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Families' experiences of raising concerns in health care services: an interpretative phenomenological analysis

Bright, Naomi; Hutchinson, Nick; Oakes, Peter; Marsland, Dave

Authors

Naomi Bright

Peter Oakes

Dave Marsland

Abstract

Background This exploratory study aimed to increase understanding of the experiences of families of people with intellectual disabilities when noticing and raising concerns in services. A qualitative design was employed. Methods Seven participants (all female) were recruited through local and national voluntary agencies; five were mothers of people with intellectual disabilities, one was the aunt and one the sister. Participants took part in semi structured interviews centred on their experiences of noticing and raising concerns, these were recorded and transcribed. The data was analyzed using Interpretative Phenomenological Analysis (IPA; Smith, 1996). Results The data was grouped into three superordinate themes: the nature and importance of concerns, relationships between families and staff and the process of raising concerns. A key and surprising finding was the importance of ‘the little things’. Conclusions This research highlights important implications for services such as the need to simplify the process of raising concerns, attend to the relationship with families and ensure advocacy services are identified for those without family.

Journal Article Type Article
Publication Date 2018-05
Journal Journal of applied research in intellectual disabilities
Print ISSN 1360-2322
Electronic ISSN 1468-3148
Publisher Wiley
Peer Reviewed Peer Reviewed
Volume 31
Issue 3
Pages 405-412
Institution Citation Bright, N., Hutchinson, N., Oakes, P., & Marsland, D. (2018). Families' experiences of raising concerns in health care services: an interpretative phenomenological analysis. Journal of Applied Research in Intellectual Disabilities, 31(3), 405-412. doi:10.1111/jar.12419
DOI https://doi.org/10.1111/jar.12419
Keywords Adult safeguarding; Family; Intellectual disabilities; Residential care
Publisher URL http://onlinelibrary.wiley.com/doi/10.1111/jar.12419/full
Additional Information This is the accepted manuscript of an article published in Journal of applied research in intellectual disabilities, 2018. The version of record is available at the DOI link in this record.

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