record review.

Non-opioid medications for the relief of chronic breathlessness: current evidence (2017)
Journal Article
Barbetta, C., Currow, D. C., & Johnson, M. J. (2017). Non-opioid medications for the relief of chronic breathlessness: current evidence. Expert Review of Respiratory Medicine, 11(4), 333-341. https://doi.org/10.1080/17476348.2017.1305896

Introduction: To evaluate systematically randomised clinical trials investigating non-opioid medications for the management and treatment of chronic breathlessness. Areas covered: The evidence for the role of benzodiazepines, anxiolytics, selective s... Read More about Non-opioid medications for the relief of chronic breathlessness: current evidence.

Development of a patient-reported palliative care-specific health classification system: the POS-E (2017)
Journal Article
Murtagh, F. E. M., Murtagh, F. E., Dzingina, M., Higginson, I. J., McCrone, P., & Murtagh, F. (2017). Development of a patient-reported palliative care-specific health classification system: the POS-E. Patient, 10(3), 353-365. https://doi.org/10.1007/s40271-017-0224-1

Background

Generic preference-based measures are commonly used to estimate quality-adjusted life-years (QALYs) to inform resource-allocation decisions. However, concerns have been raised that generic measures may be inappropriate in palliative care.... Read More about Development of a patient-reported palliative care-specific health classification system: the POS-E.

A systematic review examining reducing unplanned hospital admissions in adults with cancer (2017)
Preprint / Working Paper
Walabyeki, J., Macleod, U., Johnson, M., Dyson, J., Oliver, S., Allgar, V., Oviasu, O., Chen, H., Smith, S., & Hammond, T. A systematic review examining reducing unplanned hospital admissions in adults with cancer

Review question:
1. What interventions have been tested and have successfully reduced unplanned hospital admissions in adults with cancer?

2. What are the factors associated with unplanned hospital admissions in adults with cancer?

Funding models in palliative care: lessons from international experience (2017)
Journal Article
Groeneveld, E. I., Cassel, J. B., Murtagh, F. E., Merino, T. G. B., Murtagh, F. E., Csikos, A., Haugen, D. F., Merino, T. G.-B., Swetenhaml, K., Furst, C. J., Groeneveld, E. I., Cassel, J. B., Bausewein, C., Csikós, Á., Krajnik, M., Ryan, K., Haugen, D. F., Eychmueller, S., Keller, H. G., Allan, S., …Murtagh, F. E. M. (2017). Funding models in palliative care: lessons from international experience. Palliative medicine, 31(4), 296-305. https://doi.org/10.1177/0269216316689015

Background:
Funding models influence provision and development of palliative care services. As palliative care integrates into mainstream health care provision, opportunities to develop funding mechanisms arise. However, little has been reported on w... Read More about Funding models in palliative care: lessons from international experience.

Clinical decision making in the recognition of dying: a qualitative interview study (2017)
Journal Article
Taylor, P., Dowding, D., & Johnson, M. (2017). Clinical decision making in the recognition of dying: a qualitative interview study. BMC Palliative Care, 16(11), Article ARTN 11. https://doi.org/10.1186/s12904-016-0179-3

Background: Recognising dying is an essential clinical skill for general and palliative care professionals alike. Despite the high importance, both identification and good clinical care of the dying patient remains extremely difficult and often contr... Read More about Clinical decision making in the recognition of dying: a qualitative interview study.

Opportunities, challenges and concerns for the implementation and uptake of pelvic floor muscle assessment and exercises during the childbearing years: Protocol for a critical interpretive synthesis (2017)
Journal Article
Salmon, V. E., Hay-Smith, E. J. C., Jarvie, R., Dean, S., Oborn, E., Bayliss, S. E., Bick, D., Davenport, C., Ismail, K. M., MacArthur, C., & Pearson, M. (2017). Opportunities, challenges and concerns for the implementation and uptake of pelvic floor muscle assessment and exercises during the childbearing years: Protocol for a critical interpretive synthesis. Systematic reviews, 6(1), Article 18. https://doi.org/10.1186/s13643-017-0420-z

© 2017 The Author(s). Background: Pregnancy and childbirth are important risk factors for urinary incontinence (UI) in women. Pelvic floor muscle exercises (PFME) are effective for prevention of UI. Guidelines for the management of UI recommend offer... Read More about Opportunities, challenges and concerns for the implementation and uptake of pelvic floor muscle assessment and exercises during the childbearing years: Protocol for a critical interpretive synthesis.

