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The treatment experiences of people living with ileostomies: an interpretative phenomenological analysis

Spiers, Johanna; Smith, Jonathan A.; Simpson, Phillip; Nicholls, Adam R.

Abstract

Aims To explore treatment and healthcare experiences of people living with ileostomies, so nurses can build on best practice whilst caring for these patients. Background Ileostomies, in which the small intestine is re-directed out of a stoma in the abdominal wall so waste is collected using a bag, are used to treat conditions including Inflammatory Bowel Disease. Existing research suggests that although life with a stoma can be challenging, ileostomy patients are largely supported by multi-disciplinary teams. However, more research is needed to understand the nuances of these relationships and experiences of treatment, with a view to improving clinical care. Design Participants took part in semi-structured interviews consisting of open ended questions about their experiences of life with an ileostomy and their treatments and time in hospital. Points of interest were followed up. Data were collected between July and December of 2014. Methods The qualitative method Interpretative Phenomenological Analysis was used to analyse interviews with 21 people living with ileostomies. Findings We present findings from two clinical themes: Issues around treatment and Relationships with multi-disciplinary teams. Surgical complications were common, and several participants reported concerns about addiction to painkillers. Varying attitudes were found around reversal surgery. Many reported experiencing distressing, dehumanising care, whilst some felt supported by excellent healthcare providers. Conclusion People living with ileostomies have a very mixed experience of multi-disciplinary teams and treatments, and much could be done to support them more fully. For example, more information about ileostomies could be given to patients and more training given to nurses around stomas.

Journal Article Type Article
Publication Date 2016-11
Journal Journal of advanced nursing
Print ISSN 0309-2402
Electronic ISSN 1365-2648
Publisher Wiley
Peer Reviewed Peer Reviewed
Volume 72
Issue 11
Pages 2662-2671
DOI https://doi.org/10.1111/jan.13018
Keywords General Nursing
Publisher URL http://onlinelibrary.wiley.com/doi/10.1111/jan.13018/abstract;jsessionid=8BB302EC3C935C58C7731904BB946BCB.f01t01
Additional Information Authors' accepted manuscript of article : Spiers J., Smith J.A., Simpson P. & Nicholls A.R. (2016) The treatment experiences of people living with ileostomies: an interpretative phenomenological analysis. Journal of Advanced Nursing 72(11), 2662–2671. doi: 10.1111/jan.13018

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