All Outputs (105)

Achieving Quality and Effectiveness in Dementia Using Crisis Teams (AQUEDUCT): A randomised controlled trial evaluating the impact of a Best Practice Resource Kit used by Teams Managing Crisis in Dementia (2025)
Journal Article
Orrell, M., O'Raw, L., Coleston, D., Breton, M., Guo, B., Dening, T., Hoe, J., Lloyd-Evans, B., Moniz-Cook, E., Poland, F., Redley, M., Worden, A., & Challis, D. (online). Achieving Quality and Effectiveness in Dementia Using Crisis Teams (AQUEDUCT): A randomised controlled trial evaluating the impact of a Best Practice Resource Kit used by Teams Managing Crisis in Dementia. Nature communications, 16, Article 6414. https://doi.org/10.1038/s41467-025-61537-z

Worldwide, people with dementia experience acute mental health crises requiring urgent hospital admission. In the UK, crisis teams support cases, but practices vary widely. The lack of a best practice model can lead to poor quality care and increased... Read More about Achieving Quality and Effectiveness in Dementia Using Crisis Teams (AQUEDUCT): A randomised controlled trial evaluating the impact of a Best Practice Resource Kit used by Teams Managing Crisis in Dementia.

Reimagining Dementia Care: A Complex Intervention Systematic Review on Optimising Social Prescribing (SP) for People Living with Dementia (PLWD) in the UK (2025)
Journal Article
Papavasiliou, E., Marshall, J., Allan, L., Bradbury, K., Fox, C., Hawkes, M., Irvine, A., Moniz-Cook, E., Pick, A., Polley, M., Rathbone, A., Reeve, J., Robinson, D. L., Robinson, L., Rook, G., Sadler, E., Wolverson, E., Walker, S., Cross, J., & On behalf of the SPLENDID Collaboration. (2025). Reimagining Dementia Care: A Complex Intervention Systematic Review on Optimising Social Prescribing (SP) for People Living with Dementia (PLWD) in the UK. Health Expectations, 28(3), Article e70289. https://doi.org/10.1111/hex.70289

Introduction: Dementia is a complex medical condition that poses significant challenges to healthcare systems and support services. People living with dementia (PLWD) often face complex needs, exacerbated by social isolation and difficulty accessing... Read More about Reimagining Dementia Care: A Complex Intervention Systematic Review on Optimising Social Prescribing (SP) for People Living with Dementia (PLWD) in the UK.

Reimagining Dementia Care: A Complex Intervention Systematic Review on Optimising Social Prescribing (SP) for Carers of People Living with Dementia (PLWD) in the United Kingdom (2025)
Journal Article
Marshall, J., Papavasiliou, E., Allan, L., Bradbury, K., Fox, C., Hawkes, M., Irvine, A., Moniz-Cook, E., Pick, A., Polley, M., Rathbone, A., Reeve, J., Robinson, D. L., Robinson, L., Rook, G., Sadler, E., Wolverson, E., Walker, S., Cross, J., & On behalf of the SPLENDID Collaboration. (2025). Reimagining Dementia Care: A Complex Intervention Systematic Review on Optimising Social Prescribing (SP) for Carers of People Living with Dementia (PLWD) in the United Kingdom. Health Expectations, 28(3), Article e70286. https://doi.org/10.1111/hex.70286

Introduction: Carers of people living with dementia (PLWD) face a range of complex needs, including medical, emotional, social and practical challenges, often exacerbated by social isolation and barriers to accessing support. Social prescribing (SP)... Read More about Reimagining Dementia Care: A Complex Intervention Systematic Review on Optimising Social Prescribing (SP) for Carers of People Living with Dementia (PLWD) in the United Kingdom.

A psychometric study of the Flourishing Scale for people living with dementia (2025)
Journal Article
Clarke, C., Baird, K., Moniz-Cook, E., Mountain, G., Wolverson, E., Lee, E., & Hewitt, C. (2025). A psychometric study of the Flourishing Scale for people living with dementia. Alzheimer's and Dementia: Translational Research and Clinical Interventions, 11(2), Article e70097. https://doi.org/10.1002/trc2.70097

INTRODUCTION: There are few validated strengths-based outcome measures for evaluations of psychosocial interventions in dementia and measurement of the concept of flourishing has not been directly explored. This study therefore examined the psychomet... Read More about A psychometric study of the Flourishing Scale for people living with dementia.

