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The unique information and communication needs of men affected by prostate cancer: A qualitative study of men's experience

Chen, Hong; Twiddy, Maureen; Jones, Lesley; Johnson, Miriam J.

Authors

Hong Chen

Lesley Jones



Abstract

Objective: The objective of this study is to explore the specific information and communication needs of men affected by prostate cancer to inform the development of educational materials for clinicians. Methods: This is a qualitative descriptive study. A purposive sampling strategy was used to identify men at different cancer stages and with experience of different treatment regimens. Semistructured interviews (25) were conducted with 19 men and six carers over the phone. Interview data were analysed using a framework approach. Results: Four themes emerged: gaps in the information provided by secondary care doctors and nurses, communication skills needed in effective clinical information provision, a need for individualised information and alternative information sources used to meet unmet needs. Regardless of cancer stage and treatment, men with prostate cancer and their carers found information regarding common and burdensome adverse effects of prostate cancer treatment particularly lacking, and their ongoing and changing information needs often overlooked. They needed information delivered in a compassionate and individually tailored manner, considering content, timing and emotional support within the context of their unique life circumstances. Conclusion: Clinicians often fail to recognise the need for or deliver patient-centred conversations about treatment, managing side effects and prognosis. The findings will be used to develop clinician-facing educational materials.

Citation

Chen, H., Twiddy, M., Jones, L., & Johnson, M. J. (2021). The unique information and communication needs of men affected by prostate cancer: A qualitative study of men's experience. European Journal of Cancer Care, 30(6), https://doi.org/10.1111/ecc.13503

Journal Article Type Article
Acceptance Date Aug 4, 2021
Online Publication Date Sep 21, 2021
Publication Date 2021-11
Deposit Date Aug 5, 2021
Publicly Available Date Sep 22, 2022
Journal European Journal of Cancer Care
Print ISSN 0961-5423
Electronic ISSN 1365-2354
Publisher Wiley
Peer Reviewed Peer Reviewed
Volume 30
Issue 6
Article Number e13503
DOI https://doi.org/10.1111/ecc.13503
Keywords Communication skill; Information need; Patient; Prostate cancer; Secondary care; Symptom management
Public URL https://hull-repository.worktribe.com/output/3816048