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Health-related quality of life and well-being in people over 75 years of age with end-stage kidney disease managed with dialysis or comprehensive conservative care: A cross-sectional study in the UK and Australia (2019)
Journal Article
Shah, K. K., Murtagh, F. E., McGeechan, K., Crail, S., Burns, A., Tran, A. D., & Morton, R. L. (2019). Health-related quality of life and well-being in people over 75 years of age with end-stage kidney disease managed with dialysis or comprehensive conservative care: A cross-sectional study in the UK and Australia. BMJ open, 9(5), Article e027776. https://doi.org/10.1136/bmjopen-2018-027776

© Author(s) (or their employer(s)) 2018. Re-use permitted under CC BY-NC. No commercial re-use. See rights and permissions. Published by BMJ. Objective To measure health-related quality of life (HRQoL) and well-being in older people with end-stage ki... Read More about Health-related quality of life and well-being in people over 75 years of age with end-stage kidney disease managed with dialysis or comprehensive conservative care: A cross-sectional study in the UK and Australia.

Battery operated fan and chronic breathlessness: Does it help? (2019)
Journal Article
Barnes-Harris, M., Swan, F., Allgar, V., Booth, S., Currow, D., Hart, S., Phillips, J., & Johnson, M. J. (in press). Battery operated fan and chronic breathlessness: Does it help?. BMJ supportive & palliative care, https://doi.org/10.1136/bmjspcare-2018-001749

Objectives: To examine whether use of a hand-held fan (â € fan') improves breathlessness and increases physical activity. Methods: A secondary exploratory analysis using pooled data from the fan arms of two feasibility randomised controlled trials in... Read More about Battery operated fan and chronic breathlessness: Does it help?.

An integrated understanding of the complex drivers of emergency presentations and admissions in cancer patients: qualitative modelling of secondary-care health professionals’ experiences and views (2019)
Journal Article
Chen, H., Walabyeki, J., Johnson, M., Boland, E., Seymour, J., & Macleod, U. (2019). An integrated understanding of the complex drivers of emergency presentations and admissions in cancer patients: qualitative modelling of secondary-care health professionals’ experiences and views. PLoS ONE, 14(5), Article e0216430. https://doi.org/10.1371/journal.pone.0216430

The number of cancer-related emergency presentations and admissions has been steadily increasing in the UK. Drivers of this phenomenon are complex, multifactorial and interlinked. The main objective of this study was to understand the complexity of e... Read More about An integrated understanding of the complex drivers of emergency presentations and admissions in cancer patients: qualitative modelling of secondary-care health professionals’ experiences and views.

A longitudinal cohort study of symptoms and other concerns among Nigerian people with stages 3–5 chronic kidney diseases: study protocol (2019)
Journal Article
Olagunju, A. T., Fadipe, B., Buraimoh, R. W., Ale, O. K., Umeizudike, T. I., Ogbolu, R. E., Buyinza, N., Bayuo, J., Mutedzi, B., Nkhoma, K., Namisango, E., Bristowe, K., Yi, D., Downing, J., Aina, O. F., Adeyemi, J. D., Murtagh, F. E., & Harding, R. (2019). A longitudinal cohort study of symptoms and other concerns among Nigerian people with stages 3–5 chronic kidney diseases: study protocol. Annals of palliative medicine, 8(2), 190-198. https://doi.org/10.21037/apm.2018.10.03

Background: The burden of symptoms and other concerns in chronic kidney disease (CKD) is known to be high, adversely affecting the quality of life of the growing number of those with this condition in developing countries. In this paper, we describe... Read More about A longitudinal cohort study of symptoms and other concerns among Nigerian people with stages 3–5 chronic kidney diseases: study protocol.

Socioeconomic position and use of health care in the last year of life: a systematic review and meta-analysis (2019)
Journal Article
Davies, J. M., Sleeman, K. E., Leniz, J., Wilson, R., Higginson, I. J., Verne, J., Maddocks, M., & Murtagh, F. E. (2019). Socioeconomic position and use of health care in the last year of life: a systematic review and meta-analysis. PLoS Medicine, 16(4), Article e1002782. https://doi.org/10.1371/journal.pmed.1002782

BACKGROUND: Low socioeconomic position (SEP) is recognized as a risk factor for worse health outcomes. How socioeconomic factors influence end-of-life care, and the magnitude of their effect, is not understood. This review aimed to synthesise and qua... Read More about Socioeconomic position and use of health care in the last year of life: a systematic review and meta-analysis.

