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A web-based platform for people with memory problems and their caregivers (CAREGIVERSPRO-MMD): Mixed-methods evaluation of usability

Zafeiridi, Paraskevi; Paulson, Kevin; Dunn, Rosie; Wolverson, Emma; White, Caroline; Thorpe, Jonathan Adrian; Antomarini, Marco; Cesaroni, Francesca; Scocchera, Francesca; Landrin-Dutot, Isabelle; Malherbe, Laetitia; Lingiah, Hendi; Bérard, Marie; Gironès, Xavier; Quintana, Maria; Cortés, Ulises; Barrué, Cristian; Cortés, Atia; Paliokas, Ioannis; Votis, Konstantinos; Tzovaras, Dimitrios

Authors

Paraskevi Zafeiridi

Kevin Paulson

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Miss Rosie Dunn R.J.Dunn@hull.ac.uk
Researcher | Restorative Supervisor | Dissertation Supervisor

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Dr Emma Wolverson E.Wolverson@hull.ac.uk
Reader in Ageing and Dementia. Research Lead for Dementia UK.

Jonathan Adrian Thorpe

Marco Antomarini

Francesca Cesaroni

Francesca Scocchera

Isabelle Landrin-Dutot

Laetitia Malherbe

Hendi Lingiah

Marie Bérard

Xavier Gironès

Maria Quintana

Ulises Cortés

Cristian Barrué

Atia Cortés

Ioannis Paliokas

Konstantinos Votis

Dimitrios Tzovaras



Abstract

Background: The increasing number of people with dementia (PwD) drives research exploring Web-based support interventions to provide effective care for larger populations. In this concept, a Web-based platform (CAREGIVERSPRO-MMD, 620911) was designed to (1) improve the quality of life for PwD, (2) reduce caregiver burden, (3) reduce the financial costs for care, and (4) reduce administration time for health and social care professionals. Objective: The objective of this study was to evaluate the usability and usefulness of CAREGIVERSPRO-MMD platform for PwD or mild cognitive impairment (MCI), informal caregivers, and health and social care professionals with respect to a wider strategy followed by the project to enhance the user-centered approach. A secondary aim of the study was to collect recommendations to improve the platform before the future pilot study. Methods: A mixed methods design was employed for recruiting PwD or MCI (N=24), informal caregivers (N=24), and professionals (N=10). Participants were asked to rate their satisfaction, the perceived usefulness, and ease of use of each function of the platform. Qualitative questions about the improvement of the platform were asked when participants provided low scores for a function. Testing occurred at baseline and 1 week after participants used the platform. The dropout rate from baseline to the follow-up was approximately 10% (6/58). Results: After 1 week of platform use, the system was useful for 90% (20.75/23) of the caregivers and for 89% (5.36/6) of the professionals. When users responded to more than 1 question per platform function, the mean of satisfied users per function was calculated. These user groups also provided positive evaluations for the ease of use (caregivers: 82%, 18.75/23; professionals: 97%, 5.82/6) and their satisfaction with the platform (caregivers: 79%, 18.08/23; professionals: 73%, 4.36/6). Ratings from PwD were lower than the other groups for usefulness (57%, 13/23), ease of use (41%, 9.4/23), and overall satisfaction (47%, 11/23) with the platform (P

Citation

Zafeiridi, P., Paulson, K., Dunn, R., Wolverson, E., White, C., Thorpe, J. A., …Tzovaras, D. (2018). A web-based platform for people with memory problems and their caregivers (CAREGIVERSPRO-MMD): Mixed-methods evaluation of usability. JMIR Formative Research, 2(1), Article e4. https://doi.org/10.2196/formative.9083

Journal Article Type Article
Acceptance Date Jan 22, 2018
Online Publication Date Mar 12, 2018
Publication Date Mar 12, 2018
Deposit Date Jan 23, 2018
Publicly Available Date Mar 28, 2024
Electronic ISSN 2561-326X
Publisher JMIR Publications
Peer Reviewed Peer Reviewed
Volume 2
Issue 1
Article Number e4
DOI https://doi.org/10.2196/formative.9083
Keywords Dementia; Technology; Social support; Caregivers
Public URL https://hull-repository.worktribe.com/output/553004
Publisher URL https://formative.jmir.org/2018/1/e4/

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Publisher Licence URL
http://creativecommons.org/licenses/by/4.0

Copyright Statement
©Paraskevi Zafeiridi, Kevin Paulson, Rosie Dunn, Emma Wolverson, Caroline White, Jonathan Adrian Thorpe, Marco Antomarini,
Francesca Cesaroni, Francesca Scocchera, Isabelle Landrin-Dutot, Laëtitia Malherbe, Hendi Lingiah, Marie Bérard, Xavier
Gironès, Maria Quintana, Ulises Cortés, Cristian Barrué, Atia Cortés, Ioannis Paliokas, Konstantinos Votis, Dimitrios Tzovaras.
Originally published in JMIR Formative Research (http://formative.jmir.org), 12.03.2018. This is an open-access article distributed
under the terms of the Creative Commons Attribution License (https://creativecommons.org/licenses/by/4.0/), which permits
unrestricted use, distribution, and reproduction in any medium, provided the original work, first published in JMIR Formative
Research, is properly cited. The complete bibliographic information, a link to the original publication on http://formative.jmir.org,
as well as this copyright and license information must be included.





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