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Outputs (96)

Operationalising the Recovery College model with people living with dementia: a realist review (2024)
Journal Article
Handley, M., Wheeler, C., Duddy, C., Wong, G., Birt, L., Fox, C., …West, J. (2024). Operationalising the Recovery College model with people living with dementia: a realist review. Aging and Mental Health, https://doi.org/10.1080/13607863.2024.2356878

Objectives Post-diagnostic support is a significant factor in facilitating personal recovery following a diagnosis of dementia, but access is often inconsistent and insufficient. Recovery Colleges offer peer-led, co-produced courses that can support... Read More about Operationalising the Recovery College model with people living with dementia: a realist review.

Social prescribing for people living with dementia (PLWD) and their carers: what works, for whom, under what circumstances and why – protocol for a complex intervention systematic review (2024)
Journal Article
Marshall, J., Papavasiliou, E., Fox, C., Hawkes, M., Irvine, A., Moniz-Cook, E., …Cross, J. L. (2024). Social prescribing for people living with dementia (PLWD) and their carers: what works, for whom, under what circumstances and why – protocol for a complex intervention systematic review. BMJ open, 14(4), Article e080551. https://doi.org/10.1136/bmjopen-2023-080551

Introduction Dementia is a complex medical condition that poses significant challenges to healthcare systems and support services. People living with dementia (PLWD) and their carers experience complex needs often exacerbated by social isolation an... Read More about Social prescribing for people living with dementia (PLWD) and their carers: what works, for whom, under what circumstances and why – protocol for a complex intervention systematic review.

Adapted problem adaptation therapy for depression in mild to moderate Alzheimer's disease dementia: A randomized controlled trial (2024)
Journal Article
Howard, R., Cort, E., Rawlinson, C., Wiegand, M., Downey, A., Lawrence, V., …Gould, R. (2024). Adapted problem adaptation therapy for depression in mild to moderate Alzheimer's disease dementia: A randomized controlled trial. Alzheimer's & dementia, https://doi.org/10.1002/alz.13766

INTRODUCTION: Trials of effectiveness of treatment options for depression in dementia are an important priority. METHODS: Randomized controlled trial to assess adapted Problem Adaptation Therapy (PATH) for depression in mild/moderate dementia caused... Read More about Adapted problem adaptation therapy for depression in mild to moderate Alzheimer's disease dementia: A randomized controlled trial.

Impact of the iWHELD digital person-centered care program on quality of life, agitation and psychotropic medications in people with dementia living in nursing homes during the COVID-19 pandemic: A randomized controlled trial (2023)
Journal Article
Mcdermid, J., Henley, W., Corbett, A., Williams, G., Fossey, J., Clare, L., …Ballard, C. (in press). Impact of the iWHELD digital person-centered care program on quality of life, agitation and psychotropic medications in people with dementia living in nursing homes during the COVID-19 pandemic: A randomized controlled trial. Alzheimer's & dementia, https://doi.org/10.1002/alz.13582

Introduction: iWHELD is a digital person-centered care program for people with dementia in nursing homes adapted for remote delivery during the COVID-19 pandemic. Methods: A 16-week two-arm cluster-randomized controlled trial in 149 UK nursing homes... Read More about Impact of the iWHELD digital person-centered care program on quality of life, agitation and psychotropic medications in people with dementia living in nursing homes during the COVID-19 pandemic: A randomized controlled trial.

Protocol for a realist evaluation of Recovery College dementia courses: understanding coproduction through ethnography (2023)
Journal Article
Birt, L., West, J., Poland, F., Wong, G., Handley, M., Litherland, R., …Fox, C. (2023). Protocol for a realist evaluation of Recovery College dementia courses: understanding coproduction through ethnography. BMJ open, 13(12), Article e078248. https://doi.org/10.1136/bmjopen-2023-078248

Introduction Support following a dementia diagnosis in the UK is variable. Attending a Recovery College course with and for people with dementia, their supporters and healthcare professionals (staff), may enable people to explore and enact ways to li... Read More about Protocol for a realist evaluation of Recovery College dementia courses: understanding coproduction through ethnography.

Data resource profile: the virtual international care homes trials archive (VICHTA) (2023)
Journal Article
Irvine, L., Burton, J., Ali, M., Booth, J., Desborough, J., Logan, P., …Goodman, C. (2023). Data resource profile: the virtual international care homes trials archive (VICHTA). International Journal of Population Data Science, 8(6), https://doi.org/10.23889/ijpds.v8i6.2161

Introduction Randomised controlled trials (RCTs) conducted in care home settings address a range of health conditions impacting older people, but often include a common core of data about residents and the care home environment. These data can be use... Read More about Data resource profile: the virtual international care homes trials archive (VICHTA).

Building an initial understanding of UK Recovery College dementia courses: A national survey of Recovery College and memory services staff. (2023)
Journal Article
Wolverson, E., Hague, L., West, J., Teague, B., Fox, C., Birt, L., …Moniz-Cook, E. (in press). Building an initial understanding of UK Recovery College dementia courses: A national survey of Recovery College and memory services staff. Working with Older People, https://doi.org/10.1108/WWOP-02-2023-0003

Purpose Recovery Colleges were developed to support the recovery of people with mental health difficulties through courses co-produced by professionals and people with lived experience. This study aims to examine the use of Recovery Colleges to supp... Read More about Building an initial understanding of UK Recovery College dementia courses: A national survey of Recovery College and memory services staff..

Community Occupational Therapy in Dementia intervention for people with mild to moderate dementia and their family carers in the UK: the VALID research programme including RCT (2023)
Journal Article
Wenborn, J., Mountain, G., Moniz-Cook, E., Poland, F., King, M., Omar, R., …Orrell, M. (2023). Community Occupational Therapy in Dementia intervention for people with mild to moderate dementia and their family carers in the UK: the VALID research programme including RCT. Programme Grants for Applied Research, 11(5), vii-76. https://doi.org/10.3310/RGTJ7429

Background: People with dementia find it increasingly difficult to carry out daily activities (activities of daily living), and may require increasing support from family carers. Researchers in the Netherlands developed the Community Occupational The... Read More about Community Occupational Therapy in Dementia intervention for people with mild to moderate dementia and their family carers in the UK: the VALID research programme including RCT.

The memory clinic and psychosocial intervention: Translating past promise into current practices (2023)
Journal Article
Moniz-Cook, E., & Mountain, G. (2023). The memory clinic and psychosocial intervention: Translating past promise into current practices. Frontiers in Rehabilitation Sciences, 4, Article 1052244. https://doi.org/10.3389/fresc.2023.1052244

Disproportionate negative effects since the pandemic have amplified the already limited post-diagnostic support for older people with dementia. This paper summarizes an exploratory randomized controlled study of a proactive family-based intervention... Read More about The memory clinic and psychosocial intervention: Translating past promise into current practices.

The dynamic nature of being a person’: an ethnographic study of people living with dementia in their communities (2023)
Journal Article
Moniz-Cook, E., Birt, L., Charlesworth, G., Leung, P., Higgs, P., Orrell, M., & Poland, F. (2023). The dynamic nature of being a person’: an ethnographic study of people living with dementia in their communities. Gerontologist, 63(8), 1320-1329. https://doi.org/10.1093/geront/gnad022

Background : A dementia diagnosis can impact on social interactions. This study aims to understand how people living with dementia act as social beings within everyday interactions in their local communities. Research design and methods : Focused et... Read More about The dynamic nature of being a person’: an ethnographic study of people living with dementia in their communities.

A Web-Based Self-management App for Living Well With Dementia: User-Centered Development Study (2023)
Journal Article
Lee, A. R., Csipke, E., Yates, L., Moniz-Cook, E., McDermott, O., Taylor, S., …Orrell, M. (2023). A Web-Based Self-management App for Living Well With Dementia: User-Centered Development Study. JMIR Human Factors, 10, Article e40785. https://doi.org/10.2196/40785

Background: Self-management, autonomy, and quality of life are key constructs in enabling people to live well with dementia. This population often becomes isolated following diagnosis, but it is important for them to feel encouraged to maintain their... Read More about A Web-Based Self-management App for Living Well With Dementia: User-Centered Development Study.

Management of Agitation in Behaviours That Challenge in Dementia Care: Multidisciplinary Perspectives on Non-Pharmacological Strategies (2023)
Journal Article
James, I. A., Reichelt, K., Shirley, L., & Moniz-Cook, E. (2023). Management of Agitation in Behaviours That Challenge in Dementia Care: Multidisciplinary Perspectives on Non-Pharmacological Strategies. Clinical Interventions in Aging, 18, 219-230. https://doi.org/10.2147/CIA.S399697

Objective: NICE guidelines recommend non-pharmacological interventions as the first-line approach for the management of behaviours that challenge. Recent work, however, highlights dissatisfaction with the lack of detailed guidance in the national gui... Read More about Management of Agitation in Behaviours That Challenge in Dementia Care: Multidisciplinary Perspectives on Non-Pharmacological Strategies.

