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Content and quality of websites supporting self-management of chronic breathlessness in advanced illness: a systematic review

Luckett, Tim; Disler, Rebecca; Hosie, Annmarie; Johnson, Miriam; Davidson, Patricia; Currow, David; Sumah, Anthony; Phillips, Jane

Authors

Tim Luckett

Rebecca Disler

Annmarie Hosie

Patricia Davidson

David Currow

Anthony Sumah

Jane Phillips



Abstract

Chronic breathlessness is a common, burdensome and distressing symptom in many advanced chronic illnesses. Self-management strategies are essential to optimise treatment, daily functioning and emotional coping. People with chronic illness commonly search the internet for advice on self-management. A review was undertaken in June 2015 to describe the content and quality of online advice on breathlessness self-management, to highlight under-served areas and to identify any unsafe content. Google was searched from Sydney, Australia, using the five most common search terms for breathlessness identified by Google Trends. We also hand-searched the websites of national associations. Websites were included if they were freely available in English and provided practical advice on self-management. Website quality was assessed using the American Medical Association Benchmarks. Readability was assessed using the Flesch-Kincaid grades, with grade 8 considered the maximum acceptable for enabling access. Ninety-one web pages from 44 websites met the inclusion criteria, including 14 national association websites not returned by Google searches. Most websites were generated in the USA (n=28, 64%) and focused on breathing techniques (n=38, 86%) and chronic obstructive pulmonary disease (n=27, 61%). No websites were found to offer unsafe advice. Adherence to qualit y benchmarks ranged from 9% for disclosure to 77% for currency. Fifteen (54%) of 28 written websites required grade ≈ 3/49 reading level. Future development should focus on advice and tools to support goal setting, problem solving and monitoring of breathlessness. National associations are encouraged to improve website visibility and comply with standards for quality and readability.

Citation

Luckett, T., Disler, R., Hosie, A., Johnson, M., Davidson, P., Currow, D., …Phillips, J. (2016). Content and quality of websites supporting self-management of chronic breathlessness in advanced illness: a systematic review. NPJ Primary Care Respiratory Medicine, 26(1), https://doi.org/10.1038/npjpcrm.2016.25

Acceptance Date Apr 5, 2016
Online Publication Date May 26, 2016
Publication Date May 26, 2016
Deposit Date Apr 11, 2016
Publicly Available Date May 26, 2016
Journal NPJ primary care respiratory medicine
Electronic ISSN 2055-1010
Publisher Nature Publishing Group
Peer Reviewed Peer Reviewed
Volume 26
Issue 1
Article Number ARTN 16025
DOI https://doi.org/10.1038/npjpcrm.2016.25
Keywords Internet, Health information, Chronic breathlessness, Self-management, COPD
Public URL https://hull-repository.worktribe.com/output/435590
Publisher URL http://www.nature.com/articles/npjpcrm201625
Copyright Statement This work is licensed under a Creative Commons Attribution 4.0 International License. The images or other third party material in this article are included in the article’s Creative Commons license, unless indicated otherwise in the credit line; if the material is not included under the Creative Commons license, users will need to obtain permission from the license holder to reproduce the material. To view a copy of this license, visit http://creativecommons.org/licenses/by/4.0/
Additional Information This is a copy of an open access article which has been published in: NPJ primary care respiratory medicine, 2016.

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http://creativecommons.org/licenses/by/4.0/

Copyright Statement
This work is licensed under a Creative Commons Attribution 4.0 International License. The images or other third party material in this article are included in the article’s Creative Commons license, unless indicated otherwise in the credit line; if the material is not included under the Creative Commons license, users will need to obtain permission from the license holder to reproduce the material. To view a copy of this license, visit http://creativecommons.org/licenses/by/4.0/





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