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Outputs (49)

The language of behaviour changes in dementia: A mixed methods survey exploring the perspectives of people with dementia (2021)
Journal Article
Wolverson, E., Moniz-Cook, E., Dunn, R., Gove, D., & Diaz-Ponce, A. (2021). The language of behaviour changes in dementia: A mixed methods survey exploring the perspectives of people with dementia. Journal of advanced nursing, 77(4), 1992-2001. https://doi.org/10.1111/jan.14787

Aims: The aim of this study was to explore the opinions of people with dementia, about the language used to describe changes in behaviour associated with dementia. Design: This study adopted a human rights approach in a mixed methods convergent paral... Read More about The language of behaviour changes in dementia: A mixed methods survey exploring the perspectives of people with dementia.

Development of an evidence-based best practice model for teams managing crisis in dementia: Protocol for a qualitative study (2021)
Journal Article
Stanyon, M., Streater, A., Coleston-Shields, D. M., Yates, J., Challis, D., Dening, T., Hoe, J., Lloyd-Evans, B., Mitchell, S., Moniz-Cook, E., Poland, F., Prothero, D., & Orrell, M. (2021). Development of an evidence-based best practice model for teams managing crisis in dementia: Protocol for a qualitative study. JMIR Research Protocols, 10(1), Article e14781. https://doi.org/10.2196/14781

Background: Teams working in the community to manage crisis in dementia currently exist, but with widely varying models of practice, it is difficult to determine the effectiveness of such teams. Objective: The aim of this study is to develop a “best... Read More about Development of an evidence-based best practice model for teams managing crisis in dementia: Protocol for a qualitative study.

UK clinicians’ views on the use of formulations for the management of BPSD: a multidisciplinary survey (2020)
Journal Article
James, I. A., James, I., Mahesh, M., Duffy, F., Reichelt, K., & Moniz-Cook, E. (2020). UK clinicians’ views on the use of formulations for the management of BPSD: a multidisciplinary survey. Aging and Mental Health, 1-8. https://doi.org/10.1080/13607863.2020.1830944

© 2020 Informa UK Limited, trading as Taylor & Francis Group. Background and objectives: The process of formulating in the area of dementia care is at an early stage of development. A review published in 2016, identified 14 different types of formu... Read More about UK clinicians’ views on the use of formulations for the management of BPSD: a multidisciplinary survey.

Feasibility and acceptability evaluation of the PRIDE (Promoting Independence in Dementia) intervention for living well with dementia (2020)
Journal Article
Csipke, E., Moniz-Cook, E., Leung, P., Yates, L., Birt, L., Walton, H., Hogervorst, E., Mountain, G., Charlesworth, G., & Orrell, M. (2020). Feasibility and acceptability evaluation of the PRIDE (Promoting Independence in Dementia) intervention for living well with dementia. International Psychogeriatrics, 33(Special Issue 6), 601 - 614. https://doi.org/10.1017/S1041610220001386

Objectives: Post-diagnostic psychosocial interventions could play an important role in supporting people with mild dementia remain independent. The PRIDE intervention was developed to address this.
Method: The mixed methods non-randomised, pre-pos... Read More about Feasibility and acceptability evaluation of the PRIDE (Promoting Independence in Dementia) intervention for living well with dementia.

Improving mental health and reducing antipsychotic use in people with dementia in care homes: the WHELD research programme including two RCTs (2020)
Journal Article
Ballard, C., Orrell, M., Moniz-Cook, E., Woods, R., Whitaker, R., Corbett, A., Aarsland, D., Murray, J., Lawrence, V., Testad, I., Knapp, M., Romeo, R., Zala, D., Stafford, J., Hoare, Z., Garrod, L., Sun, Y., McLaughlin, E., Woodward-Carlton, B., Williams, G., & Fossey, J. (2020). Improving mental health and reducing antipsychotic use in people with dementia in care homes: the WHELD research programme including two RCTs. Programme Grants for Applied Research, 8(6), 1-98. https://doi.org/10.3310/pgfar08060

Background: The effective management of agitation and other neuropsychiatric and behavioural symptoms in people with dementia is a major challenge, particularly in care home settings, where dementia severity is higher and there is limited training an... Read More about Improving mental health and reducing antipsychotic use in people with dementia in care homes: the WHELD research programme including two RCTs.

Measuring the well-being of people with dementia : a conceptual scoping review (2020)
Journal Article
Clarke, C., Woods, B., Moniz-Cook, E., Mountain, G., Øksnebjerg, L., Chattat, R., Diaz, A., Gove, D., Vernooij-Dassen, M., & Wolverson, E. (in press). Measuring the well-being of people with dementia : a conceptual scoping review. Health and quality of life outcomes, 18(1), Article 249. https://doi.org/10.1186/s12955-020-01440-x

Background: Enabling people with dementia to ‘live well’ is a policy and research priority in many countries. However, instruments for measuring outcomes of psychosocial interventions designed to promote well-being in dementia are often derived from... Read More about Measuring the well-being of people with dementia : a conceptual scoping review.