Impact of the Covid-19 pandemic on neuropsychiatric symptoms and antipsychotic prescribing for people with dementia in nursing home settings (2023)
Journal Article
McDermid, J., Ballard, C., Khan, Z., Aarsland, D., Fox, C., Fossey, J., Clare, L., Moniz-Cook, E., Soto-Martin, M., Sweetnam, A., Mills, K., Cummings, J., & Corbett, A. (2023). Impact of the Covid-19 pandemic on neuropsychiatric symptoms and antipsychotic prescribing for people with dementia in nursing home settings. International journal of geriatric psychiatry, 38(1), Article e5878. https://doi.org/10.1002/gps.5878

Objectives: This study aimed to determine the impact of the Covid-19 pandemic on neuropsychiatric symptoms and antipsychotic use in people with dementia living in nursing homes. Methods: This was a comparative analysis of baseline data from two large... Read More about Impact of the Covid-19 pandemic on neuropsychiatric symptoms and antipsychotic prescribing for people with dementia in nursing home settings.

Building an initial understanding of UK Recovery College dementia courses: a national survey of Recovery College and memory services staff (2023)
Journal Article
Wolverson, E., Hague, L., West, J., Teague, B., Fox, C., Birt, L., …Moniz-Cook, E. (2023). Building an initial understanding of UK Recovery College dementia courses: a national survey of Recovery College and memory services staff. Working with Older People, https://doi.org/10.1108/WWOP-02-2023-0003

Purpose: Recovery Colleges were developed to support the recovery of people with mental health difficulties through courses co-produced by professionals and people with lived experience. This study aims to examine the use of Recovery Colleges to supp... Read More about Building an initial understanding of UK Recovery College dementia courses: a national survey of Recovery College and memory services staff.

Recognition of social health: A conceptual framework in the context of dementia research (2022)
Journal Article
Vernooij-Dassen, M., Verspoor, E., Samtani, S., Sachdev, P. S., Ikram, M. A., Vernooij, M. W., …Wolf-Ostermann, K. (2022). Recognition of social health: A conceptual framework in the context of dementia research. Frontiers in Psychiatry, 13, Article 1052009. https://doi.org/10.3389/fpsyt.2022.1052009

Objective: The recognition of dementia as a multifactorial disorder encourages the exploration of new pathways to understand its origins. Social health might play a role in cognitive decline and dementia, but conceptual clarity is lacking and this hi... Read More about Recognition of social health: A conceptual framework in the context of dementia research.

Stigma among UK family carers of people living with dementia (2022)
Journal Article
Bhatt, J., Scior, K., Stoner, C. R., Moniz-Cook, E., & Charlesworth, G. (2022). Stigma among UK family carers of people living with dementia. BJPsych Open, 8(6), Article E179. https://doi.org/10.1192/bjo.2022.585

Background Models of caregiving seldom include the role of stigma when understanding the experiences of carers of people living with dementia. Aims To investigate the validity of the Family Stigma Instrument (FAMSI), and use it to explore the extent... Read More about Stigma among UK family carers of people living with dementia.

Person-centered assessment of apathy and resistance to care in people living with dementia: Review of existing measures (2022)
Journal Article
Mast, B. T., Ertle, E. M., Kolanowski, A., Mountain, G., Moniz-Cook, E., & Halek, M. (2022). Person-centered assessment of apathy and resistance to care in people living with dementia: Review of existing measures. Alzheimer's and Dementia: Translational Research and Clinical Interventions, 8(1), Article e12316. https://doi.org/10.1002/trc2.12316

Introduction: The review described in this paper builds upon the Dementia Care Practice Recommendations (DCPR) published by the Alzheimer's Association in 2018 and addresses behavior change and the need for targeted outcome measures that evolve from... Read More about Person-centered assessment of apathy and resistance to care in people living with dementia: Review of existing measures.

An intervention to promote self-management, independence and self-efficacy in people with early-stage dementia: the Journeying through Dementia RCT (2022)
Journal Article
Mountain, G., Wright, J., Cooper, C. L., Lee, E., Sprange, K., Beresford-Dent, J., …Foster, A. (2022). An intervention to promote self-management, independence and self-efficacy in people with early-stage dementia: the Journeying through Dementia RCT. Health Technology Assessment, 26(24), 1-152. https://doi.org/10.3310/KHHA0861

BACKGROUND: There are few effective interventions for dementia. AIM: To determine the clinical effectiveness and cost-effectiveness of an intervention to promote self-management, independence and self-efficacy in people with early-stage dementia. OBJ... Read More about An intervention to promote self-management, independence and self-efficacy in people with early-stage dementia: the Journeying through Dementia RCT.

The Journeying through Dementia psychosocial intervention versus usual care study: a single-blind, parallel group, phase 3 trial (2022)
Journal Article
Mountain, G. A., Cooper, C. L., Wright, J., Walters, S. J., Lee, E., Craig, C., …Young, E. L. (2022). The Journeying through Dementia psychosocial intervention versus usual care study: a single-blind, parallel group, phase 3 trial. The Lancet Healthy Longevity, 3(4), e276-e285. https://doi.org/10.1016/S2666-7568%2822%2900059-9

Background: There is an urgent clinical need for evidence-based psychosocial interventions for people with mild dementia. We aimed to determine the clinical benefits and cost-effectiveness of Journeying through Dementia (JtD), an intervention designe... Read More about The Journeying through Dementia psychosocial intervention versus usual care study: a single-blind, parallel group, phase 3 trial.

Family carer perspectives on the language of behaviour change in dementia: an online mixed methods survey (2022)
Journal Article
Wolverson, E., Moniz-Cook, E., Dunn, R., & Dunning, R. (2022). Family carer perspectives on the language of behaviour change in dementia: an online mixed methods survey. Age and ageing, 51(3), Article afac047. https://doi.org/10.1093/ageing/afac047

OBJECTIVE: following the #BanBPSD campaign there has been critical interest in common terminology used for 'changes in behaviour' associated with dementia. However, commentaries and emerging studies have not fully considered family carer perspectives... Read More about Family carer perspectives on the language of behaviour change in dementia: an online mixed methods survey.

Achieving Quality and Effectiveness in Dementia Using Crisis Teams (AQUEDUCT): a study protocol for a randomised controlled trial of a Resource Kit (2022)
Journal Article
Coleston-Shields, D. M., Challis, D., Worden, A., Broome, E., Dening, T., Guo, B., …Orrell, M. (2022). Achieving Quality and Effectiveness in Dementia Using Crisis Teams (AQUEDUCT): a study protocol for a randomised controlled trial of a Resource Kit. Trials, 23(1), Article 54. https://doi.org/10.1186/s13063-021-05995-y

Background: Improving care at home for people with dementia is a core policy goal in the dementia strategies of many European countries. A challenge to effective home support is the occurrence of crises in the care of people with dementia which arise... Read More about Achieving Quality and Effectiveness in Dementia Using Crisis Teams (AQUEDUCT): a study protocol for a randomised controlled trial of a Resource Kit.

Professional perspectives on applying the NICE and British Psychological Society Guidelines for the management of Behaviours that Challenge in dementia care: an e-survey (2021)
Journal Article
Gray, K. L., Moniz-Cook, E., Reichelt, K., Duffy, F., & James, I. A. (2021). Professional perspectives on applying the NICE and British Psychological Society Guidelines for the management of Behaviours that Challenge in dementia care: an e-survey. British Journal of Clinical Psychology, https://doi.org/10.1111/bjc.12316

Objectives: Behaviours that challenge (BtC) reflect the most costly and burdensome aspects of dementia where non-pharmacological interventions rather than antipsychotic medication have been recommended as first-line approaches for over a decade (NICE... Read More about Professional perspectives on applying the NICE and British Psychological Society Guidelines for the management of Behaviours that Challenge in dementia care: an e-survey.

Getting our terminology right: the power of language (2021)
Journal Article
James, I., Reichelt, K., Duffy, F., & Moniz-Cook, E. (2021). Getting our terminology right: the power of language. Journal of Dementia Care, 29(2), 24-27

For over 25 years, the term challenging behaviour (CB) has been used to describe agitation and other “distressed” behaviours associated with dementia (Stokes 2000). But such is the power of language and the importance of getting our terminology right... Read More about Getting our terminology right: the power of language.