Palliative care and Parkinson's disease : meeting summary and recommendations for clinical research (2017)
Presentation / Conference Contribution
Kluger, B. M., Galifianakis, N. B., Carter, J. H., Johnson, M. J., Richfield, E. W., Kutner, J. S., Kluger, B., Fox, S., Timmons, S., Katz, M., Galifianakis, N., Subramanian, I., Carter, J., Johnson, M., Richfield, E., Bekelman, D., Kutner, J., & Miyasaki, J. Palliative care and Parkinson's disease : meeting summary and recommendations for clinical research

Introduction: Palliative care is an approach to caring for patients and families affected by serious illnesses that focuses on the relief of suffering through the management of medical symptoms, psychosocial issues, advance care planning and spiritua... Read More about Palliative care and Parkinson's disease : meeting summary and recommendations for clinical research.

On the appearance and reality of mind (2016)
Journal Article
Whiting, D. (2016). On the appearance and reality of mind. Journal of Mind and Behavior, 37(1), 47-70

According to what I will call the “appearance-is-reality doctrine of mind,” conscious mental states are identical to how they subjectively appear or present themselves to us in our experience of them. The doctrine has had a number of supporters but t... Read More about On the appearance and reality of mind.

Development of a caregiver-reported measure to support systematic assessment of people with dementia in long-term care: The Integrated Palliative care Outcome Scale for Dementia (2016)
Journal Article
Ellis-Smith, C., Evans, C. J., Murtagh, F. E., Henson, L. A., Firth, A. M., Higginson, I. J., Daveson, B. A., & BuildCARE, O. B. O. (2017). Development of a caregiver-reported measure to support systematic assessment of people with dementia in long-term care: The Integrated Palliative care Outcome Scale for Dementia. Palliative medicine, 31(7), 651-660. https://doi.org/10.1177/0269216316675096

Background:
Symptom burden is common for long-term care residents with dementia which if untreated compromises quality of life. Measurement tools can support assessment of symptoms and problems but are not widely used in long-term care settings. We d... Read More about Development of a caregiver-reported measure to support systematic assessment of people with dementia in long-term care: The Integrated Palliative care Outcome Scale for Dementia.

Somatostatin analogues compared to placebo and other pharmacological agents in the management of symptoms of inoperable malignant bowel obstruction: a systematic review (2016)
Journal Article
Obita, G. P., Boland, E. G., Currow, D. C., Johnson, M. J., & Boland, J. W. (2016). Somatostatin analogues compared to placebo and other pharmacological agents in the management of symptoms of inoperable malignant bowel obstruction: a systematic review. Journal of pain and symptom management, 52(6), 901-919. https://doi.org/10.1016/j.jpainsymman.2016.05.032

Context Somatostatin analogues are commonly used to relieve symptoms in malignant bowel obstruction (MBO) but are more expensive than other antisecretory agents. Objectives To evaluate the evidence of effectiveness of somatostatin analogues compared... Read More about Somatostatin analogues compared to placebo and other pharmacological agents in the management of symptoms of inoperable malignant bowel obstruction: a systematic review.

Clinically relevant concentrations of opioids for in vitro studies (2016)
Journal Article
Boland, J. W., & Pockley, A. G. (2016). Clinically relevant concentrations of opioids for in vitro studies. Journal of Opioid Management, 12(5), 313-321. https://doi.org/10.5055/jom.2016.0348

© 2016 Journal of Opioid Management, All Rights Reserved. Objectives: Numerous in vitro studies have evaluated the influence of opioids on many biological and immunological processes. The concentrations that have been used in these studies span a lar... Read More about Clinically relevant concentrations of opioids for in vitro studies.

Patient and carer experience of breathlessness (2016)
Book Chapter
Hutchinson, A. (2016). Patient and carer experience of breathlessness. In C. Bausewein, D. C. Currow, & M. J. Johnson (Eds.), Palliative Care in Respiratory Disease (102-110). European Respiratory Society. https://doi.org/10.1183/2312508X.10011615

© ERS 2016. Chronic breathlessness has wide-ranging, interrelated, physical, psychological, social and existential consequences for those living with it, and for family and friends who care for them. Despite this, the symptom often remains invisible... Read More about Patient and carer experience of breathlessness.