A scoping review of outcome measures for people living with dementia and family supporters to evaluate Recovery College dementia courses (2025)
Journal Article
Alam, J., West, J., Moniz-Cook, E., Wolverson, E., Handley, M., Birt, L., & Fox, C. (2025). A scoping review of outcome measures for people living with dementia and family supporters to evaluate Recovery College dementia courses. Frontiers in Psychiatry, 16, Article 1591772. https://doi.org/10.3389/fpsyt.2025.1591772

Introduction: Recovery Colleges (RC/RCs) aim to promote personal recovery through co-produced courses, grounded in the CHIME (Connectedness, Hope, Identity, Meaning, Empowerment) framework. The DiSCOVERY research programme noted that RC dementia cour... Read More about A scoping review of outcome measures for people living with dementia and family supporters to evaluate Recovery College dementia courses.

Instruments for assessing social health in the context of cognitive decline and dementia: a systematic review (2024)
Journal Article
Altona, J., Wiegelmann, H., Lenart-Bulga, M., Vernooij-Dassen, M., Verspoor, E., Seifert, I., Misonow, J., Szcześniak, D., Rymaszewska, J., Chattat, R., Jeon, Y. H., Moniz-Cook, E., Roes, M., Perry, M., & Wolf-Ostermann, K. (2024). Instruments for assessing social health in the context of cognitive decline and dementia: a systematic review. Frontiers in Psychiatry, 15, Article 1387192. https://doi.org/10.3389/fpsyt.2024.1387192

The concept of social health has recently received increasing attention in dementia research. Various notions of what social health is and how it can be measured are circulating. They may pose challenges for comparing results and interpreting them fo... Read More about Instruments for assessing social health in the context of cognitive decline and dementia: a systematic review.

Cost-utility analysis of adapted problem adaptation therapy for depression in mild-to-moderate dementia caused by Alzheimer's disease: PATHFINDER randomised controlled trial (2024)
Journal Article
Panca, M., Howard, R., Cort, E., Rawlinson, C., Gould, R. L., Wiegand, M., Downey, A. M., Banerjee, S., Fox, C., Harwood, R., Livingston, G., Moniz-Cook, E., Russell, G., Thomas, A., Wilkinson, P., Freemantle, N., & Hunter, R. M. (2024). Cost-utility analysis of adapted problem adaptation therapy for depression in mild-to-moderate dementia caused by Alzheimer's disease: PATHFINDER randomised controlled trial. BJPsych Open, 10(6), Article e189. https://doi.org/10.1192/bjo.2024.775

Background Depression is common in people with dementia, and negatively affects quality of life. Aims This paper aims to evaluate the cost-effectiveness of an intervention for depression in mild and moderate dementia caused by Alzheimer's disease ove... Read More about Cost-utility analysis of adapted problem adaptation therapy for depression in mild-to-moderate dementia caused by Alzheimer's disease: PATHFINDER randomised controlled trial.

First line psychosocial alternatives to psychotropic medication for behaviours that challenge in dementia care: A toolkit for health and social care practitioners (2024)
Report
James, I. A., Moniz-Cook, E., Duffy, F., Lord, N., Ritchie, M., & Reichelt, K. (2024). First line psychosocial alternatives to psychotropic medication for behaviours that challenge in dementia care: A toolkit for health and social care practitioners. Leicester: Division of Clinical Psychology , British Psychological Society(BPS)

This toolkit marks a significant milestone in the field of behaviours that challenge in dementia care.
It brings together the combined knowledge of a group of psychologists and an Expert Advisory Group who are absolute authorities in this area, who... Read More about First line psychosocial alternatives to psychotropic medication for behaviours that challenge in dementia care: A toolkit for health and social care practitioners.

Social prescribing for people living with dementia (PLWD) and their carers: what works, for whom, under what circumstances and why – protocol for a complex intervention systematic review (2024)
Journal Article
Marshall, J., Papavasiliou, E., Fox, C., Hawkes, M., Irvine, A., Moniz-Cook, E., Pick, A., Polley, M. J., Reeve, J., Robinson, L., Rook, G., Sadler, E., Wolverson, E., Walker, S., & Cross, J. L. (2024). Social prescribing for people living with dementia (PLWD) and their carers: what works, for whom, under what circumstances and why – protocol for a complex intervention systematic review. BMJ open, 14(4), Article e080551. https://doi.org/10.1136/bmjopen-2023-080551

Introduction
Dementia is a complex medical condition that poses significant challenges to healthcare systems and support services. People living with dementia (PLWD) and their carers experience complex needs often exacerbated by social isolation an... Read More about Social prescribing for people living with dementia (PLWD) and their carers: what works, for whom, under what circumstances and why – protocol for a complex intervention systematic review.