Behavioural and psychological symptoms of dementia : a new framework for holistic understanding and non-pharmacological management (2021)
Journal Article
James, I. A., Gray, K., Moniz-Cook, E., Lee, K., Reichelt, K., & Richardson, J. (2022). Behavioural and psychological symptoms of dementia : a new framework for holistic understanding and non-pharmacological management. BJPsych Advances, 28(1), 11-20. https://doi.org/10.1192/bja.2021.12

The National Institute for Health and Care Excellence (NICE) informs us that the first-line treatments for behavioural and psychological symptoms of dementia (BPSD) are non-pharmacological. Although psychotropics used to be the main strategy in the m... Read More about Behavioural and psychological symptoms of dementia : a new framework for holistic understanding and non-pharmacological management.

The language of behaviour changes in dementia: A mixed methods survey exploring the perspectives of people with dementia (2021)
Journal Article
Wolverson, E., Moniz-Cook, E., Dunn, R., Gove, D., & Diaz-Ponce, A. (2021). The language of behaviour changes in dementia: A mixed methods survey exploring the perspectives of people with dementia. Journal of advanced nursing, 77(4), 1992-2001. https://doi.org/10.1111/jan.14787

Aims: The aim of this study was to explore the opinions of people with dementia, about the language used to describe changes in behaviour associated with dementia. Design: This study adopted a human rights approach in a mixed methods convergent paral... Read More about The language of behaviour changes in dementia: A mixed methods survey exploring the perspectives of people with dementia.

Community Occupational Therapy for people with dementia and family carers (COTiD-UK) versus treatment as usual (Valuing Active Life in Dementia [VALID]) study: A single-blind, randomised controlled trial (2021)
Journal Article
Wenborn, J., O’Keeffe, A. G., Mountain, G., Moniz-Cook, E., King, M., Omar, R. Z., Mundy, J., Burgess, J., Poland, F., Morris, S., Pizzo, E., Vernooij-Dassen, M., Challis, D., Michie, S., Russell, I., Sackley, C., Graff, M., Swinson, T., Crellin, N., Hynes, S., …Orrell, M. (2021). Community Occupational Therapy for people with dementia and family carers (COTiD-UK) versus treatment as usual (Valuing Active Life in Dementia [VALID]) study: A single-blind, randomised controlled trial. PLoS Medicine, 18(1), Article e1003433. https://doi.org/10.1371/journal.pmed.1003433

© 2021 Wenborn et al. This is an open access article distributed under the terms of the Creative Commons Attribution License, which permits unrestricted use, distribution, and reproduction in any medium, provided the original author and source are cr... Read More about Community Occupational Therapy for people with dementia and family carers (COTiD-UK) versus treatment as usual (Valuing Active Life in Dementia [VALID]) study: A single-blind, randomised controlled trial.

Development of an evidence-based best practice model for teams managing crisis in dementia: Protocol for a qualitative study (2021)
Journal Article
Stanyon, M., Streater, A., Coleston-Shields, D. M., Yates, J., Challis, D., Dening, T., Hoe, J., Lloyd-Evans, B., Mitchell, S., Moniz-Cook, E., Poland, F., Prothero, D., & Orrell, M. (2021). Development of an evidence-based best practice model for teams managing crisis in dementia: Protocol for a qualitative study. JMIR Research Protocols, 10(1), Article e14781. https://doi.org/10.2196/14781

Background: Teams working in the community to manage crisis in dementia currently exist, but with widely varying models of practice, it is difficult to determine the effectiveness of such teams. Objective: The aim of this study is to develop a “best... Read More about Development of an evidence-based best practice model for teams managing crisis in dementia: Protocol for a qualitative study.

Promoting independence in Dementia (Pride): A feasibility randomized controlled trial (2021)
Journal Article
Csipke, E., Shafayat, A., Sprange, K., Bradshaw, L., Montgomery, A. A., Ogollah, R., Moniz-Cook, E., & Orrell, M. (2021). Promoting independence in Dementia (Pride): A feasibility randomized controlled trial. Clinical Interventions in Aging, 16, 363-378. https://doi.org/10.2147/CIA.S281139

Background: There is a need for interventions to foster and maintain independence for people with dementia to support community living, improve morale, and reduce stigma. We investigated a social intervention to promote living well and enhance indepe... Read More about Promoting independence in Dementia (Pride): A feasibility randomized controlled trial.

Timely Psychosocial Interventions in Dementia Care: Evidence-Based Practice (2020)
Book
Manthorpe, J., & Moniz-Cook, E. (Eds.). (2020). Timely Psychosocial Interventions in Dementia Care: Evidence-Based Practice. London: Jessica Kingsley Publishers

This new edited volume seeks to meet the growing need for ways to support people with dementia across the whole course and trajectory of dementia care, with a wide scope of expertise. The book addresses how practitioners and carers can apply psych... Read More about Timely Psychosocial Interventions in Dementia Care: Evidence-Based Practice.

Supporting People with Dementia through Music (2020)
Book Chapter
Raglio, A., Gianelli, M., Moniz-Cook, E., & Manthorpe, J. (2020). Supporting People with Dementia through Music. In Timely Psychosocial Interventions in Dementia Care: Evidence-Based Practice (179-190). Jessica Kingsley Publishers

Developing a model of best practice for teams managing crisis in people with dementia: a consensus approach (2020)
Journal Article
Yates, J., Stanyon, M., Challis, D., Coleston-Shields, D. M., Dening, T., Hoe, J., Jawahar, K., Lloyd-Evans, B., Moniz-Cook, E., Poland, F., Streater, A., Trigg, E., & Orrell, M. (2020). Developing a model of best practice for teams managing crisis in people with dementia: a consensus approach. BMC Psychiatry, 20(1), Article 505. https://doi.org/10.1186/s12888-020-02899-0

Background Teams delivering crisis resolution services for people with dementia and their carers provide short-term interventions to prevent admission to acute care settings. There is great variation in these services across the UK. This article rep... Read More about Developing a model of best practice for teams managing crisis in people with dementia: a consensus approach.

UK clinicians’ views on the use of formulations for the management of BPSD: a multidisciplinary survey (2020)
Journal Article
James, I. A., James, I., Mahesh, M., Duffy, F., Reichelt, K., & Moniz-Cook, E. (2020). UK clinicians’ views on the use of formulations for the management of BPSD: a multidisciplinary survey. Aging and Mental Health, 1-8. https://doi.org/10.1080/13607863.2020.1830944

© 2020 Informa UK Limited, trading as Taylor & Francis Group. Background and objectives: The process of formulating in the area of dementia care is at an early stage of development. A review published in 2016, identified 14 different types of formu... Read More about UK clinicians’ views on the use of formulations for the management of BPSD: a multidisciplinary survey.

AQUEDUCT intervention for crisis team quality and effectiveness in dementia: Protocol for a feasibility study (2020)
Journal Article
Broome, E. E., Coleston-Shields, D. M., Dening, T., Moniz-Cook, E., Poland, F., Stanyon, M., & Orrell, M. (2020). AQUEDUCT intervention for crisis team quality and effectiveness in dementia: Protocol for a feasibility study. JMIR Research Protocols, 9(10), Article e18971. https://doi.org/10.2196/18971

Background: Specialist community teams often support people with dementia who experience crisis. These teams may vary in composition and models of practice, which presents challenges when evaluating their effectiveness. A best practice model for deme... Read More about AQUEDUCT intervention for crisis team quality and effectiveness in dementia: Protocol for a feasibility study.

Challenging behaviour in dementia care: A novel framework for translating knowledge to practice (2020)
Journal Article
James, I. A., Reichelt, K., James, I., Reichelt, K., Moniz-Cook, E., & Lee, K. (2020). Challenging behaviour in dementia care: A novel framework for translating knowledge to practice. the Cognitive Behaviour Therapist, 13, Article e43. https://doi.org/10.1017/S1754470X20000434

This article provides guidance on the management of challenging behaviours (CBs) in dementia care, and introduces concepts from positive behavioural support not usually applied to dementia. While the use of formulations has received a lot of attentio... Read More about Challenging behaviour in dementia care: A novel framework for translating knowledge to practice.

Feasibility and acceptability evaluation of the PRIDE (Promoting Independence in Dementia) intervention for living well with dementia (2020)
Journal Article
Csipke, E., Moniz-Cook, E., Leung, P., Yates, L., Birt, L., Walton, H., Hogervorst, E., Mountain, G., Charlesworth, G., & Orrell, M. (2020). Feasibility and acceptability evaluation of the PRIDE (Promoting Independence in Dementia) intervention for living well with dementia. International Psychogeriatrics, 33(Special Issue 6), 601 - 614. https://doi.org/10.1017/S1041610220001386

Objectives: Post-diagnostic psychosocial interventions could play an important role in supporting people with mild dementia remain independent. The PRIDE intervention was developed to address this. Method: The mixed methods non-randomised, pre-pos... Read More about Feasibility and acceptability evaluation of the PRIDE (Promoting Independence in Dementia) intervention for living well with dementia.

