R. Harding
Enhancing validity, reliability and participation in self-reported health outcome measurement for children and young people: a systematic review of recall period, response scale format, and administration modality
Harding, R.; Bristowe, K.; Coombes, L.; Murtagh, F. E.M.; Chambers, L.; Bluebond-Langner, M.; Downing, J.; Fraser, L. K.; Aworinde, J.; Ellis-Smith, C.
Authors
K. Bristowe
L. Coombes
Professor Fliss Murtagh F.Murtagh@hull.ac.uk
Professor of Palliative Care
L. Chambers
M. Bluebond-Langner
J. Downing
L. K. Fraser
J. Aworinde
C. Ellis-Smith
Abstract
Introduction: Self-report is the gold standard for measuring children’s health-related outcomes. Design of such measures is complex and challenging. This review aims to systematically appraise the evidence on recall period, response scale format, mode of administration and approaches needed to enable children and young people < 19 years to participate in valid and reliable self-reporting of their health outcomes. Method: PsycInfo, Medline, CINAHL and Embase were searched from 1 January 1990 to 15 March 2020, and citation searching undertaken in Scopus. Articles were included if they were primary research or case reports of ≥ 3 participants reporting the following: recall period, response scale selection, administration modality. Quality was assessed using QualSyst, and results synthesised narratively. This review was conducted and reported according to PRISMA guidelines. Results: 81 of 13,215 retrieved articles met the inclusion criteria. Children < 5 years old cannot validly and reliably self-report health outcomes. Face scales demonstrate better psychometric properties than visual analogue or Likert scales. Computerised and paper scales generally show equivalent construct validity. Children prefer computerised measures. Children ≤ 7 years old think dichotomously so need two response options. Those > 8 years old can reliably use a 3-point scale. Conclusion: The results of this review have both clinical and research implications. They can be used to inform appropriate choice of PROM for use with CYP in the clinical setting. We also give eight recommendations for future development of self-reported outcome measures for children and young people.
Citation
Harding, R., Bristowe, K., Coombes, L., Murtagh, F. E., Chambers, L., Bluebond-Langner, M., …Ellis-Smith, C. (in press). Enhancing validity, reliability and participation in self-reported health outcome measurement for children and young people: a systematic review of recall period, response scale format, and administration modality. Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation, https://doi.org/10.1007/s11136-021-02814-4
Journal Article Type | Article |
---|---|
Acceptance Date | Mar 1, 2021 |
Online Publication Date | Mar 18, 2021 |
Deposit Date | Apr 12, 2021 |
Publicly Available Date | Apr 13, 2021 |
Journal | Quality of Life Research |
Print ISSN | 0962-9343 |
Electronic ISSN | 1573-2649 |
Publisher | Springer Verlag |
Peer Reviewed | Peer Reviewed |
DOI | https://doi.org/10.1007/s11136-021-02814-4 |
Keywords | Child; Outcome assessment; Healthcare; Psychometrics; Cognition; Questionnaire |
Public URL | https://hull-repository.worktribe.com/output/3745085 |
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© The Author(s) 2021. Open Access. This article is licensed under a Creative Commons Attribution 4.0 International License, which permits use, sharing, adaptation, distribution and reproduction in any medium or format, as long as you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons licence, and indicate if changes were made. The images or other third party material in this article are included in the article's Creative Commons licence, unless indicated otherwise in a credit line to the material. If material is not included in the article's Creative Commons licence and your intended use is not permitted by statutory regulation or exceeds the permitted use, you will need to obtain permission directly from the copyright holder. To view a copy of this licence, visit http://creativecommons.org/licenses/by/4.0/.
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