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Dementia Research Fit for the Planet: Reflections on Population Studies of Dementia for Researchers and Policy Makers Alike

Brayne, Carol E.; Barnes, Linda E.; Breteler, Monique M.B.; Brooks, Rachael L.; Dufouil, Carole; Fox, Chris; Fratiglioni, Laura; Ikram, M. Arfan; Kenny, Rose A.; Kivipelto, Miia; Lobo, Antonio; Musicco, Massimo; Qiu, Chengxuan; Richard, Edo; Riedel-Heller, Steffi G.; Ritchie, Craig; Skoog, Ingmar; Stephan, Blossom C.M.; Venneri, Annalena; Matthews, Fiona E.

Authors

Carol E. Brayne

Linda E. Barnes

Monique M.B. Breteler

Rachael L. Brooks

Carole Dufouil

Chris Fox

Laura Fratiglioni

M. Arfan Ikram

Rose A. Kenny

Miia Kivipelto

Antonio Lobo

Massimo Musicco

Chengxuan Qiu

Edo Richard

Steffi G. Riedel-Heller

Craig Ritchie

Ingmar Skoog

Blossom C.M. Stephan

Annalena Venneri



Abstract

In recent years, a rapidly increasing collection of investigative methods in addition to changes in diagnostic criteria for dementia have followed "high-tech" trends in medicine, with the aim to better define the dementia syndrome and its biological substrates, mainly in order to predict risk prior to clinical expression. These approaches are not without challenge. A set of guidelines have been developed by a group of European experts in population-based cohort research through a series of workshops, funded by the Joint Program for Neurodegenerative Disorders (JPND). The aims of the guidelines are to assist policy makers and researchers to understand (1) What population studies for ageing populations should encompass and (2) How to interpret the findings from population studies. Such studies are essential to provide evidence relevant to the understanding of healthy and frail brain ageing, including the dementia syndrome for contemporary and future societies by drawing on the past.

Citation

Brayne, C. E., Barnes, L. E., Breteler, M. M., Brooks, R. L., Dufouil, C., Fox, C., Fratiglioni, L., Ikram, M. A., Kenny, R. A., Kivipelto, M., Lobo, A., Musicco, M., Qiu, C., Richard, E., Riedel-Heller, S. G., Ritchie, C., Skoog, I., Stephan, B. C., Venneri, A., & Matthews, F. E. (2020). Dementia Research Fit for the Planet: Reflections on Population Studies of Dementia for Researchers and Policy Makers Alike. Neuroepidemiology, 54(2), 157-170. https://doi.org/10.1159/000505626

Journal Article Type Article
Acceptance Date Dec 24, 2019
Online Publication Date Feb 4, 2020
Publication Date Mar 1, 2020
Deposit Date Sep 5, 2024
Publicly Available Date Sep 13, 2024
Journal Neuroepidemiology
Print ISSN 0251-5350
Electronic ISSN 1423-0208
Publisher Karger Publishers
Peer Reviewed Peer Reviewed
Volume 54
Issue 2
Pages 157-170
DOI https://doi.org/10.1159/000505626
Keywords Guidelines; Population-based studies; Cohorts; Dementia
Public URL https://hull-repository.worktribe.com/output/4451910

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Publisher Licence URL
https://creativecommons.org/licenses/by-nc-nd/4.0/

Copyright Statement
© 2020 The Author(s) Published by S. Karger AG, Basel.
Open Access License
This article is licensed under the Creative Commons Attribution-NonCommercial-NoDerivatives 4.0 International License (CC BY-NC-ND). Usage and distribution for commercial purposes as well as any distribution of modified material requires written permission.





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