Improving mental health and reducing antipsychotic use in people with dementia in care homes: the WHELD research programme including two RCTs (2020)
Journal Article
Ballard, C., Orrell, M., Moniz-Cook, E., Woods, R., Whitaker, R., Corbett, A., Aarsland, D., Murray, J., Lawrence, V., Testad, I., Knapp, M., Romeo, R., Zala, D., Stafford, J., Hoare, Z., Garrod, L., Sun, Y., McLaughlin, E., Woodward-Carlton, B., Williams, G., & Fossey, J. (2020). Improving mental health and reducing antipsychotic use in people with dementia in care homes: the WHELD research programme including two RCTs. Programme Grants for Applied Research, 8(6), 1-98. https://doi.org/10.3310/pgfar08060

Background: The effective management of agitation and other neuropsychiatric and behavioural symptoms in people with dementia is a major challenge, particularly in care home settings, where dementia severity is higher and there is limited training an... Read More about Improving mental health and reducing antipsychotic use in people with dementia in care homes: the WHELD research programme including two RCTs.

Measuring the well-being of people with dementia : a conceptual scoping review (2020)
Journal Article
Clarke, C., Woods, B., Moniz-Cook, E., Mountain, G., Øksnebjerg, L., Chattat, R., Diaz, A., Gove, D., Vernooij-Dassen, M., & Wolverson, E. (in press). Measuring the well-being of people with dementia : a conceptual scoping review. Health and quality of life outcomes, 18(1), Article 249. https://doi.org/10.1186/s12955-020-01440-x

Background: Enabling people with dementia to ‘live well’ is a policy and research priority in many countries. However, instruments for measuring outcomes of psychosocial interventions designed to promote well-being in dementia are often derived from... Read More about Measuring the well-being of people with dementia : a conceptual scoping review.

INTERDEM network celebrates 20 years (2020)
Journal Article
Vernooij-Dassen, M., Moniz-Cook, E., & Chattat, R. (2020). INTERDEM network celebrates 20 years. Dementia in Europe, 32, 10-12

Myrra Vernooij-Dassen, INTERDEM Chair, Esme Moniz-Cook, Co-chair and Rabih Chattat, Board member highlight some of the network’s key achievements of the past 20 years.

Promoting Independence in Dementia (PRIDE): Protocol for a feasibility randomised controlled trial (2019)
Journal Article
Shafayat, A., Csipke, E., Bradshaw, L., Charlesworth, G., Day, F., Leung, P., Moniz-Cook, E., Montgomery, A. A., Morris, S., Mountain, G., Ogollah, R., Sprange, K., Yates, L., & Orrell, M. (2019). Promoting Independence in Dementia (PRIDE): Protocol for a feasibility randomised controlled trial. Trials, 20, Article 709. https://doi.org/10.1186/s13063-019-3838-x

© 2019 The Author(s). Background: Memory services often see people with early stage dementia who are largely independent and able to participate in community activities but who run the risk of reducing activities and social networks. PRIDE is a sel... Read More about Promoting Independence in Dementia (PRIDE): Protocol for a feasibility randomised controlled trial.

Bridging the divide between biomedical and psychosocial approaches in dementia research: the 2019 INTERDEM Manifesto (2019)
Journal Article
Vernooij-Dassen, M., Moniz-Cook, E., Verhey, F., Chattat, R., Woods, B., Meiland, F., Franco, M., Holmerova, I., Orrell, M., & de Vugt, M. (2021). Bridging the divide between biomedical and psychosocial approaches in dementia research: the 2019 INTERDEM Manifesto. Aging and Mental Health, 25(2), 206-212. https://doi.org/10.1080/13607863.2019.1693968

Objective: To provide a new perspective on integrated biomedical and psychosocial dementia research. Background: Dementia is being recognized as a multifactorial syndrome, but there is little interaction between biomedical and psychosocial approac... Read More about Bridging the divide between biomedical and psychosocial approaches in dementia research: the 2019 INTERDEM Manifesto.

Evaluating interventions for Behaviours that Challenge (BtC) in dementia care - what instruments do specialist practitioners working in the UK use? (2019)
Journal Article
Dunn, R., & Moniz-Cook, E. (2019). Evaluating interventions for Behaviours that Challenge (BtC) in dementia care - what instruments do specialist practitioners working in the UK use?. FPOP Bulletin, 148, 51-61

Written feedback was examined from participants who attended the February 2019 consultation. This informed the 35-item online survey that followed (May-June 2019). One item questioned practice on instruments used by specialist BtC practitioners to ev... Read More about Evaluating interventions for Behaviours that Challenge (BtC) in dementia care - what instruments do specialist practitioners working in the UK use?.

Naming and Framing the Behavioural and Psychological Symptoms of Dementia (BPSD) Paradigm: Professional Stakeholder Perspectives (2019)
Journal Article
Wolverson, E., Birtles, H., Moniz-Cook, E., James, I., Brooker, D., & Duffy, F. (2019). Naming and Framing the Behavioural and Psychological Symptoms of Dementia (BPSD) Paradigm: Professional Stakeholder Perspectives. OBM geriatrics, 3(4), 1-19. https://doi.org/10.21926/obm.geriatr.1904080

Background: Behavioural and Psychological Symptoms of Dementia and Challenging Behaviour in dementia are just two of a variety of terms for a complex paradigm that covers the most distressing and costly aspects of the condition. The terminology used... Read More about Naming and Framing the Behavioural and Psychological Symptoms of Dementia (BPSD) Paradigm: Professional Stakeholder Perspectives.

Study protocol for a randomised controlled trial assessing the clinical and cost-effectiveness of the Journeying through Dementia (JtD) intervention compared to usual care (2019)
Journal Article
Wright, J., Foster, A., Cooper, C., Sprange, K., Walters, S., Berry, K., Moniz-Cook, E., Loban, A., Young, T. A., Craig, C., Dening, T., Lee, E., Beresford-Dent, J., Thompson, B. J., Young, E., Thomas, B. D., & Mountain, G. (2019). Study protocol for a randomised controlled trial assessing the clinical and cost-effectiveness of the Journeying through Dementia (JtD) intervention compared to usual care. BMJ open, 9(9), Article e029207. https://doi.org/10.1136/bmjopen-2019-029207

Introduction Services are being encouraged to provide postdiagnostic treatment to those with dementia but the availability of evidence-based interventions following diagnosis has not kept pace with increase in demand. To address this need, the Jour... Read More about Study protocol for a randomised controlled trial assessing the clinical and cost-effectiveness of the Journeying through Dementia (JtD) intervention compared to usual care.

The development of the Promoting Independence in Dementia (PRIDE) intervention to enhance independence in dementia (2019)
Journal Article
Yates, L., Csipke, E., Moniz-Cook, E., Leung, P., Walton, H., Charlesworth, G., Spector, A., Hogervorst, E., Mountain, G., & Orrell, M. (2019). The development of the Promoting Independence in Dementia (PRIDE) intervention to enhance independence in dementia. Clinical Interventions in Aging, 14, 1615-1630. https://doi.org/10.2147/CIA.S214367

© 2019 Yates et al. Objective: Support after a diagnosis of dementia may facilitate better adjustment and ongoing management of symptoms. The aim of the Promoting Independence in Dementia (PRIDE) study was to develop a postdiagnostic social intervent... Read More about The development of the Promoting Independence in Dementia (PRIDE) intervention to enhance independence in dementia.

Psychosocial Approaches to Behaviours that Challenge Care (2019)
Book Chapter
Moniz-Cook, E. (2019). Psychosocial Approaches to Behaviours that Challenge Care. In K. Harrison Dening (Ed.), Evidence-Based Practice in Dementia for Nurses and Nursing Students. Jessica Kingsley Publishers

Using meta-ethnography to synthesise relevant studies : Capturing the bigger picture in dementia with challenging behaviour within families (2018)
Digital Artefact
Feast, A., Orrell, M., Charlesworth, G., Poland, F., Featherstone, K., Melunsky, N., & Moniz-Cook, E. (2018). Using meta-ethnography to synthesise relevant studies : Capturing the bigger picture in dementia with challenging behaviour within families. [HTML]

Abstract In understanding the range and depth of people’s experiences it is important to include the wide range of approaches which capture the richness within a given knowledge base. However, systematic reviews using quantitative data alone risk mis... Read More about Using meta-ethnography to synthesise relevant studies : Capturing the bigger picture in dementia with challenging behaviour within families.