The roles of dispositional coping style and social support in helping people with respiratory disease cope with a breathlessness crisis (2019)
Journal Article
Johnson, M., Garcia, M. V., Luckett, T., Hutchinson, A., Lal, S., & Phillips, J. (2019). The roles of dispositional coping style and social support in helping people with respiratory disease cope with a breathlessness crisis. Journal of advanced nursing, 75(9), 1953-1965. https://doi.org/10.1111/jan.14039

Aim: To explore the role of coping moderators in self-management of breathlessness crises by people with advanced respiratory disease. Design: A secondary analysis of semi-structured interview data. Methods: Interviews with patients who had advanced... Read More about The roles of dispositional coping style and social support in helping people with respiratory disease cope with a breathlessness crisis.

“How Long Have I Got?”—A Prospective Cohort Study Comparing Validated Prognostic Factors for Use in Patients with Advanced Cancer (2019)
Journal Article
Simmons, C., McMillan, D. C., Tuck, S., Graham, C., McKeown, A., Bennett, M., O'Neill, C., Wilcock, A., Usborne, C., Fearon, K. C., Fallon, M., Laird, B. J., Lingesan, G., Franks, A., Chaitanya, V., Chauhan, A., Stuart, N., Ross, C., Isherwood, R., Johnson, M., …Durrani. (2019). “How Long Have I Got?”—A Prospective Cohort Study Comparing Validated Prognostic Factors for Use in Patients with Advanced Cancer. Oncologist, 24(9), e960-e967. https://doi.org/10.1634/theoncologist.2018-0474

© AlphaMed Press 2019 Background: The optimal prognostic factors in patients with advanced cancer are not known, as a comparison of these is lacking. The aim of the present study was to determine the optimal prognostic factors by comparing validated... Read More about “How Long Have I Got?”—A Prospective Cohort Study Comparing Validated Prognostic Factors for Use in Patients with Advanced Cancer.

Bleedthrough: The Two-Way Traffic between Popular Historiography and Fiction (2019)
Journal Article
Gilchrist, M. (2019). Bleedthrough: The Two-Way Traffic between Popular Historiography and Fiction. Journal of historical fictions, 2(1), 18-44

While historical fiction is dependent on historiography, it can exert a powerful hold on authors of non-fiction and their depictions of the past, especially at popular level. Case-studies of characters from the Crusades (Conrad of Montferrat) and the... Read More about Bleedthrough: The Two-Way Traffic between Popular Historiography and Fiction.

Increasing access to integrated ESKD care as part of Universal Health Coverage (2019)
Journal Article
Yao, Q., Walker, R., Walker, R. C., Vachharajani, T., Tungsanga, K., Trask, M., Tesar, V., Tchokhonelidze, I., Schneditz, D., Saleh, A., Sahay, M., Rondeau, E., Richards, M., Rashid, H. U., Rahman, M., Perl, J., Ossareh, S., Obrador, G. T., Niang, A., Nangaku, M., …Murtagh, F. (2019). Increasing access to integrated ESKD care as part of Universal Health Coverage. Kidney International, 95(4), S1-S33. https://doi.org/10.1016/j.kint.2018.12.005

The global nephrology community recognizes the need for a cohesive strategy to address the growing problem of end-stage kidney disease (ESKD). In March 2018, the International Society of Nephrology hosted a summit on integrated ESKD care, including 9... Read More about Increasing access to integrated ESKD care as part of Universal Health Coverage.

Pulmonary rehabilitation, physical activity, respiratory failure and palliative respiratory care (2019)
Journal Article
Spruit, M. A., Rochester, C. L., Pitta, F., Kenn, K., Schols, A. M., Hart, N., Wouters, E. F. M., Nava, S., Dreher, M., Janssen, D. J. A., Johnson, M. J., Curtis, R. J., Sastry, M., & Franssen, F. M. E. (2019). Pulmonary rehabilitation, physical activity, respiratory failure and palliative respiratory care. Thorax, 74(7), 693-699. https://doi.org/10.1136/thoraxjnl-2018-212044

© Author(s) (or their employer(s)) 2019. No commercial re-use. See rights and permissions. Published by BMJ. The CIRO Academy in Horn (the Netherlands) organised a 2-day meeting to present and discuss the studies published in 2017 pertaining to key p... Read More about Pulmonary rehabilitation, physical activity, respiratory failure and palliative respiratory care.