Bridging the divide between biomedical and psychosocial approaches in dementia research: the 2019 INTERDEM Manifesto (2019)
Journal Article
Vernooij-Dassen, M., Moniz-Cook, E., Verhey, F., Chattat, R., Woods, B., Meiland, F., Franco, M., Holmerova, I., Orrell, M., & de Vugt, M. (2021). Bridging the divide between biomedical and psychosocial approaches in dementia research: the 2019 INTERDEM Manifesto. Aging and Mental Health, 25(2), 206-212. https://doi.org/10.1080/13607863.2019.1693968

Objective: To provide a new perspective on integrated biomedical and psychosocial dementia research.

Background: Dementia is being recognized as a multifactorial syndrome, but there is little interaction between biomedical and psychosocial approac... Read More about Bridging the divide between biomedical and psychosocial approaches in dementia research: the 2019 INTERDEM Manifesto.

Evaluating interventions for Behaviours that Challenge (BtC) in dementia care - what instruments do specialist practitioners working in the UK use? (2019)
Journal Article
Dunn, R., & Moniz-Cook, E. (2019). Evaluating interventions for Behaviours that Challenge (BtC) in dementia care - what instruments do specialist practitioners working in the UK use?. FPOP Bulletin, 148, 51-61

Written feedback was examined from participants who attended the February 2019 consultation. This informed the 35-item online survey that followed (May-June 2019). One item questioned practice on instruments used by specialist BtC practitioners to ev... Read More about Evaluating interventions for Behaviours that Challenge (BtC) in dementia care - what instruments do specialist practitioners working in the UK use?.

Naming and Framing the Behavioural and Psychological Symptoms of Dementia (BPSD) Paradigm: Professional Stakeholder Perspectives (2019)
Journal Article
Wolverson, E., Birtles, H., Moniz-Cook, E., James, I., Brooker, D., & Duffy, F. (2019). Naming and Framing the Behavioural and Psychological Symptoms of Dementia (BPSD) Paradigm: Professional Stakeholder Perspectives. OBM geriatrics, 3(4), 1-19. https://doi.org/10.21926/obm.geriatr.1904080

Background: Behavioural and Psychological Symptoms of Dementia and Challenging Behaviour in dementia are just two of a variety of terms for a complex paradigm that covers the most distressing and costly aspects of the condition. The terminology used... Read More about Naming and Framing the Behavioural and Psychological Symptoms of Dementia (BPSD) Paradigm: Professional Stakeholder Perspectives.

The development of the Promoting Independence in Dementia (PRIDE) intervention to enhance independence in dementia (2019)
Journal Article
Yates, L., Csipke, E., Moniz-Cook, E., Leung, P., Walton, H., Charlesworth, G., Spector, A., Hogervorst, E., Mountain, G., & Orrell, M. (2019). The development of the Promoting Independence in Dementia (PRIDE) intervention to enhance independence in dementia. Clinical Interventions in Aging, 14, 1615-1630. https://doi.org/10.2147/CIA.S214367

© 2019 Yates et al. Objective: Support after a diagnosis of dementia may facilitate better adjustment and ongoing management of symptoms. The aim of the Promoting Independence in Dementia (PRIDE) study was to develop a postdiagnostic social intervent... Read More about The development of the Promoting Independence in Dementia (PRIDE) intervention to enhance independence in dementia.

Translation and linguistic validation of the German Challenging Behaviour Scale for formal caregivers of people with dementia in nursing homes (2018)
Journal Article
Köller, L., Holle, D., Köller, L., Moniz-Cook, E., & Halek, M. (2018). Translation and linguistic validation of the German Challenging Behaviour Scale for formal caregivers of people with dementia in nursing homes. Journal of Nursing Measurement, 26(3), 544-565. https://doi.org/10.1891/1061-3749.26.3.544

© 2018 Springer Publishing Company. Background and Purpose: The Challenging Behavior Scale (CBS) measures the behavior of individuals with dementia. The study aims to translate the English CBS into German (CBS-G) and test its linguistic validity. Met... Read More about Translation and linguistic validation of the German Challenging Behaviour Scale for formal caregivers of people with dementia in nursing homes.

Using meta-ethnography to synthesise relevant studies : Capturing the bigger picture in dementia with challenging behaviour within families (2018)
Digital Artefact
Feast, A., Orrell, M., Charlesworth, G., Poland, F., Featherstone, K., Melunsky, N., & Moniz-Cook, E. (2018). Using meta-ethnography to synthesise relevant studies : Capturing the bigger picture in dementia with challenging behaviour within families. [HTML]

Abstract In understanding the range and depth of people’s experiences it is important to include the wide range of approaches which capture the richness within a given knowledge base. However, systematic reviews using quantitative data alone risk mis... Read More about Using meta-ethnography to synthesise relevant studies : Capturing the bigger picture in dementia with challenging behaviour within families.