Translation and linguistic validation of the German Challenging Behaviour Scale for formal caregivers of people with dementia in nursing homes (2018)
Journal Article
Köller, L., Holle, D., Köller, L., Moniz-Cook, E., & Halek, M. (2018). Translation and linguistic validation of the German Challenging Behaviour Scale for formal caregivers of people with dementia in nursing homes. Journal of Nursing Measurement, 26(3), 544-565. https://doi.org/10.1891/1061-3749.26.3.544

© 2018 Springer Publishing Company. Background and Purpose: The Challenging Behavior Scale (CBS) measures the behavior of individuals with dementia. The study aims to translate the English CBS into German (CBS-G) and test its linguistic validity. Met... Read More about Translation and linguistic validation of the German Challenging Behaviour Scale for formal caregivers of people with dementia in nursing homes.

Promoting independence in dementia: protocol for a feasibility trial of the PRIDE intervention for living well with dementia (2018)
Journal Article
Csipke, E., Yates, L., Cook, E. M., Leung, P., Charlesworth, G., Walton, H., Birt, L., & Orrell, M. (2018). Promoting independence in dementia: protocol for a feasibility trial of the PRIDE intervention for living well with dementia. International Journal of Clinical Trials, 5(4), 177-185. https://doi.org/10.18203/2349-3259.ijct20184399

INTRODUCTION In the UK over 800,000 older people have dementia, which can lead to social exclusion, loss of identity and independence due to deterioration in cognition, activities of daily living, the double stigma of age and dementia, and the reduce... Read More about Promoting independence in dementia: protocol for a feasibility trial of the PRIDE intervention for living well with dementia.

Implementing e-learning and e-tools for care home staff supporting residents with dementia and challenging behaviour: A process evaluation of the ResCare study using normalisation process theory (2018)
Journal Article
Poland, F., Keenan, J., Manthorpe, J., Hart, C., & Moniz-Cook, E. (2020). Implementing e-learning and e-tools for care home staff supporting residents with dementia and challenging behaviour: A process evaluation of the ResCare study using normalisation process theory. Dementia, 19(5), 1604-1620. https://doi.org/10.1177/1471301218803195

© The Author(s) 2018. Dementia-related symptoms, sometimes termed challenging or distressing behaviour, can give rise to significant distress in care homes. Individualised formulation-led interventions show promise in reducing these behaviours. ResCa... Read More about Implementing e-learning and e-tools for care home staff supporting residents with dementia and challenging behaviour: A process evaluation of the ResCare study using normalisation process theory.

Towards capturing meaningful outcomes for people with dementia in psychosocial intervention research: A pan-European consultation (2018)
Journal Article
Øksnebjerg, L., Diaz-Ponce, A., Gove, D., Moniz-Cook, E., Mountain, G., Chattat, R., & Woods, B. (2018). Towards capturing meaningful outcomes for people with dementia in psychosocial intervention research: A pan-European consultation. Health Expectations, 21(6), 1056-1065. https://doi.org/10.1111/hex.12799

Background: People with dementia are often marginalized and excluded from influence, also in relation to dementia research. There is, however, a growing requirement for inclusion through Patient and Public Involvement (PPI), but there is still limite... Read More about Towards capturing meaningful outcomes for people with dementia in psychosocial intervention research: A pan-European consultation.

Evidence Briefing: Behaviour that challenges in dementia (2018)
Report
James, I. A., & Moniz-Cook, E. (2018). Evidence Briefing: Behaviour that challenges in dementia. Leicester, UK: British Psychological Society

Key messages • Behaviour that challenges (BtC) can be a consequence of a person’s unmet health or psychosocial need(s). • ‘Non-pharmacological’ approaches are the first-line treatments, rather than psychotropic medications. • Service pathways for p... Read More about Evidence Briefing: Behaviour that challenges in dementia.

Practitioners’ understanding of barriers to accessing specialist support by family carers of people with dementia in distress (2018)
Journal Article
Manthorpe, J., Hart, C., Watts, S., Goudie, F., Charlesworth, G., Fossey, J., & Moniz-Cook, E. (2018). Practitioners’ understanding of barriers to accessing specialist support by family carers of people with dementia in distress. International Journal of Care and Caring, 2(1), 109-123. https://doi.org/10.1332/239788218X15187915193354

Distressing symptoms in dementia are hard to manage for many family carers. This article explores practitioners’ perceptions of the barriers to accessing skilled behaviour management support encountered by carers. A survey of cases referred to the En... Read More about Practitioners’ understanding of barriers to accessing specialist support by family carers of people with dementia in distress.

Impact of person-centred care training and person-centred activities on quality of life, agitation, and antipsychotic use in people with dementia living in nursing homes: A cluster-randomised controlled trial (2018)
Journal Article
Ballard, C., Corbett, A., Orrell, M., Williams, G., Moniz-Cook, E., Romeo, R., Woods, B., Garrod, L., Testad, I., Woodward-Carlton, B., Wenborn, J., Knapp, M., & Fossey, J. (2018). Impact of person-centred care training and person-centred activities on quality of life, agitation, and antipsychotic use in people with dementia living in nursing homes: A cluster-randomised controlled trial. PLoS Medicine, 15(2), e1002500. https://doi.org/10.1371/journal.pmed.1002500

© 2018 Ballard et al. Background: Agitation is a common, challenging symptom affecting large numbers of people with dementia and impacting on quality of life (QoL). There is an urgent need for evidence-based, cost-effective psychosocial interventions... Read More about Impact of person-centred care training and person-centred activities on quality of life, agitation, and antipsychotic use in people with dementia living in nursing homes: A cluster-randomised controlled trial.

Psychosocial interventions for people with dementia: a synthesis of systematic reviews (2018)
Journal Article
McDermott, O., Charlesworth, G., Hogervorst, E., Stoner, C., Moniz-Cook, E., Spector, A., Csipke, E., & Orrell, M. (2019). Psychosocial interventions for people with dementia: a synthesis of systematic reviews. Aging and Mental Health, 23(4), 393-403. https://doi.org/10.1080/13607863.2017.1423031

Objectives: Over the last 10 years there has been a multitude of studies of psychosocial interventions for people with dementia. However, clinical services face a dilemma about which intervention should be introduced into clinical practice because of... Read More about Psychosocial interventions for people with dementia: a synthesis of systematic reviews.

‘Behaviour that challenges’ in dementia care: an update of psychological approaches for home and care home settings (2017)
Journal Article
Moniz-Cook, E., & James, I. (2017). ‘Behaviour that challenges’ in dementia care: an update of psychological approaches for home and care home settings. FPOP Bulletin, 140, 43-49

Over and above the personal and financial costs associated with dementia, those for ‘behaviour that challenges’ (BtC) are significant (Lowry & Warner, 2009; Hermann et al., 2006). This briefing paper outlines the importance of having a psychological... Read More about ‘Behaviour that challenges’ in dementia care: an update of psychological approaches for home and care home settings.

Challenge Demcare: management of challenging behaviour in dementia at home and in care homes – development, evaluation and implementation of an online individualised intervention for care homes; and a cohort study of specialist community mental health care for families (2017)
Journal Article
Moniz-Cook, E., Hart, C., Woods, B., Whitaker, C., James, I., Russell, I., Edwards, R. T., Hilton, A., Orrell, M., Campion, P., Stokes, G., Jones, R. S., Bird, M., Poland, F., & Manthorpe, J. (2017). Challenge Demcare: management of challenging behaviour in dementia at home and in care homes – development, evaluation and implementation of an online individualised intervention for care homes; and a cohort study of specialist community mental health care for families. Programme Grants for Applied Research, 5(15), 1-290. https://doi.org/10.3310/pgfar05150

Background Dementia with challenging behaviour (CB) causes significant distress for caregivers and the person with dementia. It is associated with breakdown of care at home and disruption in care homes. Challenge Demcare aimed to assist care home... Read More about Challenge Demcare: management of challenging behaviour in dementia at home and in care homes – development, evaluation and implementation of an online individualised intervention for care homes; and a cohort study of specialist community mental health care for families.

