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Professor Miriam Johnson's Projects (32)

Publication Costs Award Apr 11, 2022 - Dec 31, 2022
Unmet needs in patients with cancer and their carers are common but poorly identified and addressed. The Needs Assessment Tool- Cancer (NAT-C) is a structured consultation guide to identify and triage patient and carer unmet needs. The NAT-C is valid... Read More about Publication Costs Award.

Living well with chronic breathlessness: Improving the sustainable use of supported self-management strategies Mar 1, 2023 - Dec 31, 2024
Chronic (persistent) breathlessness restricts social lives and day-to-day tasks. Breathlessness services can support people to self-manage, but there is often a gap between knowing what to do and doing it - true for patients, carers and clinicians al... Read More about Living well with chronic breathlessness: Improving the sustainable use of supported self-management strategies.

BREATHE-INDIA: BREATHlEssness in INDIA - Development of a breathlessness beliefs and behaviour education intervention for use in the community-setting Oct 1, 2022 - Mar 31, 2024
PUBLIC HEALTH CHALLENGE: Chronic (persistent) breathlessness despite treatment of causal disease(s) 1 is associated with disability and a vicious cycle of avoiding physical activity-related breathlessness,2 deconditioning and increasing breathlessnes... Read More about BREATHE-INDIA: BREATHlEssness in INDIA - Development of a breathlessness beliefs and behaviour education intervention for use in the community-setting.

Supporting, enabling and sustaining home care workers to deliver end-of-life care: amultiple-methods community-based case study Oct 1, 2022 - Jul 14, 2025
This 30 month study will;
1) To understand the experience of social care assistants providing end of life care, the care they give, how they work with healthcare staff and family members or friends, and what all involved (including the person receiv... Read More about Supporting, enabling and sustaining home care workers to deliver end-of-life care: amultiple-methods community-based case study.

Exploring ‘the domestic’ in contemporary hospice architecture: a critical examination of the architecture and design of in-patient palliative care facilities in England. Sep 20, 2021 - Jan 19, 2025
Although 40 million people worldwide need palliative care annually, there is a lack of understanding about how the architecture and design of palliative care environments helps or hinders this care.
I will conduct a new critical examination of Engli... Read More about Exploring ‘the domestic’ in contemporary hospice architecture: a critical examination of the architecture and design of in-patient palliative care facilities in England..

Adapting a smartphone-based rehabilitation programme for older adults living with and beyond cancer: an intervention development study Apr 1, 2022 - Apr 30, 2024
The number of people living with and beyond cancer is growing; many are over 65 years old who often have different and more complicated healthcare needs than younger people.

Being active is one of the best things people with, or who have had, canc... Read More about Adapting a smartphone-based rehabilitation programme for older adults living with and beyond cancer: an intervention development study.

TRANSFORM: Detecting, preventing, and managing delirium in specialist palliative care units: Co-design and feasibility study of a flexible and scalable implementation strategy to deliver guideline-adherent delirium care Feb 15, 2021 - Dec 31, 2023
Systematic identification, assessment and management of delirium, common in cancer, is crucial; causes may be reversible, preventing further deterioration and death. Currently clinical guidelines are not implemented in hospices. A relevant and flexib... Read More about TRANSFORM: Detecting, preventing, and managing delirium in specialist palliative care units: Co-design and feasibility study of a flexible and scalable implementation strategy to deliver guideline-adherent delirium care.

PrimaryBreathe: programme to develop and test a brief remote primary care intervention for chronic breathlessness Sep 1, 2022 - Aug 31, 2027
Breathlessness affects the daily lives of one in ten adults and a quarter of those aged over 70. The number of people experiencing breathlessness is growing worldwide as long-term health conditions, like heart or lung disease, become more common. COV... Read More about PrimaryBreathe: programme to develop and test a brief remote primary care intervention for chronic breathlessness.

I3: Building Critical Mass, Increasing Scale and Impact for Palliative Care through International Collaboration Aug 1, 2019 - Mar 31, 2025
The world population is ageing and, with the growth of multi-morbidities, UK deaths are expected to increase by 40% by 2040. New models of care and treatments are urgently needed to improve quality of life for the significantly increased numbers of p... Read More about I3: Building Critical Mass, Increasing Scale and Impact for Palliative Care through International Collaboration.

RESOLVE: Improving Health Status and Experience of Pain and other Symptoms for People with Advanced Cancer Jun 1, 2018 - Jan 28, 2024
In Yorkshire, over 14,000 people die from advanced cancer each year, a number expected to rise to 17,000 yearly by 2030. In the weeks or months before they die, people with advanced cancer often experience pain, breathlessness or fatigue-exhaustion,... Read More about RESOLVE: Improving Health Status and Experience of Pain and other Symptoms for People with Advanced Cancer.

CANAssess: Reducing inequalities in care for people with cancer and palliative care needs: a programme of work for cancer patients and caregivers in the community based in Yorkshire Sep 1, 2016 - Jan 30, 2019
People with cancer need good access to palliative care to relieve distressing symptoms, but some get better access than others. Developed in Australia, the Needs Assessment Tool - Progressive Disease Cancer (NAT:PD-C) is a tested, "everyday practice"... Read More about CANAssess: Reducing inequalities in care for people with cancer and palliative care needs: a programme of work for cancer patients and caregivers in the community based in Yorkshire.

NAT ILD: The adaption and validation of an assessment tool to identify the palliative care needs of people with irreversible idiopathic interstitial lung disease for use in every day clinical practice Jun 1, 2014 - Oct 31, 2016
To adapt and validate a needs assessment tool that is fit for purpose in every day clinical practice with regard to the identification of supportive and palliative needs of people with idiopathic pulmonary fibrosis (IPF), and triage those requiring r... Read More about NAT ILD: The adaption and validation of an assessment tool to identify the palliative care needs of people with irreversible idiopathic interstitial lung disease for use in every day clinical practice.

FRAIL-HEART: Assessment of Frailty in Elderly People with Ischemic Heart Disease being considered for Revascularisation: An Observational study Apr 1, 2017 - Mar 31, 2020
To summarise the study, we will recruit patients aged 80 years or more who attend the cardiology and cardio-thoracic departments of Castle Hill Hospital, Hull and who have been given a diagnosis of coronary artery disease. The patients will be identi... Read More about FRAIL-HEART: Assessment of Frailty in Elderly People with Ischemic Heart Disease being considered for Revascularisation: An Observational study.