Promoting independence in dementia: protocol for a feasibility trial of the PRIDE intervention for living well with dementia (2018)
Journal Article
Csipke, E., Yates, L., Cook, E. M., Leung, P., Charlesworth, G., Walton, H., Birt, L., & Orrell, M. (2018). Promoting independence in dementia: protocol for a feasibility trial of the PRIDE intervention for living well with dementia. International Journal of Clinical Trials, 5(4), 177-185. https://doi.org/10.18203/2349-3259.ijct20184399

INTRODUCTION In the UK over 800,000 older people have dementia, which can lead to social exclusion, loss of identity and independence due to deterioration in cognition, activities of daily living, the double stigma of age and dementia, and the reduce... Read More about Promoting independence in dementia: protocol for a feasibility trial of the PRIDE intervention for living well with dementia.

Implementing e-learning and e-tools for care home staff supporting residents with dementia and challenging behaviour: A process evaluation of the ResCare study using normalisation process theory (2018)
Journal Article
Poland, F., Keenan, J., Manthorpe, J., Hart, C., & Moniz-Cook, E. (2020). Implementing e-learning and e-tools for care home staff supporting residents with dementia and challenging behaviour: A process evaluation of the ResCare study using normalisation process theory. Dementia, 19(5), 1604-1620. https://doi.org/10.1177/1471301218803195

© The Author(s) 2018. Dementia-related symptoms, sometimes termed challenging or distressing behaviour, can give rise to significant distress in care homes. Individualised formulation-led interventions show promise in reducing these behaviours. ResCa... Read More about Implementing e-learning and e-tools for care home staff supporting residents with dementia and challenging behaviour: A process evaluation of the ResCare study using normalisation process theory.

Towards capturing meaningful outcomes for people with dementia in psychosocial intervention research: A pan-European consultation (2018)
Journal Article
Øksnebjerg, L., Diaz-Ponce, A., Gove, D., Moniz-Cook, E., Mountain, G., Chattat, R., & Woods, B. (2018). Towards capturing meaningful outcomes for people with dementia in psychosocial intervention research: A pan-European consultation. Health Expectations, 21(6), 1056-1065. https://doi.org/10.1111/hex.12799

Background: People with dementia are often marginalized and excluded from influence, also in relation to dementia research. There is, however, a growing requirement for inclusion through Patient and Public Involvement (PPI), but there is still limite... Read More about Towards capturing meaningful outcomes for people with dementia in psychosocial intervention research: A pan-European consultation.

Evidence Briefing: Behaviour that challenges in dementia (2018)
Report
James, I. A., & Moniz-Cook, E. (2018). Evidence Briefing: Behaviour that challenges in dementia. Leicester, UK: British Psychological Society

Key messages
• Behaviour that challenges (BtC) can be a consequence of a person’s unmet health or psychosocial need(s).
• ‘Non-pharmacological’ approaches are the first-line treatments, rather than psychotropic medications.
• Service pathways for p... Read More about Evidence Briefing: Behaviour that challenges in dementia.

Impact of person-centred care training and person-centred activities on quality of life, agitation, and antipsychotic use in people with dementia living in nursing homes: A cluster-randomised controlled trial (2018)
Journal Article
Ballard, C., Corbett, A., Orrell, M., Williams, G., Moniz-Cook, E., Romeo, R., Woods, B., Garrod, L., Testad, I., Woodward-Carlton, B., Wenborn, J., Knapp, M., & Fossey, J. (2018). Impact of person-centred care training and person-centred activities on quality of life, agitation, and antipsychotic use in people with dementia living in nursing homes: A cluster-randomised controlled trial. PLoS Medicine, 15(2), e1002500. https://doi.org/10.1371/journal.pmed.1002500

© 2018 Ballard et al. Background: Agitation is a common, challenging symptom affecting large numbers of people with dementia and impacting on quality of life (QoL). There is an urgent need for evidence-based, cost-effective psychosocial interventions... Read More about Impact of person-centred care training and person-centred activities on quality of life, agitation, and antipsychotic use in people with dementia living in nursing homes: A cluster-randomised controlled trial.

‘Behaviour that challenges’ in dementia care: an update of psychological approaches for home and care home settings (2017)
Journal Article
Moniz-Cook, E., & James, I. (2017). ‘Behaviour that challenges’ in dementia care: an update of psychological approaches for home and care home settings. FPOP Bulletin, 140, 43-49

Over and above the personal and financial costs associated with dementia, those for ‘behaviour that challenges’ (BtC) are significant (Lowry & Warner, 2009; Hermann et al., 2006). This briefing paper outlines the importance of having a psychological... Read More about ‘Behaviour that challenges’ in dementia care: an update of psychological approaches for home and care home settings.