Impact of WHELD intervention on neuropsychiatric symptoms, antipsychotic use and quality of life in people with dementia living in nursing homes: a cluster- randomized trial (2017)
Presentation / Conference Contribution
Crawford, F., Ballard, C., Fossey, J., Corbett, A., Orrell, M., Romeo, R., Moniz-Cook, E., Woods, B., & Whitaker, R. Impact of WHELD intervention on neuropsychiatric symptoms, antipsychotic use and quality of life in people with dementia living in nursing homes: a cluster- randomized trial

Core outcome measures for interventions to prevent or slow the progress of dementia for people living with mild to moderate dementia: Systematic review and consensus recommendations (2017)
Journal Article
Webster, L., Groskreutz, D., Grinbergs-Saull, A., Howard, R., O'Brien, J. T., Mountain, G., Banerjee, S., Woods, B., Perneczky, R., Lafortune, L., Roberts, C., McCleery, J., Pickett, J., Bunn, F., Challis, D., Charlesworth, G., Featherstone, K., Fox, C., Goodman, C., Jones, R., …Livingston, G. (2017). Core outcome measures for interventions to prevent or slow the progress of dementia for people living with mild to moderate dementia: Systematic review and consensus recommendations. PLoS ONE, 12(6), e0179521. https://doi.org/10.1371/journal.pone.0179521

Background There are no disease-modifying treatments for dementia. There is also no consensus on disease modifying outcomes. We aimed to produce the first evidence-based consensus on core outcome measures for trials of disease modification in mild-to... Read More about Core outcome measures for interventions to prevent or slow the progress of dementia for people living with mild to moderate dementia: Systematic review and consensus recommendations.

Development of a core outcome set for disease modification trials in mild to moderate dementia: A systematic review, patient and public consultation and consensus recommendations (2017)
Journal Article
Webster, L., Groskreutz, D., Grinbergs-Saull, A., Howard, R., O’Brien, J. T., Mountain, G., Banerjee, S., Woods, B., Perneczky, R., Lafortune, L., Roberts, C., McCleery, J., Pickett, J., Bunn, F., Challis, D., Charlesworth, G., Featherstone, K., Fox, C., Goodman, C., Jones, R., …Livingston, G. (2017). Development of a core outcome set for disease modification trials in mild to moderate dementia: A systematic review, patient and public consultation and consensus recommendations. Health Technology Assessment, 21(26), 1-192. https://doi.org/10.3310/hta21260

© Queen’s Printer and Controller of HMSO 2017. Background: There is currently no disease-modifying treatment available to halt or delay the progression of the disease pathology in dementia. An agreed core set of the best-available and most appropriat... Read More about Development of a core outcome set for disease modification trials in mild to moderate dementia: A systematic review, patient and public consultation and consensus recommendations.

Alzheimer Europe's position on involving people with dementia in research through PPI (patient and public involvement) (2017)
Journal Article
Gove, D., Diaz-Ponce, A., Georges, J., Moniz-Cook, E., Mountain, G., Chattat, R., & Øksnebjerg, L. (2018). Alzheimer Europe's position on involving people with dementia in research through PPI (patient and public involvement). Aging and Mental Health, 22(6), 723-729. https://doi.org/10.1080/13607863.2017.1317334

This paper reflects Alzheimer Europe's position on PPI (patient and public involvement) in the context of dementia research and highlights some of the challenges and potential risks and benefits associated with such meaningful involvement. The paper... Read More about Alzheimer Europe's position on involving people with dementia in research through PPI (patient and public involvement).

Positive psychology outcome measures for family caregivers of people living with dementia: a systematic review (2017)
Journal Article
Stansfeld, J., Stoner, C. R., Wenborn, J., Vernooij-Dassen, M., Moniz-Cook, E., & Orrell, M. (2017). Positive psychology outcome measures for family caregivers of people living with dementia: a systematic review. International Psychogeriatrics, 29(8), 1281-1296. https://doi.org/10.1017/S1041610217000655

Background: Family caregivers of people living with dementia can have both positive and negative experiences of caregiving. Despite this, existing outcome measures predominately focus on negative aspects of caregiving such as burden and depression. T... Read More about Positive psychology outcome measures for family caregivers of people living with dementia: a systematic review.

Nature of behaviours that challenge in residents living in aged care homes: implications for psychosocial interventions and service development (2017)
Journal Article
James, I., Watson, R., Whitaker, C., Stokes, G., Hart, C., & Moniz-Cook, E. (2017). Nature of behaviours that challenge in residents living in aged care homes: implications for psychosocial interventions and service development. FPOP Bulletin, 19-27

Background/Aims: Competing theories exist regarding the causes and nature of behaviours that challenge (BC). The present study attempted to provide better insight into these behaviours and determine whether there were any underlying relationships for... Read More about Nature of behaviours that challenge in residents living in aged care homes: implications for psychosocial interventions and service development.

The impact of individual Cognitive Stimulation Therapy (iCST) on cognition, quality of life, caregiver health, and family relationships in dementia : a randomized controlled trial (2017)
Journal Article
Orrell, M., Yates, L., Leung, P., Kang, S., Hoare, Z., Whitaker, C., Burns, A., Knapp, M., Leroi, I., Moniz-Cook, E., Pearson, S., Simpson, S., Spector, A., Roberts, S., Russell, I., de Waal, H., Woods, R. T., & Orgeta, V. (2017). The impact of individual Cognitive Stimulation Therapy (iCST) on cognition, quality of life, caregiver health, and family relationships in dementia : a randomized controlled trial. PLoS Medicine, 14(3), e1002269. https://doi.org/10.1371/journal.pmed.1002269

Background Cognitive Stimulation Therapy (CST) is a well-established group psychosocial intervention for people with dementia. There is evidence that homebased programmes of cognitive stimulation delivered by family caregivers may benefit both the pe... Read More about The impact of individual Cognitive Stimulation Therapy (iCST) on cognition, quality of life, caregiver health, and family relationships in dementia : a randomized controlled trial.

Epidemiology of pain in people with dementia living in care homes: longitudinal course, prevalence, and treatment implications (2017)
Journal Article
Rajkumar, A. P., Ballard, C., Fossey, J., Orrell, M., Moniz-Cook, E., Woods, R. T., Murray, J., Whitaker, R., Stafford, J., Knapp, M., Romeo, R., Romeo, R., Woodward-Carlton, B., Khan, Z., Testad, I., & Corbett, A. (2017). Epidemiology of pain in people with dementia living in care homes: longitudinal course, prevalence, and treatment implications. Journal of the American Medical Directors Association, 18(5), 453.e1-453.e6. https://doi.org/10.1016/j.jamda.2017.01.024

Introduction: Knowledge regarding the longitudinal course, impact, or treatment implications of pain in people with dementia living in care homes is very limited. Methods: We investigated the people with dementia living in 67 care homes in London and... Read More about Epidemiology of pain in people with dementia living in care homes: longitudinal course, prevalence, and treatment implications.

Support at Home: Interventions to Enhance Life in Dementia (SHIELD) – evidence, development and evaluation of complex interventions (2017)
Journal Article
Orrell, M., Hoe, J., Charlesworth, G., Russell, I., Challis, D., Moniz-Cook, E., Knapp, M., Woods, B., Hoare, Z., Aguirre, E., Toot, S., Streater, A., Crellin, N., Whitaker, C., d’Amico, F., & Rehill, A. (2017). Support at Home: Interventions to Enhance Life in Dementia (SHIELD) – evidence, development and evaluation of complex interventions. Programme Grants for Applied Research, 5(5), 1-184. https://doi.org/10.3310/pgfar05050

Background Dementia is a national priority and this research addresses the Prime Minister’s commitment to dementia research as demonstrated by his 2020 challenge and the new UK Dementia Research Institute. In the UK > 800,000 older people have dem... Read More about Support at Home: Interventions to Enhance Life in Dementia (SHIELD) – evidence, development and evaluation of complex interventions.

Through the eyes of others - The social experiences of people with dementia: A systematic literature review and synthesis (2017)
Journal Article
Patterson, K. M., Clarke, C., Wolverson, E. L., Moniz-Cook, E. D., Patterson, K., Clarke, C., Wolverson, E., & Moniz-Cook, E. (2018). Through the eyes of others - The social experiences of people with dementia: A systematic literature review and synthesis. International Psychogeriatrics, 30(6), 791-805. https://doi.org/10.1017/S1041610216002374

Psychosocial models suggest that the lived experience of dementia is affected by interpersonal factors such as the ways in which others view, talk about, and behave toward the person with dementia. This review aimed to illuminate how informal, everyd... Read More about Through the eyes of others - The social experiences of people with dementia: A systematic literature review and synthesis.