Adapted problem adaptation therapy for depression in mild to moderate Alzheimer's disease dementia: A randomized controlled trial (2024)
Journal Article
Howard, R., Cort, E., Rawlinson, C., Wiegand, M., Downey, A., Lawrence, V., Banerjee, S., Bentham, P., Fox, C., Harwood, R., Hunter, R., Livingston, G., Moniz-Cook, E., Panca, M., Raczek, M., Ivenso, C., Russell, G., Thomas, A., Wilkinson, P., Freemantle, N., & Gould, R. (2024). Adapted problem adaptation therapy for depression in mild to moderate Alzheimer's disease dementia: A randomized controlled trial. Alzheimer's & dementia, https://doi.org/10.1002/alz.13766

INTRODUCTION: Trials of effectiveness of treatment options for depression in dementia are an important priority. METHODS: Randomized controlled trial to assess adapted Problem Adaptation Therapy (PATH) for depression in mild/moderate dementia caused... Read More about Adapted problem adaptation therapy for depression in mild to moderate Alzheimer's disease dementia: A randomized controlled trial.

Operationalising the Recovery College model with people living with dementia: a realist review (2024)
Journal Article
Handley, M., Wheeler, C., Duddy, C., Wong, G., Birt, L., Fox, C., Moniz-Cook, E., Hackmann, C., Teague, B., & West, J. (2024). Operationalising the Recovery College model with people living with dementia: a realist review. Aging and Mental Health, 28(8), 1078-1089. https://doi.org/10.1080/13607863.2024.2356878

Objectives: Post-diagnostic support is a significant factor in facilitating personal recovery following a diagnosis of dementia, but access is often inconsistent and insufficient. Recovery Colleges offer peer-led, co-produced courses that can support... Read More about Operationalising the Recovery College model with people living with dementia: a realist review.

Discussing methodological gaps in psychosocial intervention research for dementia: an opinion article from the INTERDEM Methodology Taskforce guided by the MRC framework (2024)
Journal Article
Bartels, S. L., Stephens, N., D'Andrea, F., Handley, M., Markaryan, M., Nakakawa Bernal, A., Van den Block, L., de Bruin, S. R., Windle, K., Roes, M., Janssen, N., Christie, H., Garcia, L., Teesing, G., Moniz-Cook, E., & Graff, M. (2024). Discussing methodological gaps in psychosocial intervention research for dementia: an opinion article from the INTERDEM Methodology Taskforce guided by the MRC framework. Frontiers in Dementia, 3, Article 1458023. https://doi.org/10.3389/frdem.2024.1458023

Impact of the iWHELD digital person-centered care program on quality of life, agitation and psychotropic medications in people with dementia living in nursing homes during the COVID-19 pandemic: A randomized controlled trial (2023)
Journal Article
Mcdermid, J., Henley, W., Corbett, A., Williams, G., Fossey, J., Clare, L., Fox, C., Aarsland, D., Khan, Z., Soto, M., Woodward-Carlton, B., Cook, E. M., Cummings, J., Sweetnam, A., Chan, X., Lawrence, M., & Ballard, C. (in press). Impact of the iWHELD digital person-centered care program on quality of life, agitation and psychotropic medications in people with dementia living in nursing homes during the COVID-19 pandemic: A randomized controlled trial. Alzheimer's & dementia, https://doi.org/10.1002/alz.13582

Introduction: iWHELD is a digital person-centered care program for people with dementia in nursing homes adapted for remote delivery during the COVID-19 pandemic. Methods: A 16-week two-arm cluster-randomized controlled trial in 149 UK nursing homes... Read More about Impact of the iWHELD digital person-centered care program on quality of life, agitation and psychotropic medications in people with dementia living in nursing homes during the COVID-19 pandemic: A randomized controlled trial.

Protocol for a realist evaluation of Recovery College dementia courses: understanding coproduction through ethnography (2023)
Journal Article
Birt, L., West, J., Poland, F., Wong, G., Handley, M., Litherland, R., Hackmann, C., Moniz-Cook, E., Wolverson, E., Teague, B., Mills, R., Sams, K., Duddy, C., & Fox, C. (2023). Protocol for a realist evaluation of Recovery College dementia courses: understanding coproduction through ethnography. BMJ open, 13(12), Article e078248. https://doi.org/10.1136/bmjopen-2023-078248

Introduction Support following a dementia diagnosis in the UK is variable. Attending a Recovery College course with and for people with dementia, their supporters and healthcare professionals (staff), may enable people to explore and enact ways to li... Read More about Protocol for a realist evaluation of Recovery College dementia courses: understanding coproduction through ethnography.

