Skip to main content

Factors of resilience in informal caregivers of people with dementia from integrative international data analysis

Joling, Karlijn J.; Windle, Gill; Dröes, Rose-Marie; Meiland, Franka; van Hout, Hein P.J.; MacNeil Vroomen, Janet; van de Ven, Peter M.; Moniz-Cook, Esmé; Woods, Bob

Authors

Karlijn J. Joling

Gill Windle

Rose-Marie Dröes

Franka Meiland

Hein P.J. van Hout

Janet MacNeil Vroomen

Peter M. van de Ven

Professor Esme Moniz-Cook E.D.Moniz-Cook@hull.ac.uk
Professor of Clinical Psychology of Ageing and Dementia Care Research/ Dementia Research Work Group Lead

Bob Woods



Abstract

Background/Aims: Although caring for a person with dementia can be stressful, some caregivers appear to experience few negative consequences to their well-being. This study aimed to examine what proportion of caregivers demonstrates resilience under different challenging circumstances and to identify factors related to their resilience. Methods: Baseline data from 4 studies from the Netherlands and UK among informal caregivers of people with dementia were harmonized and integrated. Caregiver resilience was defined as high levels of psychological well-being despite different types of high caregiving demands. Multivariate regression analyses identified factors significantly related to caregiver resilience. Results: The integrated data set included 15 harmonized variables with data from 1,048 caregivers facing a high care demand. The prevalence of resilience varied between 35 and 43%, depending on the demand for high care. Being a male caregiver, caring for a female, living apart from your relative, and low caregiver burden were positively related to caregiver resilience. Conclusion: Caregivers have the capacity to demonstrate resilience despite significant challenges. This study demonstrates how harmonization of data from multiple existing studies can be used to increase power and explore the consistency of findings. This contributes to a better understanding of which factors are likely to facilitate caregiver resilience and offers insights for developing services.

Journal Article Type Article
Publication Date 2016-10
Journal Dementia and geriatric cognitive disorders
Print ISSN 1420-8008
Electronic ISSN 1421-9824
Publisher Karger Publishers
Peer Reviewed Peer Reviewed
Volume 42
Issue 3-4
Pages 198-214
APA6 Citation Joling, K. J., Windle, G., Dröes, R., Meiland, F., van Hout, H. P., MacNeil Vroomen, J., …Woods, B. (2016). Factors of resilience in informal caregivers of people with dementia from integrative international data analysis. Dementia and Geriatric Cognitive Disorders, 42(3-4), 198-214. doi:10.1159/000449131
DOI https://doi.org/10.1159/000449131
Keywords Informal caregiving, Resilience, Dementia, Adversity, Data harmonization
Publisher URL http://www.karger.com/Article/FullText/449131
Copyright Statement This article is licensed under the Creative Commons Attribution-NonCommercial-NoDerivatives 4.0 International License (CC BY-NC-ND).
Additional Information This is a copy of an open access article published in: Dementia and geriatric cognitive disorders, 2016, v.42 issue 3-4.

Files

Article.pdf (1.1 Mb)
PDF

Copyright Statement
This article is licensed under the Creative Commons Attribution-NonCommercial-NoDerivatives 4.0 International License (CC BY-NC-ND).


Supplementary_info_2.pdf (31 Kb)
PDF

Copyright Statement
This article is licensed under the Creative Commons Attribution-NonCommercial-NoDerivatives 4.0 International License (CC BY-NC-ND).


Supplementary_info.pdf (188 Kb)
PDF

Copyright Statement
This article is licensed under the Creative Commons Attribution-NonCommercial-NoDerivatives 4.0 International License (CC BY-NC-ND).





You might also like



Downloadable Citations

;