Social health and dementia: a European consensus on the operationalization of the concept and directions for research and practice (2016)
Journal Article
Dröes, R. M., Chattat, R., Diaz, A., Gove, D., Graff, M., Murphy, K., Verbeek, H., Vernooij-Dassen, M., Clare, L., Johannessen, A., Roes, M., Verhey, F., Charras, K., van Audenhove, C., Casey, D., Evans, S., Fabbo, A., Franco, M., Gerritsen, D., Vittoria Gianelli, M., …Zuidema, S. (2017). Social health and dementia: a European consensus on the operationalization of the concept and directions for research and practice. Aging and Mental Health, 21(1), 4-17. https://doi.org/10.1080/13607863.2016.1254596

© 2017, © 2016 Informa UK Limited, trading as Taylor & Francis Group. Background: Because the pattern of illnesses changes in an aging population and many people manage to live well with chronic diseases, a group of health care professionals recent... Read More about Social health and dementia: a European consensus on the operationalization of the concept and directions for research and practice.

Factors of resilience in informal caregivers of people with dementia from integrative international data analysis (2016)
Journal Article
Joling, K. J., Windle, G., Dröes, R.-M., Meiland, F., van Hout, H. P., MacNeil Vroomen, J., van de Ven, P. M., Moniz-Cook, E., & Woods, B. (2016). Factors of resilience in informal caregivers of people with dementia from integrative international data analysis. Dementia and Geriatric Cognitive Disorders, 42(3-4), 198-214. https://doi.org/10.1159/000449131

Background/Aims: Although caring for a person with dementia can be stressful, some caregivers appear to experience few negative consequences to their well-being. This study aimed to examine what proportion of caregivers demonstrates resilience under... Read More about Factors of resilience in informal caregivers of people with dementia from integrative international data analysis.

Impact of antipsychotic review and non‐pharmacological intervention on health‐related quality of life in people with dementia living in care homes: WHELD—a factorial cluster randomised controlled trial (2016)
Journal Article
Ballard, C., Orrell, M., Sun, Y., Moniz-Cook, E., Stafford, J., Whitaker, R., Woods, B., Corbett, A., Banerjee, S., Testad, I., Garrod, L., Khan, Z., Woodward-Carlton, B., Wenborn, J., & Fossey, J. (2017). Impact of antipsychotic review and non‐pharmacological intervention on health‐related quality of life in people with dementia living in care homes: WHELD—a factorial cluster randomised controlled trial. International journal of geriatric psychiatry, 32(10), 1094-1103. https://doi.org/10.1002/gps.4572

Background: Very few interventional studies have directly examined the impact of treatment approaches on Health-Related Quality of Life (HRQL) in people with dementia. This is of particular importance in therapies to address behavioural symptoms, whe... Read More about Impact of antipsychotic review and non‐pharmacological intervention on health‐related quality of life in people with dementia living in care homes: WHELD—a factorial cluster randomised controlled trial.

Apathy and its response to antipsychotic review and non-pharmacological interventions in people with dementia living in nursing homes : WHELD, A factorial cluster randomised controlled trial (2016)
Journal Article
Rajkumar, A. P., Ballard, C., Fossey, J., Corbett, A., Woods, B., Orrell, M., Prakash, R., Moniz-Cook, E., & Testad, I. (2016). Apathy and its response to antipsychotic review and non-pharmacological interventions in people with dementia living in nursing homes : WHELD, A factorial cluster randomised controlled trial. Journal of the American Medical Directors Association, 17(8), 741-747. https://doi.org/10.1016/j.jamda.2016.04.006

Objectives: Apathy is common, impactful, and difficult to manage in people with dementia. We evaluated the efficacy of non-pharmacological interventions, exercise and social interaction, in combination with antipsychotic review, to reduce apathy in p... Read More about Apathy and its response to antipsychotic review and non-pharmacological interventions in people with dementia living in nursing homes : WHELD, A factorial cluster randomised controlled trial.

A systematic review of the relationship between behavioral and psychological symptoms (BPSD) and caregiver well-being (2016)
Journal Article
Feast, A., Moniz-Cook, E., Stoner, C., Charlesworth, G., & Orrell, M. (2016). A systematic review of the relationship between behavioral and psychological symptoms (BPSD) and caregiver well-being. International Psychogeriatrics, 28(11), 1761-1774. https://doi.org/10.1017/S1041610216000922

Background: Behavioural and psychological symptoms in dementia (BPSD) are important predictors of institutionalisation as well as caregiver burden and depression. Previous reviews have tended to group BPSD as one category with little focus on the rol... Read More about A systematic review of the relationship between behavioral and psychological symptoms (BPSD) and caregiver well-being.

Behavioural and psychological symptoms in dementia and the challenges for family carers: systematic review (2016)
Journal Article
Feast, A., Orrell, M., Charlesworth, G., Melunsky, N., Poland, F., & Moniz-Cook, E. (2016). Behavioural and psychological symptoms in dementia and the challenges for family carers: systematic review. British Journal of Psychiatry, 208(5), 429-434. https://doi.org/10.1192/bjp.bp.114.153684

Background Tailored psychosocial interventions can help families to manage behavioural and psychological symptoms in dementia (BPSD), but carer responses to their relatives’ behaviours contribute to the success of support programmes. Aim To understan... Read More about Behavioural and psychological symptoms in dementia and the challenges for family carers: systematic review.

REMCARE : pragmatic multi-centre randomised trial of reminiscence groups for people with dementia and their family carers : effectiveness and economic analysis (2016)
Journal Article
Woods, R. T., Orrell, M., Bruce, E., Edwards, R. T., Hoare, Z., Hounsome, B., Keady, J., Moniz-Cook, E., Orgeta, V., Rees, J., & Russell, I. (2016). REMCARE : pragmatic multi-centre randomised trial of reminiscence groups for people with dementia and their family carers : effectiveness and economic analysis. PLoS ONE, 11(4), e0152843. https://doi.org/10.1371/journal.pone.0152843

Background Joint reminiscence groups, involving people with dementia and family carers together, are popular, but the evidence-base is limited. This study aimed to assess the effectiveness and cost-effectiveness of joint reminiscence groups as compar... Read More about REMCARE : pragmatic multi-centre randomised trial of reminiscence groups for people with dementia and their family carers : effectiveness and economic analysis.

The contribution of caregiver psychosocial factors to distress associated with behavioural and psychological symptoms in dementia (2016)
Journal Article
Feast, A., Orrell, M., Russell, I., Charlesworth, G., & Moniz-Cook, E. (2017). The contribution of caregiver psychosocial factors to distress associated with behavioural and psychological symptoms in dementia. International journal of geriatric psychiatry, 32(1), 76-85. https://doi.org/10.1002/gps.4447

Copyright © 2016 John Wiley & Sons, Ltd. Objective: The objective of the study is to examine caregiver factors as predictors of BPSD-related distress and their potential mechanisms. Method: Informal caregivers of people with dementia (n = 157) recr... Read More about The contribution of caregiver psychosocial factors to distress associated with behavioural and psychological symptoms in dementia.

Community occupational therapy for people with dementia and family carers (COTiD-UK) versus treatment as usual (Valuing Active Life in Dementia [VALID] programme): study protocol for a randomised controlled trial (2016)
Journal Article
Wenborn, J., Hynes, S., Moniz-Cook, E., Mountain, G., Poland, F., King, M., Omar, R., Morris, S., Vernooij-Dassen, M., Challis, D., Michie, S., Russell, I., Sackley, C., Graff, M., O’Keeffe, A., Crellin, N., & Orrell, M. (2016). Community occupational therapy for people with dementia and family carers (COTiD-UK) versus treatment as usual (Valuing Active Life in Dementia [VALID] programme): study protocol for a randomised controlled trial. Trials, 17(1), Article ARTN 65. https://doi.org/10.1186/s13063-015-1150-y

Background: A community-based occupational therapy intervention for people with mild to moderate dementia and their family carers (Community Occupational Therapy in Dementia (COTiD)) was found clinically and cost effective in the Netherlands but not... Read More about Community occupational therapy for people with dementia and family carers (COTiD-UK) versus treatment as usual (Valuing Active Life in Dementia [VALID] programme): study protocol for a randomised controlled trial.

Individual cognitive stimulation therapy for dementia : a clinical effectiveness and cost-effectiveness pragmatic, multicentre, randomised controlled trial (2015)
Journal Article
Orgeta, V., Leung, P., Yates, L., Kang, S., Hoare, Z., Henderson, C., Whitaker, C., Burns, A., Knapp, M., Leroi, I., Moniz-Cook, E., Pearson, S., Simpson, S., Spector, A., Roberts, S., Russell, I. T., de Waal, H., Woods, R. T., & Orrell, M. (in press). Individual cognitive stimulation therapy for dementia : a clinical effectiveness and cost-effectiveness pragmatic, multicentre, randomised controlled trial. Health Technology Assessment, 19(64), 1-108. https://doi.org/10.3310/hta19640

Background Group cognitive stimulation therapy programmes can benefit cognition and quality of life for people with dementia. Evidence for home-based, carer-led cognitive stimulation interventions is limited. Objectives To evaluate the clinical effec... Read More about Individual cognitive stimulation therapy for dementia : a clinical effectiveness and cost-effectiveness pragmatic, multicentre, randomised controlled trial.

