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Supported: supporting, enabling, and sustaining homecare workers to deliver end-of-life care: a qualitative study 2 protocol 3 4

Bayley, Zana; Bothma, Joan; Bravington, Alison; Forward, Cat; Hussain, Jamilla; Manthorpe, Jill; Pearson, Mark; Roberts, Helen; Taylor, Paul; Walker, Liz; White, Caroline; Wray, Jane; Johnson, Miriam J.

Authors

Joan Bothma

Cat Forward

Jamilla Hussain

Jill Manthorpe

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Ms Helen Roberts Helen.Roberts@hull.ac.uk
Patient and Public Involvement Coordinator

Paul Taylor

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Dr Jane Wray J.Wray@hull.ac.uk
Senior Lecturer in Nursing, Senior Clinical Nurse Advisor National Preceptorship Programme for England



Abstract

BACKGROUND: Homecare workers provide essential care at home for people at end-of-life but are often poorly trained and supported. AIM: To explore the experiences and needs of homecare workers and the views of homecare clients and carers, and other community-based health and social care staff about the homecare worker role, including identification of good practice. METHODS: In this qualitative exploratory study, we will conduct 150 semi-structured interviews with homecare workers within three geographic English localities chosen for maximum socio-demographic variation. Eligible participants will be consenting adults providing care services (workers [n = 45], managers [n = 15] community practitioners [n = 30]), receiving care (clients thought to be in the last 6 months of life [n = 30], family carers [n = 15], or commissioners of homecare services supporting end-of-life care [n = 15]. Interviews may adopt a Pictor-guided or standard semi-structured approach according to their preference. Managers and commissioners can contribute to an online focus group if preferred. A range of recruitment strategies will be used, including through homecare agencies, local authorities, local NHS services, charities, voluntary sector groups and social media. Interviews and focus groups will be recorded, transcribed, anonymised, and analysed adopting a case-based approach for each geographic area within-case and then comparison across cases using reflexive thematic analysis. The design and analysis will be informed by Bronfenbrenner's Adapted Ecological Systems theory. This study is registered on the Research Registry (No.8613). CONTRIBUTION: We will provide evidence on ways to improve the experiences and address the needs of homecare workers in relation to caring for people nearing end-of-life. It will offer insight into good practice around supporting homecare workers including responding to their training and development needs. Findings will inform subsequent stages of an evaluation-phase study of a training resource for homecare workers.

Citation

Bayley, Z., Bothma, J., Bravington, A., Forward, C., Hussain, J., Manthorpe, J., …Johnson, M. J. (2023). Supported: supporting, enabling, and sustaining homecare workers to deliver end-of-life care: a qualitative study 2 protocol 3 4. PLoS ONE, 18(12), Article e0291525. https://doi.org/10.1371/journal.pone.0291525

Journal Article Type Article
Acceptance Date Sep 25, 2023
Online Publication Date Dec 13, 2023
Publication Date Dec 13, 2023
Deposit Date Sep 25, 2023
Publicly Available Date Dec 14, 2023
Journal PLoS ONE
Print ISSN 1932-6203
Electronic ISSN 1932-6203
Publisher Public Library of Science
Peer Reviewed Peer Reviewed
Volume 18
Issue 12
Article Number e0291525
DOI https://doi.org/10.1371/journal.pone.0291525
Keywords Palliative care; End-of-life care; Homecare; Domiciliary care
Public URL https://hull-repository.worktribe.com/output/4398620

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Publisher Licence URL
http://creativecommons.org/licenses/by/4.0

Copyright Statement
Copyright: © 2023 Bayley et al. This is an open access article distributed under the terms of the Creative Commons Attribution License, which permits unrestricted use, distribution, and reproduction in any medium, provided the original author and source are credited.




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