Airflow relieves chronic breathlessness in people with advanced disease: an exploratory systematic review and meta-analyses (2019)
Journal Article
Swan, F., Newey, A., Bland, M., Allgar, V., Booth, S., Bausewein, C., Yorke, J., & Johnson, M. (2019). Airflow relieves chronic breathlessness in people with advanced disease: an exploratory systematic review and meta-analyses. Palliative medicine, 33(6), 618-633. https://doi.org/10.1177/0269216319835393

Background: Chronic breathlessness is a neglected symptom of advanced diseases. Aim: To examine the effect of airflow for chronic breathlessness relief. Design: Exploratory systematic review and meta-analysis. Data sources: Medline, CINAHL, AMED and... Read More about Airflow relieves chronic breathlessness in people with advanced disease: an exploratory systematic review and meta-analyses.

Delirium management by palliative medicine specialists: a survey from the association for palliative medicine of Great Britain and Ireland (2019)
Journal Article
Boland, J. W., Kabir, M., Bush, S. H., Spiller, J. A., Johnson, M. J., Agar, M., & Lawlor, P. (in press). Delirium management by palliative medicine specialists: a survey from the association for palliative medicine of Great Britain and Ireland. BMJ supportive & palliative care, bmjspcare-2018-001586. https://doi.org/10.1136/bmjspcare-2018-001586

Objectives Delirium is common in palliative care settings. Management includes detection, treatment of cause(s), non-pharmacological interventions and family support; strategies which are supported with varying levels of evidence. Emerging evidence s... Read More about Delirium management by palliative medicine specialists: a survey from the association for palliative medicine of Great Britain and Ireland.

Optimising feedback for early career professionals: a scoping review and new framework (2019)
Journal Article
Mattick, K., Brennan, N., Briscoe, S., Papoutsi, C., & Pearson, M. (2019). Optimising feedback for early career professionals: a scoping review and new framework. Medical Education, 53(4), 355-368. https://doi.org/10.1111/medu.13794

© 2019 John Wiley & Sons Ltd and The Association for the Study of Medical Education Context: Meta-analyses have shown that feedback can be a powerful intervention to increase learning and performance but there is significant variability in impact.... Read More about Optimising feedback for early career professionals: a scoping review and new framework.

Patients’ views on care and their association with outcomes in palliative care (2019)
Journal Article
Pinto, C., Firth, A. M., Groeneveld, E. I., Guo, P., Sykes, N., & Murtagh, F. E. (2019). Patients’ views on care and their association with outcomes in palliative care. Palliative medicine, 33(4), 467-469. https://doi.org/10.1177/0269216319831383

When patients face advanced illness, their experience of care is especially important. In palliative care, we often rely on the accounts of bereaved relatives to report the quality of end-of-life care, and there are no validated patient-reported meas... Read More about Patients’ views on care and their association with outcomes in palliative care.

Parental life-limiting illness: What do we tell the children? (2019)
Journal Article
Fearnley, R., & Boland, J. W. (2019). Parental life-limiting illness: What do we tell the children?. Healthcare, 7(1), 47. https://doi.org/10.3390/healthcare7010047

Being diagnosed with and having a life-limiting illness is a stressful experience which is compounded when the patient has dependent children. An important aspect of the patient’s psychosocial care should include recognition that their children are a... Read More about Parental life-limiting illness: What do we tell the children?.

The hand-held fan and the Calming Hand for people with chronic breathlessness: a feasibility trial (2019)
Journal Article
Swan, F., English, A., Allgar, V., Hart, S. P., & Johnson, M. J. (2019). The hand-held fan and the Calming Hand for people with chronic breathlessness: a feasibility trial. Journal of pain and symptom management, 57(6), 1051-1061.e1. https://doi.org/10.1016/j.jpainsymman.2019.02.017

Context: The battery-operated hand-held fan (“fan”)and the Calming Hand (CH), a cognitive strategy, are interventions used in clinical practice to relieve chronic breathlessness. Objective: To test the feasibility of a Phase III randomized controlled... Read More about The hand-held fan and the Calming Hand for people with chronic breathlessness: a feasibility trial.

How can training in care of the dying be improved? (2019)
Journal Article
Gajebasia, S., Pearce, J., Redman, M., Johnson, M., & Finn, G. (2019). How can training in care of the dying be improved?. Clinical Teacher, 16(6), 610-614. https://doi.org/10.1111/tct.12999

Background: Care of the dying patient is an intrinsic part of the role of Foundation Year doctors (FYs). This study aimed to explore FYs’ experiences of training and their perceived training needs for their role in care of the dying. Care of the dyin... Read More about How can training in care of the dying be improved?.