Living positively with dementia: a systematic review and synthesis of the qualitative literature (2015)
Journal Article
Wolverson, E., Clarke, C., & Moniz-Cook, E. (2016). Living positively with dementia: a systematic review and synthesis of the qualitative literature. Aging and Mental Health, 20(7), 676-699. https://doi.org/10.1080/13607863.2015.1052777

Objective: Little is known about how and to what extent people with dementia live positively with their condition. This study aimed to review and carry out a synthesis of qualitative studies where accounts of the subjective experiences of people with... Read More about Living positively with dementia: a systematic review and synthesis of the qualitative literature.

Exploring the need for a new UK occupational therapy intervention for people with dementia and family carers : community occupational therapy in dementia (COTiD). A focus group study (2015)
Journal Article
Hynes, S. M., Field, B., Ledgerd, R., Swinson, T., Wenborn, J., Di Bona, L., Moniz-Cook, E., Poland, F., & Orrell, M. (2016). Exploring the need for a new UK occupational therapy intervention for people with dementia and family carers : community occupational therapy in dementia (COTiD). A focus group study. Aging and Mental Health, 20(7), 762-769. https://doi.org/10.1080/13607863.2015.1037243

Objectives: In the Netherlands, Graff et al. found Community Occupational Therapy in Dementia (COTiD) demonstrated benefits to people with dementia and family carers. In this study, focus groups took place with people with dementia and family carers... Read More about Exploring the need for a new UK occupational therapy intervention for people with dementia and family carers : community occupational therapy in dementia (COTiD). A focus group study.

Improving Well-being and Health for People with Dementia (WHELD): study protocol for a randomised controlled trial (2014)
Journal Article
Whitaker, R., Fossey, J., Ballard, C., Orrell, M., Moniz-Cook, E., Woods, R. T., Murray, J., Stafford, J., Knapp, M., Romeo, R., Carlton, B., Testad, I., & Khan, Z. (2014). Improving Well-being and Health for People with Dementia (WHELD): study protocol for a randomised controlled trial. Trials, 15(1), Article ARTN 284. https://doi.org/10.1186/1745-6215-15-284

Background People with dementia living in care homes often have complex mental health problems, disabilities and social needs. Providing more comprehensive training for staff working in care home environments is a high national priority. It is import... Read More about Improving Well-being and Health for People with Dementia (WHELD): study protocol for a randomised controlled trial.

The influence of 'cognitive busyness' on causal attributions of challenging behaviour in dementia: a preliminary experimental study (2012)
Journal Article
Parker, S., Clarke, C., Moniz-Cook, E., & Gardiner, E. (2012). The influence of 'cognitive busyness' on causal attributions of challenging behaviour in dementia: a preliminary experimental study. Aging and Mental Health, 16(7), 836-844. https://doi.org/10.1080/13607863.2012.684668

This study investigated the influence of cognitive busyness (competing cognitive demands) on residential care staff attributions of challenging behaviour (CB) related to dementia. Following the model of attribution formation proposed by Gilbert, Pelh... Read More about The influence of 'cognitive busyness' on causal attributions of challenging behaviour in dementia: a preliminary experimental study.

REMCARE: Reminiscence groups for people with dementia and their family caregivers - Effectiveness and costeffectiveness pragmatic multicentre randomised trial (2012)
Journal Article
Woods, R. T., Bruce, E., Edwards, R. T., Elvish, R., Hoare, Z., Hounsome, B., Keady, J., Moniz-Cook, E. D., Orgeta, V., Orrell, M., Rees, J., & Russell, I. T. (2012). REMCARE: Reminiscence groups for people with dementia and their family caregivers - Effectiveness and costeffectiveness pragmatic multicentre randomised trial. Health Technology Assessment, 16(48), https://doi.org/10.3310/hta16480

Objectives: The aim of the REMiniscence groups for people with dementia and their family CAREgivers (REMCARE) study was to assess the effectiveness and cost-effectiveness of joint reminiscence groups for people with dementia and their family caregive... Read More about REMCARE: Reminiscence groups for people with dementia and their family caregivers - Effectiveness and costeffectiveness pragmatic multicentre randomised trial.

Remaining hopeful in early-stage dementia: a qualitative study (2010)
Journal Article
Wolverson, E., Clarke, C., & Moniz-Cook, E. (2010). Remaining hopeful in early-stage dementia: a qualitative study. Aging and Mental Health, 14(4), 450-460. https://doi.org/10.1080/13607860903483110

Objectives: Improving the quality of life for people living with dementia is widely accepted as an important outcome in dementia care services. Positive psychology, the systematic study of strengths, capacities, and personal resources, is one framewo... Read More about Remaining hopeful in early-stage dementia: a qualitative study.

Staff factors associated with perception of behaviour as 'challenging' in residential and nursing homes (2009)
Book Chapter
Moniz-Cook, E., Woods, R., & Gardiner, E. (2009). Staff factors associated with perception of behaviour as 'challenging' in residential and nursing homes. In M. Orrell, & A. Spector (Eds.), Psychology of Aging (237-244). Farnham: Ashgate

Opening paragraph: The extensive literature on stress and caregiving in dementia focused, until the mid-1990s, on the experiences of family carers. Since then, studies in North America have suggested that the factors that contribute to stress and bu... Read More about Staff factors associated with perception of behaviour as 'challenging' in residential and nursing homes.

Can training community mental health nurses to support family carers reduce behavioural problems in dementia? An exploratory pragmatic randomised controlled trial (2008)
Journal Article
Moniz-Cook, E., Elston, C., Gardiner, E., Agar, S., Silver, M., Win, T., & Wang, M. (2008). Can training community mental health nurses to support family carers reduce behavioural problems in dementia? An exploratory pragmatic randomised controlled trial. International journal of geriatric psychiatry, 23(2), 185-191. https://doi.org/10.1002/gps.1860

Background: Community mental health nurses (CMHNs) are the backbone of specialist mental health services in the UK. This study evaluated the effects of training CMHNs in a systematic psychosocial intervention (PSI), to help family carers manage behav... Read More about Can training community mental health nurses to support family carers reduce behavioural problems in dementia? An exploratory pragmatic randomised controlled trial.

The effect of personality on the adjustment to residential care for those with dementia (2003)
Thesis
Hilton, A. C. (2003). The effect of personality on the adjustment to residential care for those with dementia. (Thesis). University of Hull. Retrieved from https://hull-repository.worktribe.com/output/4217911

It has been suggested that personality may affect the adjustment to residential care for those with dementia. However, many theorists have stated that personality changes due to dementia. Therefore this study investigates personality modes (namely au... Read More about The effect of personality on the adjustment to residential care for those with dementia.

An exploration of adolescents' thoughts about their sexually abusive behaviour : a qualitative study (2003)
Thesis
Halford, S. P. (2003). An exploration of adolescents' thoughts about their sexually abusive behaviour : a qualitative study. (Thesis). University of Hull. Retrieved from https://hull-repository.worktribe.com/output/4212258

This study aimed to explore adolescent sex offenders' thoughts about their sexuallyabusive behaviour and to understand their perspective of cognitive distortion using Interpretative Phenomenology qualitative methodology. Five participants convicted o... Read More about An exploration of adolescents' thoughts about their sexually abusive behaviour : a qualitative study.

Adjustment to chronic heart failure : a biopsychosocial approach (2002)
Thesis
Haworth, J. E. (2002). Adjustment to chronic heart failure : a biopsychosocial approach. (Thesis). University of Hull. Retrieved from https://hull-repository.worktribe.com/output/4218155

The prevalence of Chronic Heart Failure (CHF) is increasing and recent studies outside of the UK suggest that psychological adjustment to this disease can be poor. The present study aimed to: - 1) Determine the prevalence of anxiety and depression di... Read More about Adjustment to chronic heart failure : a biopsychosocial approach.

Staff factors associated with perception of behaviour as 'challenging’ in residential and nursing homes (2000)
Journal Article
Moniz-Cook, E., Woods, R., & Gardiner, E. (2000). Staff factors associated with perception of behaviour as 'challenging’ in residential and nursing homes. Aging and Mental Health, 4(1), 48-54. https://doi.org/10.1080/13607860055973

Three hundred and twenty-six staff, working in 14 residential and nursing homes across England, were asked to rate their ‘ease of management’ on 14 vignettes of challenging resident behaviour. Multiple regression was used to examine the correlates of... Read More about Staff factors associated with perception of behaviour as 'challenging’ in residential and nursing homes.