Data resource profile: the virtual international care homes trials archive (VICHTA) (2023)
Journal Article
Irvine, L., Burton, J., Ali, M., Booth, J., Desborough, J., Logan, P., Moniz-Cook, E., Surr, C., Wright, D., & Goodman, C. (2023). Data resource profile: the virtual international care homes trials archive (VICHTA). International Journal of Population Data Science, 8(6), https://doi.org/10.23889/ijpds.v8i6.2161

Introduction Randomised controlled trials (RCTs) conducted in care home settings address a range of health conditions impacting older people, but often include a common core of data about residents and the care home environment. These data can be use... Read More about Data resource profile: the virtual international care homes trials archive (VICHTA).

Building an initial understanding of UK Recovery College dementia courses: A national survey of Recovery College and memory services staff. (2023)
Journal Article
Wolverson, E., Hague, L., West, J., Teague, B., Fox, C., Birt, L., Mills, R., Rhodes, T., Sams, K., & Moniz-Cook, E. (in press). Building an initial understanding of UK Recovery College dementia courses: A national survey of Recovery College and memory services staff. Working with Older People, https://doi.org/10.1108/WWOP-02-2023-0003

Purpose
Recovery Colleges were developed to support the recovery of people with mental health difficulties through courses co-produced by professionals and people with lived experience. This study aims to examine the use of Recovery Colleges to supp... Read More about Building an initial understanding of UK Recovery College dementia courses: A national survey of Recovery College and memory services staff..

Community Occupational Therapy in Dementia intervention for people with mild to moderate dementia and their family carers in the UK: the VALID research programme including RCT (2023)
Journal Article
Wenborn, J., Mountain, G., Moniz-Cook, E., Poland, F., King, M., Omar, R., O'keeffe, A., Morris, S., Pizzo, E., Michie, S., Vernooij-Dassen, M., Graff, M., Hill, J., Challis, D., Russell, I., Sackley, C., Hynes, S., Crellin, N., Mundy, J., Burgess, J., …Orrell, M. (2023). Community Occupational Therapy in Dementia intervention for people with mild to moderate dementia and their family carers in the UK: the VALID research programme including RCT. Programme Grants for Applied Research, 11(5), vii-76. https://doi.org/10.3310/RGTJ7429

Background: People with dementia find it increasingly difficult to carry out daily activities (activities of daily living), and may require increasing support from family carers. Researchers in the Netherlands developed the Community Occupational The... Read More about Community Occupational Therapy in Dementia intervention for people with mild to moderate dementia and their family carers in the UK: the VALID research programme including RCT.

The memory clinic and psychosocial intervention: Translating past promise into current practices (2023)
Journal Article
Moniz-Cook, E., & Mountain, G. (2023). The memory clinic and psychosocial intervention: Translating past promise into current practices. Frontiers in Rehabilitation Sciences, 4, Article 1052244. https://doi.org/10.3389/fresc.2023.1052244

Disproportionate negative effects since the pandemic have amplified the already limited post-diagnostic support for older people with dementia. This paper summarizes an exploratory randomized controlled study of a proactive family-based intervention... Read More about The memory clinic and psychosocial intervention: Translating past promise into current practices.

The dynamic nature of being a person’: an ethnographic study of people living with dementia in their communities (2023)
Journal Article
Moniz-Cook, E., Birt, L., Charlesworth, G., Leung, P., Higgs, P., Orrell, M., & Poland, F. (2023). The dynamic nature of being a person’: an ethnographic study of people living with dementia in their communities. Gerontologist, 63(8), 1320-1329. https://doi.org/10.1093/geront/gnad022

Background : A dementia diagnosis can impact on social interactions. This study aims to understand how people living with dementia act as social beings within everyday interactions in their local communities.
Research design and methods : Focused et... Read More about The dynamic nature of being a person’: an ethnographic study of people living with dementia in their communities.

A Web-Based Self-management App for Living Well With Dementia: User-Centered Development Study (2023)
Journal Article
Lee, A. R., Csipke, E., Yates, L., Moniz-Cook, E., McDermott, O., Taylor, S., Stephens, M., Kelleher, D., & Orrell, M. (2023). A Web-Based Self-management App for Living Well With Dementia: User-Centered Development Study. JMIR Human Factors, 10, Article e40785. https://doi.org/10.2196/40785

Background: Self-management, autonomy, and quality of life are key constructs in enabling people to live well with dementia. This population often becomes isolated following diagnosis, but it is important for them to feel encouraged to maintain their... Read More about A Web-Based Self-management App for Living Well With Dementia: User-Centered Development Study.